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Nasty Rash

Rusla

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Rusla Enthusiast
Rusla
Posted

Has anyone ever had a nasty itchy burning rash on their calves or one calf. This is a new happening. I am on my one week of gluten, which I never want to repeat again. This is so the dermatologist can get a good look a these things and do a skin biopsy. This is the first time I have had a reaction on my calves, but it is only one calf. So, I was wondering if anyone else has gotten this on a glutening.

When this week is finished I will not have gluten again. I have never felt so awful in my life. There isn't one part of my body that doesn't itch, my head aches and everytime I have had gluten I feel a half hour or such later so very sick.

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RiceGuy Collaborator
RiceGuy
Posted

Yes, that's a common symptom. It really doesn't matter where it shows up though. Everyone is different in that way. Once you go gluten-free, any glutening you get can manifest more pronounced symptoms than before. I think it's because the body now has a lower "point of reference", so the gluten can make a larger impact. Like putting one cup of water into a pool full of water - you'd never see it. But, put a cup of water in a cereal bowl, and it makes a big difference.

darkangel Rookie
darkangel
Posted

I have an itchy rash that flares up on my left foot. I use an OTC cortisone cream for relief. I also get itchiness and rash on my eyelids at times.

laurelfla Enthusiast
laurelfla
Posted

ok, so this is probably way unrelated, but... i have a lot of bumps on my calves. it started back in march, maybe -- the first bump itched but stopped, then several others appeared (not itchy) and it has now spread to my other calf. it doesn't look rashy other than that it has spread.. the dermatologist did not know what it was, so she did a biopsy last week. i'm still waiting to hear back. two possibilities she mentioned were flat warts (ew!) and psoriasis (also ew), but she said they don't really look like either one. the bumps are maybe about 3 mm across and pinkish-red. nothing itches, and i'm so confused. perhaps it's not related to Celiac at all, especially since i've been gluten-free since july. any ideas?

traveljunkie Rookie
traveljunkie
Posted

I get a itchy rash mainly on my calves, behind my knees, torso and chest when I accidently ingest gluten. It gets really nasty. It's like my body is trying to expel the gluten out through my skin. lol Hang in there...you'll get through it!!

Rusla Enthusiast
Rusla
Posted
  • Author

Right now I feel like one big itch machine. I thought perhaps it might have needed to be on both calves but then that is fine. Sometimes I itch without a rash. My face, back and chest always get it the worst, right now I look like an adolescent with zit face but it is not pimples. I never started having any of this till 6 years ago when I had the anemia, then a strike at work, then thyroid etc. I can't wait till this week is done.

giraffelover Newbie
giraffelover
Posted

Has anyone ever had a nasty itchy burning rash on their calves or one calf. This is a new happening. I am on my one week of gluten, which I never want to repeat again.

Have you read the DH posts on this site? There are some links to photos of other peoples rashes.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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