Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Here...


busybee2jk

Recommended Posts

busybee2jk Newbie

Hello All,

I was have been gluten free for almost a year now and love it. I feel so greatfull for finding out what was wrong with me. I have many health problems and always have but now I am feeling better and I will not go to a regular Dr. again. I found a really good friend (now) that did nature path and I was really interested after spending so many years going to Dr.s for them to tell me stupid things like I have an inlarged prostate (I am FEMALE!!!!) That is no joke some idiot read my cat scan wrong and told me I had a prostate anyway I am only 33 and have two kids that missed their mother. With my friends help I am getting healthy and would love to share things with you as we all go thru this together. I do enjoy the new found foods and well hate some of them I have been doing this long enough I know what I can and can't eat somedays that is sad and somedays I am so happy to be able to eat I could cry. You see when I was sick I couldn't eat anything and it made me sick. Now I can eat dairy again (not much but I can have my cheese once a week) and I have had a chance to try new exciting foods that I have never even heard of. I hope to get to know you all better thru this fun trip we all are on. I know there are bumps and what seem like giant hills in some of your paths but I tell you when you feel better you won't even miss it anymore for the most part anyway (I would love a big SubWay sandwich but I remember the pain it caused me so I don't want it very often) Have a wonderful day!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



traveljunkie Rookie

Hi busybee,

Welcome to the site and I'm new to the forum as well. I can understand your frusteration with doctors. I think we've all been there with doctors you just want to scream at. Glad you have found your way to health. I miss eating Subway but remember all the digestive and itchy skin problems...couldn't pay me to eat one now. Not being able to keep anything from running right through me after being glutoned...it was horrible. But like you I'm beginning to heal and so glad I've found this forum to vent, share stories and laugh!!

tiffjake Enthusiast
Hello All,

I was have been gluten free for almost a year now and love it. I feel so greatfull for finding out what was wrong with me. I have many health problems and always have but now I am feeling better and I will not go to a regular Dr. again. I found a really good friend (now) that did nature path and I was really interested after spending so many years going to Dr.s for them to tell me stupid things like I have an inlarged prostate (I am FEMALE!!!!) That is no joke some idiot read my cat scan wrong and told me I had a prostate anyway I am only 33 and have two kids that missed their mother. With my friends help I am getting healthy and would love to share things with you as we all go thru this together. I do enjoy the new found foods and well hate some of them I have been doing this long enough I know what I can and can't eat somedays that is sad and somedays I am so happy to be able to eat I could cry. You see when I was sick I couldn't eat anything and it made me sick. Now I can eat dairy again (not much but I can have my cheese once a week) and I have had a chance to try new exciting foods that I have never even heard of. I hope to get to know you all better thru this fun trip we all are on. I know there are bumps and what seem like giant hills in some of your paths but I tell you when you feel better you won't even miss it anymore for the most part anyway (I would love a big SubWay sandwich but I remember the pain it caused me so I don't want it very often) Have a wonderful day!!!

Hello! I am new to! I have been gluten-free for 3 weeks. I can tell a huge difference. I am amazed! I have had some really stupid doctors too, but mostly people who just wanted to give me another Rx and send me on my way. I am so impressed that you have been gluten-free for a year! I am worried that I won't make it that long with out cheating, but I just try to think about how bad I feel when I do eat stuff with gluten in it. I didn't think that the Malt Flavoring in Rice Krispies Treats was enough to make me sick but I was wrong!!!! So I am using that as a reminder! Congrats again, and welcome!

nettiebeads Apprentice
Hello! I am new to! I have been gluten-free for 3 weeks. I can tell a huge difference. I am amazed! I have had some really stupid doctors too, but mostly people who just wanted to give me another Rx and send me on my way. I am so impressed that you have been gluten-free for a year! I am worried that I won't make it that long with out cheating, but I just try to think about how bad I feel when I do eat stuff with gluten in it. I didn't think that the Malt Flavoring in Rice Krispies Treats was enough to make me sick but I was wrong!!!! So I am using that as a reminder! Congrats again, and welcome!

Hi to all three of you! and a big welcome. I've done this for 9 yrs and yes, negative association does work when it comes to gluten containing foods- I see things (like Aunt Esthers apple dumplings at TDay yesterday) but gluten = pain, D, depression to the max, unexplained uncontrollable anger, and overwhelming fatigue. Thanks, I'll do w/o. But I didn't do the gluten-free diet right until I came to this forum 3 months ago. I kept eating cereal with malt flavoring and drinking malt based beverages (you know - Smirnoffs and Bicardi coolers) until I realized what I was doing to my body and cut those items out too. Well, much more energy and a whole lot less brain fog for starters. I didn't realize that I was developing neropathy in my legs and face until I read some of the posts. Some mornings I'd get up and feel like I was walking on stumps. Since cleaning up my diet, has lessened quite a bit; don't know if that part of the damage will ever completely heal, but boy what an incentive to be 100%, totally and fanatically gluten-free!!!

