Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Taking Leaky Gut Test

cornbread

By cornbread
in Related Issues & Disorders

Recommended Posts

cornbread Explorer
cornbread
Posted

I got the test from my ND today, to take at home tomorrow. I'm worried about it as the mixture I have to drink is lactulose/mannitol - lactulose being a milk sugar, and me being casein intolerant. I'm dreading it causing a casein reaction... :( but still, I need to take the test. My ND says she usually doesn't get people tested and diagnoses leaky gut based on symptoms (she's pretty sure it's what I have), but I figure if there's a simple test that will 100% confirm it, it's worth doing.

Has anyone who's casein intolerant taken the test? :huh:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
I got the test from my ND today, to take at home tomorrow. I'm worried about it as the mixture I have to drink is lactulose/mannitol - lactulose being a milk sugar, and me being casein intolerant. I'm dreading it causing a casein reaction... :( but still, I need to take the test. My ND says she usually doesn't get people tested and diagnoses leaky gut based on symptoms (she's pretty sure it's what I have), but I figure if there's a simple test that will 100% confirm it, it's worth doing.

Has anyone who's casein intolerant taken the test? :huh:

Personally, If I was casein intolerant I wouldnt take the test. I've taken lots of tests but never bothered with the leaky gut test because its pretty obvious I have it. I just go ahead and do what I need to do to treat the leaky gut...thats the most important part. I think its pretty common for anyone with gluten sensitivity/celiac to have leaky gut. It kind of goes with the territory. I would just assume its there and listen to your doc on how to help it heal.

cornbread Explorer
cornbread
Posted
  • Author

Ok, I chickened out! :lol: I just couldn't do it. My plan is to take the test next time I get accidentally glutened or caseined. This way it either won't make any difference or it will add maybe a day onto the symptoms, which is better than purposefully poisoning myself. My doc already gave me info on how to treat it (basically the same info I already learnt on this forum - l-glutamine, enzymes, etc.), so I'm going ahead from today. She was pretty good, although her understanding of the casein intolerance wasn't too hot - she told me her aim was to treat the gut so that I could one day tolerate my problem foods, including casein. She understood that gluten is out forever, but she didn't grasp that casein is exactly the same if it's an IgA mediated reaction. She also said her aim was to get my gluten reaction time down from 8 days (it was originally 2) so I could cheat with gluten if I wanted too! :blink: She understands gluten will always give me a reaction, but I don't think she understands the long-term damage it does to Celiacs, whether you feel a reaction or not. She was very good otherwise so I will leave correcting her until my next visit. :D I liked the idea of my reaction time being reduced so in all fairness, her aim is the same as mine, but I will correct her nonetheless for the sake of future Celiacs who visit her, who may be less aware of the details.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,177
    • Most Online (within 30 mins)
      7,748
    Cassiedawn16
    Newest Member
    Cassiedawn16
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...