Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New super sensitive?

Alys

By Alys
in Super Sensitive People

Recommended Posts

Alys Rookie
Alys
Posted

Hi!  Just hope this is the right place for me to be.  I have done all the testing and scopes.  Went gluten free, still raised counts, the gluten free house, when that didn't work my GI put me on Fasano diet and low fodmap.  Finally my counts are below the threshold, borderline but still below!  It is hard to believe that my 7ppm flour was a culprit.

my spouse even went fully gluten free at work and throws his clothes in the wash as soon as he comes in since not doing that has led to issues.  My cousin just was hospitalized for refractory sprue complications.  Luckily so far I can keep my counts down so it looks like RS isn't in my future.

So howdy!  Hope this is the right spot, can't wait to learn more.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome to the forum!

Lucky you to have a celiac-savvy GI!  Looks like your modified gluten-free diet helped you!  Did you read this study?  Bet your GI did!  

Open Original Shared Link

Many members have reported results like yours after going on this diet.  They were struggling to get their (or their kid's) antibody levels down even though they were gluten-free diet compliant.  Makes you think, huh?  

I personally have done better eliminating all grains.  I found this out after my diabetes diagnosis a year after my celiac disease diagnosis.  A Low Carb High Fat diet (or eat to my meter) really improved my health and blood sugar.  Grains, no matter what the type, impacted my blood sugar.   I also avoid most processed gluten-free foods and do not eat out (rarely).  Many of my food intolerances have resolved too.  Not all, (I keep testing) but I am happy with my progress.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,994
    • Most Online (within 30 mins)
      7,748
    Gma4anna
    Newest Member
    Gma4anna
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Wends · Posted

      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
    • AnnaNZ
      Gluten Sensitivity

      By AnnaNZ · Posted

      Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
    • trents
      Gluten Sensitivity

      By trents · Posted

      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
×
×
  • Create New...