Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Here...


busybee2jk

Recommended Posts

busybee2jk Newbie

Hello All,

I was have been gluten free for almost a year now and love it. I feel so greatfull for finding out what was wrong with me. I have many health problems and always have but now I am feeling better and I will not go to a regular Dr. again. I found a really good friend (now) that did nature path and I was really interested after spending so many years going to Dr.s for them to tell me stupid things like I have an inlarged prostate (I am FEMALE!!!!) That is no joke some idiot read my cat scan wrong and told me I had a prostate anyway I am only 33 and have two kids that missed their mother. With my friends help I am getting healthy and would love to share things with you as we all go thru this together. I do enjoy the new found foods and well hate some of them I have been doing this long enough I know what I can and can't eat somedays that is sad and somedays I am so happy to be able to eat I could cry. You see when I was sick I couldn't eat anything and it made me sick. Now I can eat dairy again (not much but I can have my cheese once a week) and I have had a chance to try new exciting foods that I have never even heard of. I hope to get to know you all better thru this fun trip we all are on. I know there are bumps and what seem like giant hills in some of your paths but I tell you when you feel better you won't even miss it anymore for the most part anyway (I would love a big SubWay sandwich but I remember the pain it caused me so I don't want it very often) Have a wonderful day!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



traveljunkie Rookie

Hi busybee,

Welcome to the site and I'm new to the forum as well. I can understand your frusteration with doctors. I think we've all been there with doctors you just want to scream at. Glad you have found your way to health. I miss eating Subway but remember all the digestive and itchy skin problems...couldn't pay me to eat one now. Not being able to keep anything from running right through me after being glutoned...it was horrible. But like you I'm beginning to heal and so glad I've found this forum to vent, share stories and laugh!!

tiffjake Enthusiast
Hello All,

I was have been gluten free for almost a year now and love it. I feel so greatfull for finding out what was wrong with me. I have many health problems and always have but now I am feeling better and I will not go to a regular Dr. again. I found a really good friend (now) that did nature path and I was really interested after spending so many years going to Dr.s for them to tell me stupid things like I have an inlarged prostate (I am FEMALE!!!!) That is no joke some idiot read my cat scan wrong and told me I had a prostate anyway I am only 33 and have two kids that missed their mother. With my friends help I am getting healthy and would love to share things with you as we all go thru this together. I do enjoy the new found foods and well hate some of them I have been doing this long enough I know what I can and can't eat somedays that is sad and somedays I am so happy to be able to eat I could cry. You see when I was sick I couldn't eat anything and it made me sick. Now I can eat dairy again (not much but I can have my cheese once a week) and I have had a chance to try new exciting foods that I have never even heard of. I hope to get to know you all better thru this fun trip we all are on. I know there are bumps and what seem like giant hills in some of your paths but I tell you when you feel better you won't even miss it anymore for the most part anyway (I would love a big SubWay sandwich but I remember the pain it caused me so I don't want it very often) Have a wonderful day!!!

Hello! I am new to! I have been gluten-free for 3 weeks. I can tell a huge difference. I am amazed! I have had some really stupid doctors too, but mostly people who just wanted to give me another Rx and send me on my way. I am so impressed that you have been gluten-free for a year! I am worried that I won't make it that long with out cheating, but I just try to think about how bad I feel when I do eat stuff with gluten in it. I didn't think that the Malt Flavoring in Rice Krispies Treats was enough to make me sick but I was wrong!!!! So I am using that as a reminder! Congrats again, and welcome!

nettiebeads Apprentice
Hello! I am new to! I have been gluten-free for 3 weeks. I can tell a huge difference. I am amazed! I have had some really stupid doctors too, but mostly people who just wanted to give me another Rx and send me on my way. I am so impressed that you have been gluten-free for a year! I am worried that I won't make it that long with out cheating, but I just try to think about how bad I feel when I do eat stuff with gluten in it. I didn't think that the Malt Flavoring in Rice Krispies Treats was enough to make me sick but I was wrong!!!! So I am using that as a reminder! Congrats again, and welcome!

Hi to all three of you! and a big welcome. I've done this for 9 yrs and yes, negative association does work when it comes to gluten containing foods- I see things (like Aunt Esthers apple dumplings at TDay yesterday) but gluten = pain, D, depression to the max, unexplained uncontrollable anger, and overwhelming fatigue. Thanks, I'll do w/o. But I didn't do the gluten-free diet right until I came to this forum 3 months ago. I kept eating cereal with malt flavoring and drinking malt based beverages (you know - Smirnoffs and Bicardi coolers) until I realized what I was doing to my body and cut those items out too. Well, much more energy and a whole lot less brain fog for starters. I didn't realize that I was developing neropathy in my legs and face until I read some of the posts. Some mornings I'd get up and feel like I was walking on stumps. Since cleaning up my diet, has lessened quite a bit; don't know if that part of the damage will ever completely heal, but boy what an incentive to be 100%, totally and fanatically gluten-free!!!

