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What do you guys think about these symptoms?

Zachm

By Zachm
in Coping with Celiac Disease

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Zachm Contributor
Zachm
Posted

I went gluten free back in late July, 2015. Before that I had had problems of using the bathroom constantly, like got no sleep because it would keep me up on quite a few nights. After the diagnosis I did make a few mistakes with CC, eating stuff that actually did have it, and touching things that did, so I would say since September, I have been EXTREMELY knowledgeable on what I am even touching and cook my own food. So, the weird thing is with me, I get these HORRRRRRIBBBLLLEEE cramping diarrhea episodes and they didn't start until after I went gluten free (weird, I know). I will admit, I am very picky and 99% of what I have eaten is this right here:

-Perdue gluten free chicken strips

-Scharr Multi grain gluten free bread (tastes a whole lot better than Udi's, in my opinion)

-Foster Farms gluten free corndogs

-Can't think of the brand at the moment, but gluten free meatballs

-When it comes to snacks, Lays Stacks, gluten free muffins, Utz chips, and a couple other things

-Gluten free pizza I make myself from ingredients I know are gluten free

Like I said though, I am extremely picky and whenever I eat, that is 9 out of 10 times what I am eating. Obviously, I am lacking certain things through my natural diet, especially after this new diet, so I try to take vitamins every day. On the other hand, the only diagnosis I have of Celiac disease is the bloodwork (although my doctor is almost certain the bloodwork is correct) and I have been postponing the endo and colonoscopy due to college and other stuff. I definitely am becoming a hermit though and dont enjoy it so sooner or later I will have to get this done. Also, I have been checked from gallbladder and appendix and those were fine. I kind of wonder about potassium being low causing the severe cramps? And it is VERY urgent diarrhea. Like if I am summoned by my intestines at 3am, there is no just closing my eyes and waiting til the morning lol.   

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cyclinglady Grand Master
cyclinglady
Posted

That is a lot of processed food!  You could have an intolerance to any of the gluten-free ingrediants.  For example, I could not tolerate Xanthan Gum for a long time (I still avoid it).  Can you add fruit and veggies?  

SLLRunner Enthusiast
SLLRunner
Posted

Zach, I agree with Cyclinglady about other food intolerance, especially with processed food. There are many types of food intolerance, so I suggest adding in less processed and more whole foods until you figure out what your intolerance is.

GFinDC Veteran
GFinDC
Posted

The Foster Farms gluten-free corn dogs don't agree with me, probably because of the soy flour in them.  You should try and eat more whole foods and forget the processed gluten-free things for a while.  Also are you sure the pizza dough you are using is gluten-free?  And the sauce etc?  Even some flours that you would think are naturally gluten-free like corn meal have been found to have gluten contamination.  General Mills had to pull their gluten-free Cheerios cereal recently because it wasn't really gluten-free.  So you can't always trust gluten-free labeling.  Seems a shame but there it is.

Why not try some simple home cooked foods.  Veggies and some kind of hamburger is easy to make.  Rice is not hard to make and you can mix it with veggies and meat also.  Carrying some fruit and nuts around in a small bag is good for snacks.  It's a learning process going gluten-free.  After a while you will get used to eating differently and better than before.

Sue7171 Rookie
Sue7171
Posted
19 hours ago, cyclinglady said:

That is a lot of processed food!  You could have an intolerance to any of the gluten-free ingrediants.  For example, I could not tolerate Xanthan Gum for a long time (I still avoid it).  Can you add fruit and veggies?  

 

19 hours ago, cyclinglady said:

That is a lot of processed food!  You could have an intolerance to any of the gluten-free ingrediants.  For example, I could not tolerate Xanthan Gum for a long time (I still avoid it).  Can you add fruit and veggies?  

 

23 hours ago, Zachm said:

I went gluten free back in late July, 2015. Before that I had had problems of using the bathroom constantly, like got no sleep because it would keep me up on quite a few nights. After the diagnosis I did make a few mistakes with CC, eating stuff that actually did have it, and touching things that did, so I would say since September, I have been EXTREMELY knowledgeable on what I am even touching and cook my own food. So, the weird thing is with me, I get these HORRRRRRIBBBLLLEEE cramping diarrhea episodes and they didn't start until after I went gluten free (weird, I know). I will admit, I am very picky and 99% of what I have eaten is this right here:

-Perdue gluten free chicken strips

-Scharr Multi grain gluten free bread (tastes a whole lot better than Udi's, in my opinion)

-Foster Farms gluten free corndogs

-Can't think of the brand at the moment, but gluten free meatballs

-When it comes to snacks, Lays Stacks, gluten free muffins, Utz chips, and a couple other things

-Gluten free pizza I make myself from ingredients I know are gluten free

Like I said though, I am extremely picky and whenever I eat, that is 9 out of 10 times what I am eating. Obviously, I am lacking certain things through my natural diet, especially after this new diet, so I try to take vitamins every day. On the other hand, the only diagnosis I have of Celiac disease is the bloodwork (although my doctor is almost certain the bloodwork is correct) and I have been postponing the endo and colonoscopy due to college and other stuff. I definitely am becoming a hermit though and dont enjoy it so sooner or later I will have to get this done. Also, I have been checked from gallbladder and appendix and those were fine. I kind of wonder about potassium being low causing the severe cramps? And it is VERY urgent diarrhea. Like if I am summoned by my intestines at 3am, there is no just closing my eyes and waiting til the morning lol.   

That sounds to me like alot of processed stuff and oil. I agree with the other posters about xanathan gum and soy. I had to be gluten free for quite some time because all theyears of eating gluten had given me leaky gut. Try to est more whole foods....fruit vegetables non processed meat yogurt. You might have a candida (yeast infection ) in your gut which could cause diahreah. Also if you are using any plastic cooking utensils or Teflon or other non stick coating coated cook ware that you have used with gluten from before you switched. ..give it away or throw it out now. Gluten sticks to plastic and non stick surfaces. Same with a toaster if you are using one that you might have used with gluten bread. Get a new one if this is the case. Just be patient and try to eat as healthy as possible.  An endoscopy would tell you if you still have leaky gut or not. The procedures are not bad at all ive had both. 

cro Newbie
cro
Posted

hi , i have found that home cooking with basic ingredients is the only way ,boring but necessary,to  avoid any upset ,good job i only eat to survive and not a real foody although jacket potatoes are giving me nightmares 

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