Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Endoscopy/Colonoscopy Today


christinap728

Recommended Posts

christinap728 Newbie

Hi Everyone!

I had a endoscopy and a colonoscopy performed today. I don't see my doctor for 4 weeks, once she receives the pathology report and such. I do have a copy of the procedure note and was wondering if anyone had any input for me that maybe had similar results. I only had one blood test for Celiac the IgA (I think) and it was normal. I do have many other symptoms though. 

Endoscopy:

Z-line was irregular. Minimal inflammation was found in the gastric antrum. The duodenum was normal.

Colonoscopy:

The colon appeared normal.

The terminal ileum appeared normal.

Has anyone had results similar to these? Anything seem concerning with this... Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
48 minutes ago, christinap728 said:

Hi Everyone!

I had a endoscopy and a colonoscopy performed today. I don't see my doctor for 4 weeks, once she receives the pathology report and such. I do have a copy of the procedure note and was wondering if anyone had any input for me that maybe had similar results. I only had one blood test for Celiac the IgA (I think) and it was normal. I do have many other symptoms though. 

Endoscopy:

Z-line was irregular. Minimal inflammation was found in the gastric antrum. The duodenum was normal.

Colonoscopy:

The colon appeared normal.

The terminal ileum appeared normal.

Has anyone had results similar to these? Anything seem concerning with this... Thanks!

My endoscopy and colonoscopy were both normal from a visual perspective; however, my biopsies revealed a Marsh Stage IIIB.  I think you just need to wait for the pathologist's report.  What prompted them to go forward with these two procedures if they did not suspect celiac disease?

It is a shame that you did not get the entire panel.  I personally test negative to the TTG IgA and only positive on the DGP IgA.  Weird, but it happens.  I would continue to eat gluten until you get the reports in.  

On a different note, I thought my niece had celiac disease for sure.  Her endoscopy and colonoscopy showed no damage and her complete celiac disease blood panel was negative too.  Later, a different GI ordered a pill cam.  That revealed Crohn's Disease.  So, why share this?  Don't settle if they do not find anything.  There is a reason you are sick!  

 

Fundog Enthusiast

I've never had an endoscopy-- I refused to continue eating wheat in order to get one, as I was shredding my skin to ribbons.  (Very itchy and twitchy)  However, I've had two colonoscopies, and I will have a third before I turn 50! :o  but I don't think that has so much to do with celiac disease as my family and personal history.  My dad had colon cancer at 51, so I had to start screening early, and they found polyps each time. :(

christinap728 Newbie

Thank you both for the information. When I follow-up with my GI doctor I will ask for the full bloodwork panel, if the biopsy comes back negative. My symptoms of celiac are what prompted the scopes, but also family history. My 36 year old cousin was just diagnosed with stage IV colon cancer and my 26 year old brother with diverticulosis and my mother and grandfather have it too. My primary ordered the initial blood work, but my GI hasn't ordered any bloodwork yet. Just the scopes and stool samples. Thanks again!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442

    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...