Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Here...

busybee2jk

By busybee2jk
in Coping with Celiac Disease

Recommended Posts

busybee2jk Newbie
busybee2jk
Posted

Hello All,

I was have been gluten free for almost a year now and love it. I feel so greatfull for finding out what was wrong with me. I have many health problems and always have but now I am feeling better and I will not go to a regular Dr. again. I found a really good friend (now) that did nature path and I was really interested after spending so many years going to Dr.s for them to tell me stupid things like I have an inlarged prostate (I am FEMALE!!!!) That is no joke some idiot read my cat scan wrong and told me I had a prostate anyway I am only 33 and have two kids that missed their mother. With my friends help I am getting healthy and would love to share things with you as we all go thru this together. I do enjoy the new found foods and well hate some of them I have been doing this long enough I know what I can and can't eat somedays that is sad and somedays I am so happy to be able to eat I could cry. You see when I was sick I couldn't eat anything and it made me sick. Now I can eat dairy again (not much but I can have my cheese once a week) and I have had a chance to try new exciting foods that I have never even heard of. I hope to get to know you all better thru this fun trip we all are on. I know there are bumps and what seem like giant hills in some of your paths but I tell you when you feel better you won't even miss it anymore for the most part anyway (I would love a big SubWay sandwich but I remember the pain it caused me so I don't want it very often) Have a wonderful day!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


traveljunkie Rookie
traveljunkie
Posted

Hi busybee,

Welcome to the site and I'm new to the forum as well. I can understand your frusteration with doctors. I think we've all been there with doctors you just want to scream at. Glad you have found your way to health. I miss eating Subway but remember all the digestive and itchy skin problems...couldn't pay me to eat one now. Not being able to keep anything from running right through me after being glutoned...it was horrible. But like you I'm beginning to heal and so glad I've found this forum to vent, share stories and laugh!!

tiffjake Enthusiast
tiffjake
Posted
Hello All,

I was have been gluten free for almost a year now and love it. I feel so greatfull for finding out what was wrong with me. I have many health problems and always have but now I am feeling better and I will not go to a regular Dr. again. I found a really good friend (now) that did nature path and I was really interested after spending so many years going to Dr.s for them to tell me stupid things like I have an inlarged prostate (I am FEMALE!!!!) That is no joke some idiot read my cat scan wrong and told me I had a prostate anyway I am only 33 and have two kids that missed their mother. With my friends help I am getting healthy and would love to share things with you as we all go thru this together. I do enjoy the new found foods and well hate some of them I have been doing this long enough I know what I can and can't eat somedays that is sad and somedays I am so happy to be able to eat I could cry. You see when I was sick I couldn't eat anything and it made me sick. Now I can eat dairy again (not much but I can have my cheese once a week) and I have had a chance to try new exciting foods that I have never even heard of. I hope to get to know you all better thru this fun trip we all are on. I know there are bumps and what seem like giant hills in some of your paths but I tell you when you feel better you won't even miss it anymore for the most part anyway (I would love a big SubWay sandwich but I remember the pain it caused me so I don't want it very often) Have a wonderful day!!!

Hello! I am new to! I have been gluten-free for 3 weeks. I can tell a huge difference. I am amazed! I have had some really stupid doctors too, but mostly people who just wanted to give me another Rx and send me on my way. I am so impressed that you have been gluten-free for a year! I am worried that I won't make it that long with out cheating, but I just try to think about how bad I feel when I do eat stuff with gluten in it. I didn't think that the Malt Flavoring in Rice Krispies Treats was enough to make me sick but I was wrong!!!! So I am using that as a reminder! Congrats again, and welcome!

nettiebeads Apprentice
nettiebeads
Posted
Hello! I am new to! I have been gluten-free for 3 weeks. I can tell a huge difference. I am amazed! I have had some really stupid doctors too, but mostly people who just wanted to give me another Rx and send me on my way. I am so impressed that you have been gluten-free for a year! I am worried that I won't make it that long with out cheating, but I just try to think about how bad I feel when I do eat stuff with gluten in it. I didn't think that the Malt Flavoring in Rice Krispies Treats was enough to make me sick but I was wrong!!!! So I am using that as a reminder! Congrats again, and welcome!

