Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello I'd like some advice on my symptoms

Josh sash

Recommended Posts

Josh sash Newbie
Josh sash
Posted

Im new to this. I've had an ongoing problem with my stomach. I used to be a very activate person boxing and bodybuildin, then all of a sudden stomach pains. My symptoms of stomach pains. Tiredness, weight loss, off balance, bad co-ordination,muscle loss and nerves pulsating and general nueropathy. But yesterday I went to hospital to have a colonoscopy. It all come back as clear now there want a stool sample and blood test to see what's going on with my intestines eg Crohns or celiac or whatever. Has anyone had similar things like this before being diagnosed me?.. If I have celiac can I make a recovery? And would the symptoms I've had for over 18 months,which have got worse be from possible celiac or dysfunctions?... Please advice.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kmarsh1977 Newbie
kmarsh1977
Posted
5 hours ago, Josh sash said:

Im new to this. I've had an ongoing problem with my stomach. I used to be a very activate person boxing and bodybuildin, then all of a sudden stomach pains. My symptoms of stomach pains. Tiredness, weight loss, off balance, bad co-ordination,muscle loss and nerves pulsating and general nueropathy. But yesterday I went to hospital to have a colonoscopy. It all come back as clear now there want a stool sample and blood test to see what's going on with my intestines eg Crohns or celiac or whatever. Has anyone had similar things like this before being diagnosed me?.. If I have celiac can I make a recovery? And would the symptoms I've had for over 18 months,which have got worse be from possible celiac or dysfunctions?... Please advice.

Yes, yes, and yes.  All of this will be easier for you once you have some sort of diagnosis - whatever that is.  Crohns and celiac can be treated, as can other conditions.  And hopefully your treatment will allow you to return to your activities soon.  Good luck!

Ender Apprentice
Ender
Posted

I'm pretty much going through this now. My limbs and left quad have a tendency to go completely dead hours after I eat gluten (and other carbs and sugar) so I have cut them all from my diet. My muscles are sore and weak, all my joints hurt and get stiff in the morning , I have headaches, I'm tired but have insomnia, and I've gone from 150 to 118 lbs in the last seven months. It is extremely difficult to go to work and function, mostly because sitting at a desk for eight hours is hard. I tested negative for Chrons and my celiac panel is inconclusive (I'd only eaten gluten again for 2 weeks before I got tested). My B12 and D3 are normal now, so it's not that. I've begun to doubt my problems are related to celiac or gluten tolerance.

Good luck with your neurologist. Mine told me that celiac does not cause numbness/tingling in limbs. Only low B12 due to celiac damage causes it. However, I've read in neurology journals about something called gluten ataxia. Look it up. Don't expect your doctors to know anything about it though.

Mine have given me very little help as to the actual cause of whatever is going on with me. I've done a mountain of research into what could be going on with me because I have "good days" when my symptoms aren't as bad. They seem related to my food. If I ate nothing but cabbage and meat today, I'd feel much better tomorrow. So...something is going on, I just don't know what (and it's impossible to just eat cabbage and meat unless you're a fan of D). Right now, I'm looking at carbohydrate intolerance. I've cut out all grains, fruit, starchy veggies, and most dairy to see if that helps. Look up the "two week test" if you're curious about that. I just started yesterday. I feel awful today on it, and I'm about to cut out all dairy to see if that changes things since I know milk can trigger my joint pain.

In any case, other things you might want to look into are thyroid and MS. Other causes might be oxalate excess, salicylate intolerance, or a magnesium deficiency. If this carbohydrate intolerance diet doesn't fix my problems, I'll probably start supplementing with magnesium/calcium and see if that helps.

squirmingitch Veteran
squirmingitch
Posted
19 hours ago, Josh sash said:

Im new to this. I've had an ongoing problem with my stomach. I used to be a very activate person boxing and bodybuildin, then all of a sudden stomach pains. My symptoms of stomach pains. Tiredness, weight loss, off balance, bad co-ordination,muscle loss and nerves pulsating and general nueropathy. But yesterday I went to hospital to have a colonoscopy. It all come back as clear now there want a stool sample and blood test to see what's going on with my intestines eg Crohns or celiac or whatever. Has anyone had similar things like this before being diagnosed me?.. If I have celiac can I make a recovery? And would the symptoms I've had for over 18 months,which have got worse be from possible celiac or dysfunctions?... Please advice.

A colonoscopy can not dx celiac disease nor will a stool sample. You need a full celiac blood panel and an ENDOSCOPY taking 4-6 biopsies AND you must have been eating a normal gluten diet throughout as well as for a long time beforehand.

canadianjem Rookie
canadianjem
Posted

I am going to chime in on a different tangent here.