Here's to everyone living a healthier life!

Annette

kevsmom Contributor
Hello All,

I was have been gluten free for almost a year now and love it. I feel so greatfull for finding out what was wrong with me. I have many health problems and always have but now I am feeling better and I will not go to a regular Dr. again. I found a really good friend (now) that did nature path and I was really interested after spending so many years going to Dr.s for them to tell me stupid things like I have an inlarged prostate (I am FEMALE!!!!) That is no joke some idiot read my cat scan wrong and told me I had a prostate anyway I am only 33 and have two kids that missed their mother. With my friends help I am getting healthy and would love to share things with you as we all go thru this together. I do enjoy the new found foods and well hate some of them I have been doing this long enough I know what I can and can't eat somedays that is sad and somedays I am so happy to be able to eat I could cry. You see when I was sick I couldn't eat anything and it made me sick. Now I can eat dairy again (not much but I can have my cheese once a week) and I have had a chance to try new exciting foods that I have never even heard of. I hope to get to know you all better thru this fun trip we all are on. I know there are bumps and what seem like giant hills in some of your paths but I tell you when you feel better you won't even miss it anymore for the most part anyway (I would love a big SubWay sandwich but I remember the pain it caused me so I don't want it very often) Have a wonderful day!!!

kevsmom Contributor

Hi BusyBee,

I'm fairly new too. I was diagnosed in April, and through this forum I find myself learning new things every day. Everyone is so helpful! If you have specific questions, they usually know the answers or are happy to get them for you.

I have suffered from different bouts of diarrhea in past years, that have lasted for about 3 months each. I had 2 colonoscopys that were negative. The symptoms dissapeared each time, so no one was worried.

My brother has had Celiac for years and my father had an iliostomy due to ulcerative colitis many decades ago (I don't think they tested for Celiac then). Finally, A light came on in the Gastroenterologists head (Duh????) - (so I do know how you feel about doctors) he tested me for Celiac. I guess I should have asked for the the test (but in the back of my mind, I really didn't want to know).

I have been putting off having my son tested - also because I'm afraid to know, but with the odorous gas that he gives off, it scares me. I do have him scheduled for a doctor's appointment next month. If It is positive, it is going to be hard to teach a 17 year old who is about to graduate from high school (and thinks he knows everything) what he has to do and get him to stick to it.

Have you scheduled your prostate exam for this year? :P:P

It is nice to know that we are all in this together. I feel that I have gotten more help here than from my own "real" family. Welcome, and I look forward to hearing from you soon! :)

Cindy

beelzebubble Contributor

welcome :)

i'm glad you found this site. i think you will find that your frustrations will be echoed here. you aren't alone. and that is a wonderful thing. i hope you continue to feel better.

bubble


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bknutson Apprentice

Annette,

What is neuropathy in your legs?

Barb

judyk Newbie
Hi BusyBee,

I'm fairly new too. I was diagnosed in April, and through this forum I find myself learning new things every day. Everyone is so helpful! If you have specific questions, they usually know the answers or are happy to get them for you.

I have suffered from different bouts of diarrhea in past years, that have lasted for about 3 months each. I had 2 colonoscopys that were negative. The symptoms dissapeared each time, so no one was worried.

My brother has had Celiac for years and my father had an iliostomy due to ulcerative colitis many decades ago (I don't think they tested for Celiac then). Finally, A light came on in the Gastroenterologists head (Duh????) - (so I do know how you feel about doctors) he tested me for Celiac. I guess I should have asked for the the test (but in the back of my mind, I really didn't want to know).

I have been putting off having my son tested - also because I'm afraid to know, but with the odorous gas that he gives off, it scares me. I do have him scheduled for a doctor's appointment next month. If It is positive, it is going to be hard to teach a 17 year old who is about to graduate from high school (and thinks he knows everything) what he has to do and get him to stick to it.

Have you scheduled your prostate exam for this year? :P:P

It is nice to know that we are all in this together. I feel that I have gotten more help here than from my own "real" family. Welcome, and I look forward to hearing from you soon! :)

Cindy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,220
    • Most Online (within 30 mins)
      7,748

    Dye42
    Newest Member
    Dye42
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.