Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results In :(


VydorScope

Recommended Posts

VydorScope Proficient
Hi Vydorscope,

I'm really sorry you didn't get the results you wanted.

I really empathize with your comment about not feeling better off gluten, but feeling worse on it! I know when first I tried not eating gluten I felt great the first week, then things got much more complicated, and it's only now, about 8 months in, that I'm really feeling well again.

You were already an old hand on the board when I started reading here. Maybe I missed your story, but I've noticed you never talk about what problems you're hoping to sort out with a diagnosis. I think some problems take longer to sort out that others. and maybe after a good long gluten-free trial you would have your answers. At least you've done your best to rule out other problems.

Best wishes,

Matilda

Matlida... old hand? Hmm you jioned the board a MONTH befor me, so what does that make YOU? :lol::lol:

As for symptons... somem place burreid here on the site is a long post with my symptons in it. Short version... Anemia, pain, gass, lose floating stools, those kinds of things.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Matilda Enthusiast

..

VydorScope Proficient
Huh...I could have sworn you were here first! Maybe I joined and didn't read anything for a while. I remember being very impressed at how much you knew about raisins :)

Matilda

Hey when somthings important in your life you tend to learn about it :lol::lol:

Rachel--24 Collaborator
I remember being very impressed at how much you knew about raisins :)

:lol::lol::lol:

He sure does...doesnt he!

jajus100 Apprentice

You know, it is very interesting to read this board. When people say the test results are in with a frown face, you don't know if it is because the results were positive in which case they have a disease which will really change their lifestyle for life, or are frowning because the test is negative which means they know no more than when they started and they have nothing they can do to relieve their symptoms. It is just odd when you think about it.

I am in the same boat. I don't know if I want them to finally diagnose me as celiac or not! It would be good to know once and for all, but oh what a change it would mean.

tarnalberry Community Regular
It says :

t-Transglutaminase (tTG) IgA < 1

Thats it for celiac disease.

EDIT: tehres a page of other tests, but all normal.

None of the other tests are for celiac?

Then that result is TOTALLY useless. I can't even begin to fathom why they bothered. If you're IgA deficient, as many celiacs are, then a low tTg IgA tells you *nothing*. They need to run the other tests as well.

Sigh... I'm sorry they screwed up the testing. :(

VydorScope Proficient
None of the other tests are for celiac?

Then that result is TOTALLY useless. I can't even begin to fathom why they bothered. If you're IgA deficient, as many celiacs are, then a low tTg IgA tells you *nothing*. They need to run the other tests as well.

Sigh... I'm sorry they screwed up the testing. :(

They siad thats the ONLY test the insurance company will pay to run. My only other option would be the York Labs route for $99. I might call them later and see if they got any supplies in yet. But probably wont. Ive been gluten-free 2 weeks now I think... eversince that blood test was taken.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,156
    • Most Online (within 30 mins)
      7,748

    Shrub
    Newest Member
    Shrub
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.