Here's to everyone living a healthier life!

Annette

kevsmom Contributor
Hello All,

I was have been gluten free for almost a year now and love it. I feel so greatfull for finding out what was wrong with me. I have many health problems and always have but now I am feeling better and I will not go to a regular Dr. again. I found a really good friend (now) that did nature path and I was really interested after spending so many years going to Dr.s for them to tell me stupid things like I have an inlarged prostate (I am FEMALE!!!!) That is no joke some idiot read my cat scan wrong and told me I had a prostate anyway I am only 33 and have two kids that missed their mother. With my friends help I am getting healthy and would love to share things with you as we all go thru this together. I do enjoy the new found foods and well hate some of them I have been doing this long enough I know what I can and can't eat somedays that is sad and somedays I am so happy to be able to eat I could cry. You see when I was sick I couldn't eat anything and it made me sick. Now I can eat dairy again (not much but I can have my cheese once a week) and I have had a chance to try new exciting foods that I have never even heard of. I hope to get to know you all better thru this fun trip we all are on. I know there are bumps and what seem like giant hills in some of your paths but I tell you when you feel better you won't even miss it anymore for the most part anyway (I would love a big SubWay sandwich but I remember the pain it caused me so I don't want it very often) Have a wonderful day!!!

kevsmom Contributor

Hi BusyBee,

I'm fairly new too. I was diagnosed in April, and through this forum I find myself learning new things every day. Everyone is so helpful! If you have specific questions, they usually know the answers or are happy to get them for you.

I have suffered from different bouts of diarrhea in past years, that have lasted for about 3 months each. I had 2 colonoscopys that were negative. The symptoms dissapeared each time, so no one was worried.

My brother has had Celiac for years and my father had an iliostomy due to ulcerative colitis many decades ago (I don't think they tested for Celiac then). Finally, A light came on in the Gastroenterologists head (Duh????) - (so I do know how you feel about doctors) he tested me for Celiac. I guess I should have asked for the the test (but in the back of my mind, I really didn't want to know).

I have been putting off having my son tested - also because I'm afraid to know, but with the odorous gas that he gives off, it scares me. I do have him scheduled for a doctor's appointment next month. If It is positive, it is going to be hard to teach a 17 year old who is about to graduate from high school (and thinks he knows everything) what he has to do and get him to stick to it.

Have you scheduled your prostate exam for this year? :P:P

It is nice to know that we are all in this together. I feel that I have gotten more help here than from my own "real" family. Welcome, and I look forward to hearing from you soon! :)

Cindy

beelzebubble Contributor

welcome :)

i'm glad you found this site. i think you will find that your frustrations will be echoed here. you aren't alone. and that is a wonderful thing. i hope you continue to feel better.

bubble


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bknutson Apprentice

Annette,

What is neuropathy in your legs?

Barb

judyk Newbie
Hi BusyBee,

I'm fairly new too. I was diagnosed in April, and through this forum I find myself learning new things every day. Everyone is so helpful! If you have specific questions, they usually know the answers or are happy to get them for you.

I have suffered from different bouts of diarrhea in past years, that have lasted for about 3 months each. I had 2 colonoscopys that were negative. The symptoms dissapeared each time, so no one was worried.

My brother has had Celiac for years and my father had an iliostomy due to ulcerative colitis many decades ago (I don't think they tested for Celiac then). Finally, A light came on in the Gastroenterologists head (Duh????) - (so I do know how you feel about doctors) he tested me for Celiac. I guess I should have asked for the the test (but in the back of my mind, I really didn't want to know).

I have been putting off having my son tested - also because I'm afraid to know, but with the odorous gas that he gives off, it scares me. I do have him scheduled for a doctor's appointment next month. If It is positive, it is going to be hard to teach a 17 year old who is about to graduate from high school (and thinks he knows everything) what he has to do and get him to stick to it.

Have you scheduled your prostate exam for this year? :P:P

It is nice to know that we are all in this together. I feel that I have gotten more help here than from my own "real" family. Welcome, and I look forward to hearing from you soon! :)

Cindy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

    2. - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

    3. - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

    5. - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,853
    • Most Online (within 30 mins)
      7,748

    Procurement
    Newest Member
    Procurement
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.