Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If you have withdrawals going off gluten, is that a sign of sensitivity or celiac?

pjeaston

Recommended Posts

pjeaston Newbie
pjeaston
Posted

I have lived a life of migraines/headaches, extreme tiredness and sometimes bloated/gas type pains.  Recently, I have been even more tired than normal and more migraines.  I decided to see if going gluten free would make a difference and will try it for a couple of months.  On day 2 of being gluten-free, I started to get even more tired, major migraines and the most cranky I have ever been!  

I am wondering if anyone knows if reacting this way to going gluten free is a sign I'm sensitive to it/possibly celiac OR is it perfectly normal to feel this way even if I don't have a gluten problem?

I am seeing my doctor in two weeks.

Thanks!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Before going gluten free, celiac experts recommend getting tested first as celiac tests require a person to be consuming gluten daily.  Going gluten free for as little as a few  weeks can cause false negatives.  

Read more about celiac disease from the University of Chicago.  They have an excellent website!  

Open Original Shared Link

 

pjeaston Newbie
pjeaston
Posted
  • Author

Thanks for sending the link. I knew about making sure you're eating gluten before testing, but I'm feeling so horrible I just wanted to try. It wasn't the right way to do it.  I believe they tested me years ago and it was negative. 

cyclinglady Grand Master
cyclinglady
Posted

You might not have received the full celiac panel  or you could have developed celiac disease since then.  Best to test and rule out celiac disease.  If everything  is negative, you can try the gluten-free diet.  

Why really bother?  celiac disease is a genetic autoimmune disorder that is triggered by gluten and set off by something in the environment.  So, family members should be tested.  Also, it is easier to really stick to this really hard diet, if you have a diagnosis.  I could go on, but I need to get some sleep.  Only 5 more days of school left!  

Hang in there.  I hope you get it figured out.  It is awful to feel bad!  

 

Newly Diagnosed Apprentice
Newly Diagnosed
Posted

I have celiac disease and when I began the gluten free diet I did have withdrawal symptoms.  I felt really awful for about five or six days, and it gradually got better.  I don't know whether withdrawal symptoms are indicative of having celiac, or just because it can be a major dietary change to suddenly eliminate gluten which is in a LOT of foods!  I agree with cycling lady, you need to continue to eat gluten until you have a diagnosis.  If I didn't have a diagnosis I am sure I would have "cheated" on the diet.  There are tons of wonderful gluten-free foods and in my own home it is simple to be gluten free.  It's the social aspect of the diet that is very difficult sometimes and if I didn't know for sure I absolutely need to be gluten free I am sure I wouldn't stick to it when everyone is having pizza!  Good luck! 

squirmingitch Veteran
squirmingitch
Posted

I would recommend you go back to gluten TODAY!!!! Reason? Because celiacs almost always react more strongly to gluten when they have been off it. Soooooooooooooooooooooooooooo many people have done what you have & gone gluten free BEFORE getting tested & they end up regretting that because when they go back to gluten for the challenge for testing many, many, many times they get SO sick they can not complete the challenge & then they go without a diagnosis for life.

I'm just saying.......

pricehome Newbie
pricehome
Posted
 

I would recommend you go back to gluten TODAY!!!! Reason? Because celiacs almost always react more strongly to gluten when they have been off it. Soooooooooooooooooooooooooooo many people have done what you have & gone gluten free BEFORE getting tested & they end up regretting that because when they go back to gluten for the challenge for testing many, many, many times they get SO sick they can not complete the challenge & then they go without a diagnosis for life.

I'm just saying.......

That describes me. I have been strictly gluten free for over three years and it has helped me so dramatically, that I cannot go back on gluten for the test. If I have a cross-contamination I have a reaction. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pjeaston Newbie
pjeaston
Posted
  • Author

Thanks everyone so much. I will be patient and eat gluten again and wait for my doctors test. It seems like a lot of tests are false negatives. Is there a specific test I should request the doctor to test for? She always has me do the lab work before the appointment. Thanks. 

cyclinglady Grand Master
cyclinglady
Posted
 

That describes me. I have been strictly gluten free for over three years and it has helped me so dramatically, that I cannot go back on gluten for the test. If I have a cross-contamination I have a reaction. 

