Pre-Celiac? help w results

[tribny]

I would really appreciate opinions from all of you who are familiar with these tests. 

My full results are below.  Just a quick summary. I had bad GERD so the GI doc did an endoscopy.  He saw small intestinal damage that looked like Celiac.  Biopsy results were "could be Celiac or lots of other things."  Then got blood tests that came back "susceptible" and "high" antibodies but not positive.  Dr told me to go gluten free so I don't develop Celiac.  I went gluten free for 3 months.  Didn't feel any different, I never had intestinal symptoms before anyway.  Dr said my GERD issues were unrelated to Celiac.  I got GERD  surgery and I am finally off PPIs.  I took an intolerance test that didn't list gluten.  So I have gluten occasionally now, still don't feel any symptoms.

Don't know why I had the villi damage.  Should I stay gluten free, get more allergy blood tests or did the PPIs cause this?  Here are my results.  Any opinions???  THANK YOU FOR YOUR INPUT

HLA DQ2 Present ABSENT Abnormal Final
HLA DQ8 Absent ABSENT Normal Final
METHODOLOGY: PCR followed by hybridization with membrane-bound DNA probes
and detection by streptavidin-peroxidase conjugate (strip test).

---------------------------------------------

TRANSGLUTAMINASE,IGA,AB 8.6 <7.0 ELiAU/mL High Final
RANGES FOR TRANSGLUTAMINASE AND GLIADIN DEAMIDATED PEPTIDE ANTIBODIES
IgA/IgG (EliA U/mL) INTERPRETATION
<7.0 Negative
7.0-10.0 Equivocal
>10.0 Positive
ASSAY INFORMATION: Method Fluoroenzymeimmunoassay (Phadia250).
New ranges effective 6/6/14

--------------------------

A. DUODENUM, SECOND PART, BIOPSY:
• DUODENAL MUCOSA WITH MILD PROMINENCE IN INTRAEPITHELIAL LYMPHOCYTES WITH
PRESERVED VILLOUS ARCHITECTURE. Mild prominence in intraepithelial lymphocytosis may be non-specific, and can be seen in partially treated or clinically latent celiac sprue, dermatitis herpetiformis, infectious gastroenteritis, stasis, tropical
sprue, lymphocytic enterocolitis, and other protein allergies, in patients with other autoimmune disorders,
idiopathic inflammatory bowel disease, and may be linked to use of non-steroidal anti-inflammatory drugs
and Helicobacter pylori infection. Clinical and endoscopic correlation is needed. A special stain (Alcian
Blue/PAS) to identify Whipple's disease is negative, and no parasites are seen.

B. DUODENUM, BULB, BIOPSY:
• MINUTE SUPERFICIAL FRAGMENTS OF DUODENAL MUCOSA WITH MILD INCREASE IN
INTRAEPITHELIAL L YMPHOCVTES.• PLEASE SEE THE NOTE UNDER PART A.

C. STOMACH, ANTRUM, BIOPSY: ·GASTRIC ANTRAL MUCOSA WITH MILD REACTIVE GASTROPATHY.
Note: A special stain (Alcian Blue/PAS) shows no evidence of intestinal metaplasia. A separate special
stain (Giemsa) shows no evidence of Helicobacter pylori organisms.

D. STOMACH, BODY, BIOPSY:  • GASTRIC OXYNTIC MUCOSA WITH FOVEOLAR HYPERPLASIA AND INCREASED CHRONIC
INFLAMMATION.  Note: A special stain (Alcian Blue/PAS) shows no evidence of intestinal metaplasia. A separate special
stain (Giemsa) shows no evidence of Helicobacter pylori organisms.

E. STOMACH, FUNDUS, BIOPSY:
- GASTRIC OXYNTIC MUCOSA WITH CHANGES SUGGESTIVE OF PROTON PUMP INHIBITOR (PPI)
THERAPY EFFECT.  Note: A special stain (Alcian Blue/PAS) shows no evidence of intestinal metaplasia. A separate special
stain (Giemsa) shows no evidence of Helicobacter pylori organisms.

F. ESOPHAGUS, 35 CM, BIOPSY:  - FRAGMENTS OF SQUAMOUS MUCOSA WITH MILD REACTIVE EPITHELIAL CHANGE.
Note: No fungi are seen on PAS/AB stain. No columnar-type mucosa is present. There is no evidence of
eosinophilic esophagitis.

G. ESOPHAGUS, 25 CM, BIOPSY:  - FRAGMENTS OF SQUAMOUS MUCOSA WITHIN NORMAL LIMITS.
Note: No fungi are seen on PAS/AB stain. No columnar-type mucosa is present. There is no evidence of
eosinophilic esophagitis.

[cyclinglady]

I am sorry that you are in "Limbo Land!"  

Hard to say, from my own personal experience, I only test postive to the DGP.   What were your DGP results?  Negative?  Are you IGA deficient?  Any other AI disorders?   Besides the GERD, any other symptoms not GI related like anemia?  

I suppose you could continue to consume gluten until you develop symptoms (and do not live in fear!)  It is a shame that you have to be really damaged to get a diagnosis, but you should celebrate the fact that your GERD has resolved!   I wish you well!