Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Roadtrip planning - help


absullivan6

Recommended Posts

absullivan6 Rookie

We depart for our annual family vacation in 2 weeks and I'm trying to prep appropriately for my son. The last time we went on this trip he was not yet diagnosed.

We will be in the car for approximately 10 hours traveling north. I am VERY hesitant to trust a restaurant, especially while traveling as the last thing I want for him is to be glutened and sick in the car.

How do you prep for travel? I am already thinking of the usuals like PB&J, crackers, hummus, fruit, etc. but would love any other suggestions. Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

i bring a cooler and usually make up a sandwich or two, depending on how long we will be traveling.   those are all good ideas.  a box of chex, maybe applesauce or snack pack puddings?  and cheeeeese....   :) 

cyclinglady Grand Master

It will be easy!  I just survived a three week trip to Europe and I did not get glutened!  We took a seven day cruise.  Lovely.  Staff well trained about keeping celiacs safe.  On land, we ate at only restaurants recommended by Celiacs online.  Not a lot of choices, so we ate at grocery stores: fruit, veggies, cheese, meats, yogurts, chips (crisps).  We just found a place to picnic and I hauled around my tote/cooler filled with ice from the hotel.   I even resisted food prepared by our family in Poland.  I felt that they did not understand the cross contamination issue.  

A car vacation is even easier.  We have a super insulated cooler.  I prep foods like salads: chicken, tuna, egg, or potato.  Basically, whatever can be eaten at home.  On the road, we have even purchased Udi's frozen dinners and nuked them at the hotel (Target has them even!)   Lots of choices!  

Have fun!  

 

CaliforniaGranny Newbie

I totally get your dilemma. If you want to eat "out" Try a web search of gluten free restaurants in the areas you will be traveling through. They will tell you which restaurants have gluten free menus or if there even is a completely gluten free place to eat. For example, Lancaster, PA has a bunch of places that serve gluten free. Always check it out before you order and explain how important it is to be completely gluten free and the consequences of cross contamination. If you don't feel,comfortable, don't stay. If you are traveling in Ventura County California there is Lure Fish House. The have dedicated gluten-free food prep and a lot of gluten-free selections. 

 

 

sdlane Rookie

Not sure where you're located, but I've had great success with the protein style burger at In-n-Out (with ketchup and mustard instead of the secret sauce) and fries.  You MUST tell them he's a Celiac, so it's made with fresh gloves in a different part of the kitchen.  Fries are usually safe as they don't have any other products in the fryer that contain gluten.  I also eat at Chipotle a lot too and the same....tell them he's a Celiac and they'll wash their arms/hands, change gloves and use that one "safe" person to follow you down the entire line instead of handing you off from person-to-person.  I've never been sick there either.  All their spices are gluten free...the only thing they have with gluten in it is their tortillas.  As far as traveling by car/plane, I usually bring hard boiled eggs, gluten-free Kind Bars (Open Original Shared Link and Justin's peanut butter packets (Open Original Shared Link).  In fact, I keep the Kind bars and peanut butter in my purse 24/7.  Good luck and have a great trip!  xoxo

cyclinglady Grand Master
54 minutes ago, sdlane said:

Not sure where you're located, but I've had great success with the protein style burger at In-n-Out (with ketchup and mustard instead of the secret sauce) and fries.  You MUST tell them he's a Celiac, so it's made with fresh gloves in a different part of the kitchen.  Fries are usually safe as they don't have any other products in the fryer that contain gluten.  I also eat at Chipotle a lot too and the same....tell them he's a Celiac and they'll wash their arms/hands, change gloves and use that one "safe" person to follow you down the entire line instead of handing you off from person-to-person.  I've never been sick there either.  All their spices are gluten free...the only thing they have with gluten in it is their tortillas.  As far as traveling by car/plane, I usually bring hard boiled eggs, gluten-free Kind Bars (Open Original Shared Link and Justin's peanut butter packets (Open Original Shared Link).  In fact, I keep the Kind bars and peanut butter in my purse 24/7.  Good luck and have a great trip!  xoxo

Here's my two cents about In-In-Out.  Just make sure it's a newer store that has a few extra grills.  I grew up with this chain.  Some of the older stores just have one grille.  So, always ask to be extra safe.  The order/recipt will specify "gluten allergy".  

CaliforniaGranny Newbie

 I forgot all about In-N-Out.  If you ever travel north from Orange County, try Lure. They are in Agoura, Camarillo, Ventura, and ?Santa Barbara. 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,682
    • Most Online (within 30 mins)
      7,748

    Amber1rose
    Newest Member
    Amber1rose
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.