Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

manasota

Recommended Posts

manasota Explorer

I've seen many posts where a Celiac whose gut has just healed is starving every 2 hours.  That's me, I guess.  Has anyone experienced accompanying EXTREME anxiety and abdominal pressure (as though a small child is standing on your gut)?  I also have Graves Disease and thought I was simply hyperthyroid.   Just got the results and not hyperthyroid.  I can't stand the constant feel of wanting to pull out my hair or scream.  I really wish this kid would get off my guts so I could breathe more easily...  Seriously, this has been going on for about 6 months.  Thanks for any responses.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psoy Newbie

I am  not sure what your gut is healing from, but Anxiety is common in Celiac's (The other day,I saw a Celiac in the store crying and looking at Labels,and I asked if she was a Celiac, "How did you know?" She said. "Only Celiac's panic over food Labels!" I replied, then I helped her find stuff). Yoga, breathing, Pot, exercise all help! See a psychiatrist if you can. This disease is panic inducing. As for the Belly pain/pressure (putting on my Biochem hat here), it's most likely gas pain, which is the worst pain there is because it makes your normal pain (my back broke, seizure from nausea meds) worse! See a *****recommended******* pain doc. Be careful, some docs erroneously hate pot, so maybe look into their stance?)

 

Simethicone tabs will help upper GI tract gas, Activated Charcoal helps lower, but will render inert ANY OTHER MEDS YOU TAKE! Move, believe it or not just getting up and walking or swimming playfully helps move gas through! You'll fart more than you ever thought possible but the pressure/pain will ease. You could be getting Glutened, so be diligent. It takes 1/119 of a slice of bread to provoke Celiac! Gluten Free sometimes is misleading, make sure it's prepared for us! The sad mantra is "If you don't know, then the answer is no!" Celiac Safe is the label we need. 

 

Our malady results from the fact that we all have no enzyme to Cleave the Gluten Protein. Your body needs Amino Acids which you usually break down from proteins. Since Gluten enters as a protein, you can't use it. Bacteria can , do, and secrete gas! We also have a lower metabolic rate. They say we actually absorb only 75% of what we eat!

 

 

Hope that helps, stay clear of High Fructose Corn Syrup too. Bloats and causes pain/gas. 

 

Paul Soychak, B.Sc., M.F.A.

 

 

 

 

 

 

 

 

 

.

 

 

icelandgirl Proficient

Hi Manasota and (((hugs)))...I remember having a feeling of an inflated balloon inside of me.  It drove me crazy and nothing helped.  Walking, yoga...nothing.  at that point I looked into what things cause bloating...I cut out all foods that did.  It helped some.  Then I looked into additives that cause bloating and found 2 things that I was ingesting every day...inulin and carageenan.  Inulin was in my probiotic and carageenan was in my almond milk.  Switching my probiotic and cutting almond milk reduced my balloon feeling so much.  I don't miss it at all.  So just something to think about...if you are eating anything with either of those 2 ingredients.  Inulin is also called chicory root fiber.  Carageenan is added to lots of dairy type things to make them creamier.

Best wishes...I hope you find your answer.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to chrish42's topic in Doctors
      5

      Doctors and Celiac.com

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,259
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.