Yep, that's my hubby.  15 years of being gluten free and there's no way in !@#$ he'd go on a three month gluten challenge for a proper diagnosis.  Weird, thing is that I was diagnosed 12 years  with celiac disease after he went gluten free.  Nice though.  We are both in the boat!  

cyclinglady Grand Master
cyclinglady
Posted
 

Thanks everyone so much. I will be patient and eat gluten again and wait for my doctors test. It seems like a lot of tests are false negatives. Is there a specific test I should request the doctor to test for? She always has me do the lab work before the appointment. Thanks. 

Yes, read the link I provided earlier.  Ask for the complete test as indicated on the link.  Only one of them needs to be positive in order for the doctor to refer you to a GI for an endoscopy/biopsy.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,239
    • Most Online (within 30 mins)
      7,748
    Kbrown
    Newest Member
    Kbrown
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • R. M. LOMBARDO
      REESE'S PLANT BASED PEANUTBUTTER CUPS

      By R. M. LOMBARDO · Posted

      Reese's Plant Based PeanutButter Cups are made with non-Gluten Free Oats and only states on the package Dairy Free.  Is it safe for Celiacs or those with Gluten Intolerance issues to consume?  I think Mars is taking a small step in the right direction concerning food allergies and wish they were Gluten Free.
    • R. M. LOMBARDO
      PARTAKE COOKIES

      By R. M. LOMBARDO · Posted

      These items are on sale for $3.99 at Target: Choose from Choclate Chip, Grahams or Vanilla Wafers.   I purchased all 3 plus an extra Choclate Chip.  All are produced in a dedicate Gluten & Peanut Free Facility and other choices are available on amazon.com.
    • Liquid lunch
      Abscesses on legs

      By Liquid lunch · Posted

      I had these for years, covered in scars from them. Not had any since I started taking reishi and cordyceps tincture, they’re immune modulators, I think that’s how they work. Most of my other symptoms have also disappeared, I take a treble dose if I get glutened and it’s almost an instant fix, 3 days of mild symptoms instead of 3 weeks of horrible. Might be worth a try, don’t be put off by the caterpillars, I think they’ve found a different way of growing them now. 
    • knitty kitty
      Abscesses on legs

      By knitty kitty · Posted

      Welcome to the forum, @LookingForAnswers101, I had similar experiences with boil outbreaks in the same areas.  Mine was caused by Candida Albicans and eating a diet too high in sugar and simple carbohydrates.   Candida is a yeast infection, so the antibacterial wash is not going to help.  I had to change my diet to a Paleo diet before it went away.  If I consume high levels of sugar or other simple carbohydrates (rice, corn, dairy, etc.), boils would occur at pressure points like the groin and back of the legs.  Your doctor might be able to prescribe an antifungal medication, but some of those antifungal medications destroy thiamine.  Thiamine is needed to keep fungal and bacterial infections in check.  I took Thiamine in the form Benfotiamine, but TTFD (tetrahydrofurfuryl disulfide) will work, too.   Thiamine, and the other B vitamins, especially Niacin and Biotin, along with Vitamin A, Vitamin C, and Vitamin D will help keep skin healthy.  Be sure to address these nutritional deficiencies that occur with Celiac! Ask your doctor to rule out autoimmune hidradenitis suppurativa (HS) and Human Papilloma virus, too.   Hang in there!  You'll get over this rocky patch of the journey!  Best wishes! P. S.  Get checked for Type Two Diabetes as well.  Candida, type two diabetes and a high carbohydrate diet often go together.  A Paleo diet really helps me with my Type Two Diabetes and Candida overgrowth.
    • Scott Adams
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By Scott Adams · Posted

      As I mentioned, gluten intolerance encompasses more than just those with celiac disease, and in the past was used more like the term "gluten sensitivity" is used today.
×
×
  • Create New...