Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Skin Issues from Ceilac's

rushingspirit

Recommended Posts

rushingspirit Newbie
rushingspirit
Posted

I'm newly diagnosed but have been living with it my whole life. I am 47 I never thought anything about all my stomach issues that go along with this disease. So now, my stomach & a whole lot of other symptoms are clearing up. However, I have this milky white film on alot of my body. It isn't terribly noticeable really except to me. When I am out in the sun I will tan all over, but in a few days all the areas that are marked with this loses the tan. It's itchy, yada yada yada.....Since cutting gluten out of my life by 99% (still working on remembering I have Celiac's) It's only been about 3 weeks since my diagnosis. Anyways, my question is this. I thought I read somewhere that this condition has something to do with being Celiac. It's itching even more & I feel as if it is starting to resolve itself. Is there anything I can do to relieve the symptoms sooner. & does anyone know if that is one of the conditions of Celiac's? Just so you know, I am only consuming gluten if I grab something quick & forget that I can't have gluten. No bread or pasta, but stuff with soy or a derivate of wheat etc.  I am getting WAY more cautious!!! I google 95% of my diet now!! :( It's annoying but worth FEELING AMAZING!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


captaincrab55 Collaborator
captaincrab55
Posted

You could have DH.       gluten-free is a strict diet that doesn't allow for an oops.      If you have DH also, it may take a year or so on a strict to get total relief.      Did you get your vitamin levels checked??

 

GFinDC Veteran
GFinDC
Posted

Right DH (dermatitis herpetiformis) is a skin reaction associated with celiac disease.  There is a section of the forum dedicated to it where you can find more information.  Some of our itch-est members hang out there.  I think Scratchy is rumored to visit there too.

Welcome to the forum! :)

 

squirmingitch Veteran
squirmingitch
Posted

A milky white film on the skin that itches does not sound like dh however there are many skin conditions associated with celiac disease that are not dh.

A strict gluten free diet is the requirement. No screw ups!

caretothepeople Newbie
caretothepeople
Posted

A skin biopsy is used to confirm a diagnosis of DH so that may be something you want to ask your doctor about getting in addition to asking what other testing you might needs. Other questions to ask about DH (these came from gluten (dot) org)

Questions to ask your doctor:

Should I take medication for this disease?
How long will I need to take this medicine and how will I know when to stop taking it?
What are the side effects of these medicines?
How often do I need to get my blood drawn to monitor this medicine’s effect on my body?
What else can trigger DH?
Should I take nutritional supplements?
Could I have associated food intolerances?
Where can I have a bone-density study?
How can I find out about the diet?
How often should I follow up with the doctor?

Coltsneck24 Rookie
Coltsneck24
Posted

White, milky patches sounds more like a fungus. Please see a dermatologist to get a proper diagnosis. Also, gluten-free only works when it is 100%. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to maryannlove's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Yasso frozen yogurt bars - be careful

      Thanks for sharing this! Talk about frustrating! It is complicated enough to try to keep track of which products are safe, but the concept of the same product sold at 2 different stores--one that is certified gluten-free and one that isn't--that is exactly why having celiac disease is still so difficult, and it is so easy to make mistakes!
    2. Scott Adams
      - Scott Adams replied to cristiana's topic in Traveling with Celiac Disease
      1

      UK Visitors: Award Winning Flapjackery in the West Country (and Chichester, West Sussex)

      It's great that this business has celiac disease awareness and uses gluten-free oats! I wish more restaurants would make such simple changes, for example if Asian restaurants switched to using gluten-free soy sauce, many (but not all!) risks would be eliminated for lots of their dishes. My daughter works at a Vietnamese restaurant where the owner is keenly...
    3. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Frustrated

      It sounds like you’ve been doing everything right—strictly avoiding gluten, managing food allergies, and advocating for yourself—yet you’re still dealing with severe pain, exhaustion, and other debilitating symptoms. The fact that your colonoscopy came back clear after 31 years gluten-free is a testament to your diligence, but it doesn’t erase the very real...
    4. Beverage
      - Beverage replied to Betsy Crum's topic in Related Issues & Disorders
      8

      Chest pain from celiac

      Could you be having acid reflux? I used to get it soooo bad before I was diagnosed, now very rarely. I didnt have stomach upset, aka silent reflux, but pain in chest (thought I was having a heart attack) and food would get stuck from the esophagus irritation. The things here really helped, especially raising head of bed, sip of apple cider vinegar before...
    5. Wheatwacked
      - Wheatwacked replied to Mrs. Cedrone's topic in Related Issues & Disorders
      4

      Canker sores

      Studies have shown that individuals with canker sores tend to have lower levels of vitamin D in their blood compared to those without the condition. This suggests that vitamin D deficiency could be a risk factor for developing canker sores. Vitamin D deficiency is very common in Celiac Disease.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,412
    • Most Online (within 30 mins)
      7,748
    Saharon
    Newest Member
    Saharon
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Yasso frozen yogurt bars - be careful

      By Scott Adams · Posted

      Thanks for sharing this! Talk about frustrating! It is complicated enough to try to keep track of which products are safe, but the concept of the same product sold at 2 different stores--one that is certified gluten-free and one that isn't--that is exactly why having celiac disease is still so difficult, and it is so easy to make mistakes!
    • Scott Adams
      UK Visitors: Award Winning Flapjackery in the West Country (and Chichester, West Sussex)

      By Scott Adams · Posted

      It's great that this business has celiac disease awareness and uses gluten-free oats! I wish more restaurants would make such simple changes, for example if Asian restaurants switched to using gluten-free soy sauce, many (but not all!) risks would be eliminated for lots of their dishes. My daughter works at a Vietnamese restaurant where the owner is keenly aware of celiacs, and he has made the switch to gluten-free soy and fish sauces. 
    • Scott Adams
      Frustrated

      By Scott Adams · Posted

      It sounds like you’ve been doing everything right—strictly avoiding gluten, managing food allergies, and advocating for yourself—yet you’re still dealing with severe pain, exhaustion, and other debilitating symptoms. The fact that your colonoscopy came back clear after 31 years gluten-free is a testament to your diligence, but it doesn’t erase the very real struggles you’re facing daily. It’s concerning that previous doctors dismissed your celiac diagnosis, and now you’re left fighting for validation while dealing with unexplained symptoms like eye pressure, skin issues, and relentless pain. Menopause and long COVID may be complicating things further, making it even harder to pinpoint the root cause. Are you sure your diet is 100% gluten-free? Do you eat in restaurants...if so, this can be a source of contamination. Trace amounts of gluten over time could explain your symptoms. Many people with celiac disease have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Beverage
      Chest pain from celiac

      By Beverage · Posted

      Could you be having acid reflux? I used to get it soooo bad before I was diagnosed, now very rarely. I didnt have stomach upset, aka silent reflux, but pain in chest (thought I was having a heart attack) and food would get stuck from the esophagus irritation. The things here really helped, especially raising head of bed, sip of apple cider vinegar before meals with protein, heel thumping, and until it healed, taking DGL after meals to coat...do NOT take antacids https://drjockers.com/acid-reflux/ DGL https://www.amazon.com/Integrative-Therapeutics-Rhizinate-Deglycyrrhizinated-Licorice/dp/B001WUC406/  
    • Wheatwacked
      Canker sores

      By Wheatwacked · Posted

      Studies have shown that individuals with canker sores tend to have lower levels of vitamin D in their blood compared to those without the condition. This suggests that vitamin D deficiency could be a risk factor for developing canker sores.  Vitamin D deficiency is very common in Celiac Disease.
×
×
  • Create New...