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anyone know about ferritin?

ironictruth

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ironictruth Proficient
ironictruth
Posted

DQ2 positive, mild DGP IGA elevation, (all others negative) brother with confirmed celiac via biopsy with negative labs but positive gene.  I went gluten-free last year for 8 months. then I ate gluten for 6 weeks prior to a biopsy and it was negative. So I resumed gluten for a month but I kept getting all sorts of weird symptoms. I'm pretty sure my primary care just thinks I'm nuts. In December my ferritin was 74, in March it was 49. I asked a doctor friend of mine, who is not my doctor, to order it again a few weeks ago and it was 33. I have put in a call to my primary care to have her order it again in a few more weeks and I'm taking iron supplements. I do not want to ad to my list of already strange symptoms. But because my primary care again probably thinks it's all just anxiety I'm not sure how to explain to her I do not think I should have a drop and ferritin from 74 to 33 and 4 months. my question is does anyone know how fast ferritin drops? Is it normal to fluctuate levels like this? I do not want to keep taking iron if I do not need to. I just don't want it going down any further.

 

I should add I had a lot of chest pain when I was eating gluten, so there was some Pepcid and Tums that I was taking. I know that can also contribute to malabsorption of iron.

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Estes Contributor
Estes
Posted

Apparently my tums was causing a rebound of my acid and not really helping.  I had to switch to one of the ones you stay on full time.  I also had chest pain from acid.  Your ferretin issue sounds interesting.  Omiprozol for acid fixed a lot of my symptoms and I don't think it interfered with iron absorbing.

ironictruth Proficient
ironictruth
Posted
  • Author

Thanks. The chest pain mostly vanished with the gluten, except what I think might be a muscular pain carried over from my upper back. Tried omeprazole for 2 weeks hoping silent reflux was the cause of my shortness of breath, to no avail so discontinued it. 

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