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I Have Been Diagnosed, But Show No Symptoms

elle

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elle Newbie
elle
Posted

Hi, I was diagnosed w/celiac in april 2004. I had the blood tests, upper and lower gi, to prove I had the disease. About 5 months ago I was laid off from my job and unable to keep my insurance, so I haven't been able to see my doctors or dietican. When I was first diagnosed, anytime I consumed gluten I had severe stomach problems, severly exhausted amoung other things. Recently, I do know how bad this may sound, because of money issues I consumed several things that contained gluten and I have not had any discomfort or any signs like before. I know not all people have problems who have this disease, so it made my boyfriend and me think maybe I was misdiagnosed. I don't think I am, but it would be great to hear other peoples opinions on this matter.

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Rachel--24 Collaborator
Rachel--24
Posted

If you had a positive biopsy and positive bloodwork...there is no mistake about it...you have Celiac. Just because you arent experiencing symptoms doesnt mean the damage isnt occurring. You will still be causing damage everytime you eat gluten regardless of symptoms...or lack of.

KaitiUSA Enthusiast
KaitiUSA
Posted

Some people just never get symptoms with it. There are no degrees of celiac though...you have it or you don't and everyone who has it has to follow the diet the same..100%.

Even if you do not have symptoms you are still damaging your intestines.

elle Newbie
elle
Posted
  • Author

Thank you guys, very much for your answers.

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      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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