Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Stomach Pain


heather252

Recommended Posts

heather252 Newbie

Hi all-

  I am new on here and came across this site while on my google search for extreme stomach pain.  I guess it all started a few years ago with non specific complaints about random things.  After getting blown off from several Dr's I became incredibly frustrated.

  Fast forward to the beginning of January 2016 and I started having extreme bloating on a daily basis in my abdomen along with discomfort, pain and lower back pain.  I have also started having bleeding of my gums, dandruff more recent, but for years have had irritability, headaches, anxiety and hormone issues.  On a daily basis I am in a lot of pain.  It is hard for me to eat anything now because I feel so sick after I eat.  My stomach hurts from being hungry too.  I finally saw a new Dr. and he thought it could celiac.  I had the blood test a week ago and still have not gotten the results.

 I just want to cry and it is effecting my ability to work and be a mom.  Most nights I am laying on the couch from the pain of the extreme bloating.  This is my question....my stomach is really bloated (cannot fit into my clothes), hard, burning in my stomach, and sharp pains in my lower stomach (just above my pubic bone) and it feels like my stomach will rip open at any moment.  Has anyone else felt this?

 

Desperate-

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



heather252 Newbie

I also forgot to mention that I also have constipation or diarrhea on a daily basis.  

SLLRunner Enthusiast

Hi Heather, 

I am having an endoscope on Friday, so I've not yet been diagnosed. But, yes, I have had many similar symptoms on and off for years, all of which worsened in the fall with a stressful medical situation with my guy.

I suggest you check back with your doctor as soon a possible to obtain your results. 

cyclinglady Grand Master

Welcome to the forum!  Many of us can relate to your symptoms.  But, the celiac blood panel, an endoscopy taking four to six biopsies can help diagnose celiac disease.  This is a good time to research celiac disease and the University of Chicago Celiac website is a great place to start.  They are one of the leading researchers in the U.S. and have a pretty good website.  

Open Original Shared Link

The important thing is to keep eating gluten until ALL testing is done even if you suspect celiac disease.  Let us know how it goes.  If positive, your first-degree relatives will need to be tested even if they are symptom free.  Many doctors often just order a TTG IgA and the IgA deficiency test as an initial screening (cheapest and most effective), but if my doctor had not ordered the entire panel, my diagnosis would have been missed.  So, if your TTG is negative, you should ask for the rest of the panel before ruling out celiac disease.  

Hang in there!  I know that you feel bad and  the responsibility of small children is difficult when you feel so bad.    Can you get someone to help you out?  Prepare a few meals for you?  I used to belong to a MOMS club and we always pitched in when a new baby arrived or when the family was ill.

Hugs!  Ask away, we are here to help each other!  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to FannyRD's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

    2. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

    3. - trents replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

    4. - FannyRD posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,180
    • Most Online (within 30 mins)
      7,748

    Eldret419
    Newest Member
    Eldret419
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • FannyRD
      Thanks for the resource! I will check it out!
    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Living with celiac disease can be especially hard when you’re in a smaller town and don’t have many people around who truly understand it, so you’re definitely not alone in feeling this way. Ongoing fatigue, joint pain, and headaches are unfortunately common in people with celiac disease, even years after diagnosis, and they aren’t always caused by gluten exposure alone. Many people find that issues like low iron, low vitamin D, thyroid problems, other autoimmune conditions, or lingering inflammation can contribute to that deep exhaustion, so it’s reasonable to push your doctor for more thorough blood work beyond just vitamin B. As for eggs, it’s also not unusual for people with celiac disease to develop additional food intolerances over time; tolerating eggs as an ingredient but not on their own can point to sensitivity to the proteins when they’re concentrated. Some people do better avoiding eggs for a while, then carefully testing them again later. Most importantly, trust your body—if something consistently makes you feel awful, it’s okay to avoid it even if it’s technically “allowed.” Many of us have had to advocate hard for ourselves medically, and connecting with other people with celiac disease, even online, can make a huge difference in feeling supported and less isolated.
    • trents
      Welcome to the celiac.com community, @Cecile! It is common for those with celiac disease to develop sensitivity/intolerance to non-gluten containing foods. There is a high incidence of this with particularly with regard to dairy products and oats but soy, eggs and corn are also fairy common offenders. Like you eggs give me problems depending on how they are cooked. I don't do well with them when fried or scrambled but they don't give me an issue when included in baked and cooked food dishes or when poached. I have done some research on this strange phenomenon and it seems that when eggs are cooked with water, there is a hydrolysis process that occurs which alters the egg protein such that it does not trigger the sensitivity/intolerance reaction. Same thing happens when eggs are included in baked goods or other cooked dishes since those recipes provide moisture.  So, let me encourage you to try poaching your eggs when you have them for breakfast. You can buy inexpensive egg poacher devices that make this easy in the microwave. For instance:  https://www.amazon.com/Poacher-Microwave-Nonstick-Specialty-Cookware/dp/B0D72VLFJR/ Crack the eggs into the cups of the poacher and then "spritz" some water on top of them after getting your fingers wet under the faucet. About 1/4 teaspoon on each side seems to work. Sprinkle some salt and pepper on top and then snap the poacher shut. I find that with a 1000 watt microwave, cooking for about 2 minutes or slightly more is about right. I give them about 130 seconds. Fatigue and joint pain are well-established health problems related to celiac disease.  Are you diligent to eat gluten-free? Have you been checked recently for vitamin and mineral deficiencies? Especially iron stores, B12 and D3. Have you had your thyroid enzyme levels checked? Are you taking any vitamin and mineral supplements? If not, you probably should be. Celiac disease is also a nutrient deficiency disease because it reduces the efficiency of nutrient absorption by the small bowel. We routinely recommend celiacs to supplement with a high potency B-complex vitamin, D3, Magnesium glycinate (the "glycinate" is important) and Zinc. Make sure all supplements are gluten-free. Finally, don't rule out other medical problems that may or may be associated with your celiac disease. We celiacs often focus on our celaic disease and assume it is the reason for all other ailments and it may not be. What about chronic fatigue syndrome for instance?
    • FannyRD
      I work as a renal RD and have a Celiac pt which has been rare for me (I might have had 3-4 Celiac pts in 15 years). I wondered if anyone can confirm that these medications are gluten free and safe for Celiac.  Ferric citrate (Auryxia)  Sucroferric oxyhydroxide (Velphoro)  lanthanum carbonate (Fosrenol) sevelamer carbonate (Renvela)   Thank you!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.