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Scoliosis


swittenauer

How many of you diagnosed with celiac also have scoliosis?  

31 members have voted

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swittenauer Enthusiast

My husband has scoliosis too we just found out & I was just curious if more people on here have it also. Some research shows there is a link so I'm wondering how common it really is.


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Guest Viola

Judging from one thread that was going around earlier, it's pretty common among Celiacs.

Thanks for putting this on, it's going to be interesting.

skbird Contributor

I interpreted "having Celiac" as also including autoimmune gluten intolerance. I am non-Celiac gluten intolerant. But for this survey it seems that is close enough.

I just found out I have mild scoliosis earlier this year.

Stephanie

swittenauer Enthusiast

Well, it looks as though my theory could be wrong about the connection. It's hard to tell with such a small sample group. If anyone knows of a connection between the two I would be curious to access any such information.

Rachel--24 Collaborator

Pardon my ignorance but what is Scoliosis? :ph34r:

Is it another autoimmune disease or a skin condition? :unsure:

Guest Viola

It's a skelton issure, the spine is curved and in severe cases can cause damage to internal organs. That is fairly rare though, most of us have mild Scoliosis. In my case it just causes nagging back aches at times, and you want to make sure your physio Therapist or anyone that works on the spine knows about it. I had one try and put it back in place, which caused major hip problems until we got it back to where it was.

  • 3 years later...
BasqueMom Newbie

I am a 66 year old celiac and have scoliosis. I am seeing by the posts that others with celiac also have scoliosis. I have always believed that my scoliosis could be attributed to my celiac disease, and I must not be the only one who believes it. Interesting! No Dr. has ever confirmed the connection but I believe it.


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mushroom Proficient

I have no idea if there is any connection. I am self-diagnosed gluten intolerant 16 mos ago, and at about the same time I discovered that late in life I have developed scoliosis. Interesting. Can't imagine the connection except perhaps for my low Vitamin D.

tarnalberry Community Regular

I don't have scoliosis, but see it a lot when I teach yoga. A good number of cases (I don't know the exact percentage) are functional - that is, they come from habitual posture. You can use PT/chiropractic/yoga therapy to help actually correct it.

Lexi Enthusiast

It was interesting to read this post. I have scoliosis, but never knew if it was related to my Celiac Disease. I have pain in my back everyday because of it. I did physical therapy for several months, and it helped a lot. I am supposed to keep up with it at home, but am not very good about it.

teemaree Apprentice

This is so strange that many have it....I have had it all my life...

I also have a thing called spina bifida oculta, where one of the bottom vertibra didn't form properly

it doesn't effect me in anyway...but it never ceases to amaze me how so many ailments celiacs share..

trents Grand Master

I have scoliosis and kyphosis. Kyphosis runs in my mother's family and I have an uncle on my father's side who was dx with celiac about two years ago.

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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