You said that you are/have been body building.  Are you taking any supplements or enhancements ?  Sometimes these types of things can cause stomach issues which in turn can cause other issues.

Just a thought

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY
    2. RMJ
      - RMJ replied to Xravith's topic in Introduce Yourself / Share Stuff
      1

      Do Gluten Enzymes actually work?

      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.
    3. FannyRD
      - FannyRD replied to FannyRD's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

      Thanks for the resource! I will check it out!
    4. Scott Adams
      - Scott Adams replied to FannyRD's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance"...
    5. Scott Adams
      - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

      Living with celiac disease can be especially hard when you’re in a smaller town and don’t have many people around who truly understand it, so you’re definitely not alone in feeling this way. Ongoing fatigue, joint pain, and headaches are unfortunately common in people with celiac disease, even years after diagnosis, and they aren’t always caused by gluten ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,180
    • Most Online (within 30 mins)
      7,748
    Eldret419
    Newest Member
    Eldret419
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • RMJ
      Do Gluten Enzymes actually work?

      By RMJ · Posted

      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.  
    • FannyRD
      Gluten free phosphate binders for dialysis patients

      By FannyRD · Posted

      Thanks for the resource! I will check it out!
    • Scott Adams
      Gluten free phosphate binders for dialysis patients

      By Scott Adams · Posted

      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Symptoms

      By Scott Adams · Posted

      Living with celiac disease can be especially hard when you’re in a smaller town and don’t have many people around who truly understand it, so you’re definitely not alone in feeling this way. Ongoing fatigue, joint pain, and headaches are unfortunately common in people with celiac disease, even years after diagnosis, and they aren’t always caused by gluten exposure alone. Many people find that issues like low iron, low vitamin D, thyroid problems, other autoimmune conditions, or lingering inflammation can contribute to that deep exhaustion, so it’s reasonable to push your doctor for more thorough blood work beyond just vitamin B. As for eggs, it’s also not unusual for people with celiac disease to develop additional food intolerances over time; tolerating eggs as an ingredient but not on their own can point to sensitivity to the proteins when they’re concentrated. Some people do better avoiding eggs for a while, then carefully testing them again later. Most importantly, trust your body—if something consistently makes you feel awful, it’s okay to avoid it even if it’s technically “allowed.” Many of us have had to advocate hard for ourselves medically, and connecting with other people with celiac disease, even online, can make a huge difference in feeling supported and less isolated.
    • trents
      Symptoms

      By trents · Posted

      Welcome to the celiac.com community, @Cecile! It is common for those with celiac disease to develop sensitivity/intolerance to non-gluten containing foods. There is a high incidence of this with particularly with regard to dairy products and oats but soy, eggs and corn are also fairy common offenders. Like you eggs give me problems depending on how they are cooked. I don't do well with them when fried or scrambled but they don't give me an issue when included in baked and cooked food dishes or when poached. I have done some research on this strange phenomenon and it seems that when eggs are cooked with water, there is a hydrolysis process that occurs which alters the egg protein such that it does not trigger the sensitivity/intolerance reaction. Same thing happens when eggs are included in baked goods or other cooked dishes since those recipes provide moisture.  So, let me encourage you to try poaching your eggs when you have them for breakfast. You can buy inexpensive egg poacher devices that make this easy in the microwave. For instance:  https://www.amazon.com/Poacher-Microwave-Nonstick-Specialty-Cookware/dp/B0D72VLFJR/ Crack the eggs into the cups of the poacher and then "spritz" some water on top of them after getting your fingers wet under the faucet. About 1/4 teaspoon on each side seems to work. Sprinkle some salt and pepper on top and then snap the poacher shut. I find that with a 1000 watt microwave, cooking for about 2 minutes or slightly more is about right. I give them about 130 seconds. Fatigue and joint pain are well-established health problems related to celiac disease.  Are you diligent to eat gluten-free? Have you been checked recently for vitamin and mineral deficiencies? Especially iron stores, B12 and D3. Have you had your thyroid enzyme levels checked? Are you taking any vitamin and mineral supplements? If not, you probably should be. Celiac disease is also a nutrient deficiency disease because it reduces the efficiency of nutrient absorption by the small bowel. We routinely recommend celiacs to supplement with a high potency B-complex vitamin, D3, Magnesium glycinate (the "glycinate" is important) and Zinc. Make sure all supplements are gluten-free. Finally, don't rule out other medical problems that may or may be associated with your celiac disease. We celiacs often focus on our celaic disease and assume it is the reason for all other ailments and it may not be. What about chronic fatigue syndrome for instance?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.