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Skin Issues from Ceilac's


rushingspirit

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rushingspirit Newbie

I'm newly diagnosed but have been living with it my whole life. I am 47 I never thought anything about all my stomach issues that go along with this disease. So now, my stomach & a whole lot of other symptoms are clearing up. However, I have this milky white film on alot of my body. It isn't terribly noticeable really except to me. When I am out in the sun I will tan all over, but in a few days all the areas that are marked with this loses the tan. It's itchy, yada yada yada.....Since cutting gluten out of my life by 99% (still working on remembering I have Celiac's) It's only been about 3 weeks since my diagnosis. Anyways, my question is this. I thought I read somewhere that this condition has something to do with being Celiac. It's itching even more & I feel as if it is starting to resolve itself. Is there anything I can do to relieve the symptoms sooner. & does anyone know if that is one of the conditions of Celiac's? Just so you know, I am only consuming gluten if I grab something quick & forget that I can't have gluten. No bread or pasta, but stuff with soy or a derivate of wheat etc.  I am getting WAY more cautious!!! I google 95% of my diet now!! :( It's annoying but worth FEELING AMAZING!!

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captaincrab55 Enthusiast

You could have DH.       gluten-free is a strict diet that doesn't allow for an oops.      If you have DH also, it may take a year or so on a strict to get total relief.      Did you get your vitamin levels checked??

 

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GFinDC Veteran

Right DH (dermatitis herpetiformis) is a skin reaction associated with celiac disease.  There is a section of the forum dedicated to it where you can find more information.  Some of our itch-est members hang out there.  I think Scratchy is rumored to visit there too.

Welcome to the forum! :)

 

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squirmingitch Veteran

A milky white film on the skin that itches does not sound like dh however there are many skin conditions associated with celiac disease that are not dh.

A strict gluten free diet is the requirement. No screw ups!

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caretothepeople Newbie

A skin biopsy is used to confirm a diagnosis of DH so that may be something you want to ask your doctor about getting in addition to asking what other testing you might needs. Other questions to ask about DH (these came from gluten (dot) org)

Questions to ask your doctor:

Should I take medication for this disease?
How long will I need to take this medicine and how will I know when to stop taking it?
What are the side effects of these medicines?
How often do I need to get my blood drawn to monitor this medicine’s effect on my body?
What else can trigger DH?
Should I take nutritional supplements?
Could I have associated food intolerances?
Where can I have a bone-density study?
How can I find out about the diet?
How often should I follow up with the doctor?

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Coltsneck24 Rookie

White, milky patches sounds more like a fungus. Please see a dermatologist to get a proper diagnosis. Also, gluten-free only works when it is 100%. 

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    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
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    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
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      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
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