Hi to all three of you! and a big welcome. I've done this for 9 yrs and yes, negative association does work when it comes to gluten containing foods- I see things (like Aunt Esthers apple dumplings at TDay yesterday) but gluten = pain, D, depression to the max, unexplained uncontrollable anger, and overwhelming fatigue. Thanks, I'll do w/o. But I didn't do the gluten-free diet right until I came to this forum 3 months ago. I kept eating cereal with malt flavoring and drinking malt based beverages (you know - Smirnoffs and Bicardi coolers) until I realized what I was doing to my body and cut those items out too. Well, much more energy and a whole lot less brain fog for starters. I didn't realize that I was developing neropathy in my legs and face until I read some of the posts. Some mornings I'd get up and feel like I was walking on stumps. Since cleaning up my diet, has lessened quite a bit; don't know if that part of the damage will ever completely heal, but boy what an incentive to be 100%, totally and fanatically gluten-free!!!

Here's to everyone living a healthier life!

Annette

kevsmom Contributor
kevsmom
Posted
Hello All,

I was have been gluten free for almost a year now and love it. I feel so greatfull for finding out what was wrong with me. I have many health problems and always have but now I am feeling better and I will not go to a regular Dr. again. I found a really good friend (now) that did nature path and I was really interested after spending so many years going to Dr.s for them to tell me stupid things like I have an inlarged prostate (I am FEMALE!!!!) That is no joke some idiot read my cat scan wrong and told me I had a prostate anyway I am only 33 and have two kids that missed their mother. With my friends help I am getting healthy and would love to share things with you as we all go thru this together. I do enjoy the new found foods and well hate some of them I have been doing this long enough I know what I can and can't eat somedays that is sad and somedays I am so happy to be able to eat I could cry. You see when I was sick I couldn't eat anything and it made me sick. Now I can eat dairy again (not much but I can have my cheese once a week) and I have had a chance to try new exciting foods that I have never even heard of. I hope to get to know you all better thru this fun trip we all are on. I know there are bumps and what seem like giant hills in some of your paths but I tell you when you feel better you won't even miss it anymore for the most part anyway (I would love a big SubWay sandwich but I remember the pain it caused me so I don't want it very often) Have a wonderful day!!!

kevsmom Contributor
kevsmom
Posted

Hi BusyBee,

I'm fairly new too. I was diagnosed in April, and through this forum I find myself learning new things every day. Everyone is so helpful! If you have specific questions, they usually know the answers or are happy to get them for you.

I have suffered from different bouts of diarrhea in past years, that have lasted for about 3 months each. I had 2 colonoscopys that were negative. The symptoms dissapeared each time, so no one was worried.

My brother has had Celiac for years and my father had an iliostomy due to ulcerative colitis many decades ago (I don't think they tested for Celiac then). Finally, A light came on in the Gastroenterologists head (Duh????) - (so I do know how you feel about doctors) he tested me for Celiac. I guess I should have asked for the the test (but in the back of my mind, I really didn't want to know).

I have been putting off having my son tested - also because I'm afraid to know, but with the odorous gas that he gives off, it scares me. I do have him scheduled for a doctor's appointment next month. If It is positive, it is going to be hard to teach a 17 year old who is about to graduate from high school (and thinks he knows everything) what he has to do and get him to stick to it.

Have you scheduled your prostate exam for this year? :P:P

It is nice to know that we are all in this together. I feel that I have gotten more help here than from my own "real" family. Welcome, and I look forward to hearing from you soon! :)

Cindy

beelzebubble Contributor
beelzebubble
Posted

welcome :)

i'm glad you found this site. i think you will find that your frustrations will be echoed here. you aren't alone. and that is a wonderful thing. i hope you continue to feel better.

bubble

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bknutson Apprentice
bknutson
Posted

Annette,

What is neuropathy in your legs?

Barb

judyk Newbie
judyk
Posted
Hi BusyBee,

I'm fairly new too. I was diagnosed in April, and through this forum I find myself learning new things every day. Everyone is so helpful! If you have specific questions, they usually know the answers or are happy to get them for you.

I have suffered from different bouts of diarrhea in past years, that have lasted for about 3 months each. I had 2 colonoscopys that were negative. The symptoms dissapeared each time, so no one was worried.

My brother has had Celiac for years and my father had an iliostomy due to ulcerative colitis many decades ago (I don't think they tested for Celiac then). Finally, A light came on in the Gastroenterologists head (Duh????) - (so I do know how you feel about doctors) he tested me for Celiac. I guess I should have asked for the the test (but in the back of my mind, I really didn't want to know).

I have been putting off having my son tested - also because I'm afraid to know, but with the odorous gas that he gives off, it scares me. I do have him scheduled for a doctor's appointment next month. If It is positive, it is going to be hard to teach a 17 year old who is about to graduate from high school (and thinks he knows everything) what he has to do and get him to stick to it.

Have you scheduled your prostate exam for this year? :P:P

It is nice to know that we are all in this together. I feel that I have gotten more help here than from my own "real" family. Welcome, and I look forward to hearing from you soon! :)

Cindy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748
    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.