Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy/Colonoscopy Today


christinap728

Recommended Posts

christinap728 Newbie

Hi Everyone!

I had a endoscopy and a colonoscopy performed today. I don't see my doctor for 4 weeks, once she receives the pathology report and such. I do have a copy of the procedure note and was wondering if anyone had any input for me that maybe had similar results. I only had one blood test for Celiac the IgA (I think) and it was normal. I do have many other symptoms though. 

Endoscopy:

Z-line was irregular. Minimal inflammation was found in the gastric antrum. The duodenum was normal.

Colonoscopy:

The colon appeared normal.

The terminal ileum appeared normal.

Has anyone had results similar to these? Anything seem concerning with this... Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
48 minutes ago, christinap728 said:

Hi Everyone!

I had a endoscopy and a colonoscopy performed today. I don't see my doctor for 4 weeks, once she receives the pathology report and such. I do have a copy of the procedure note and was wondering if anyone had any input for me that maybe had similar results. I only had one blood test for Celiac the IgA (I think) and it was normal. I do have many other symptoms though. 

Endoscopy:

Z-line was irregular. Minimal inflammation was found in the gastric antrum. The duodenum was normal.

Colonoscopy:

The colon appeared normal.

The terminal ileum appeared normal.

Has anyone had results similar to these? Anything seem concerning with this... Thanks!

My endoscopy and colonoscopy were both normal from a visual perspective; however, my biopsies revealed a Marsh Stage IIIB.  I think you just need to wait for the pathologist's report.  What prompted them to go forward with these two procedures if they did not suspect celiac disease?

It is a shame that you did not get the entire panel.  I personally test negative to the TTG IgA and only positive on the DGP IgA.  Weird, but it happens.  I would continue to eat gluten until you get the reports in.  

On a different note, I thought my niece had celiac disease for sure.  Her endoscopy and colonoscopy showed no damage and her complete celiac disease blood panel was negative too.  Later, a different GI ordered a pill cam.  That revealed Crohn's Disease.  So, why share this?  Don't settle if they do not find anything.  There is a reason you are sick!  

 

Fundog Enthusiast

I've never had an endoscopy-- I refused to continue eating wheat in order to get one, as I was shredding my skin to ribbons.  (Very itchy and twitchy)  However, I've had two colonoscopies, and I will have a third before I turn 50! :o  but I don't think that has so much to do with celiac disease as my family and personal history.  My dad had colon cancer at 51, so I had to start screening early, and they found polyps each time. :(

christinap728 Newbie

Thank you both for the information. When I follow-up with my GI doctor I will ask for the full bloodwork panel, if the biopsy comes back negative. My symptoms of celiac are what prompted the scopes, but also family history. My 36 year old cousin was just diagnosed with stage IV colon cancer and my 26 year old brother with diverticulosis and my mother and grandfather have it too. My primary ordered the initial blood work, but my GI hasn't ordered any bloodwork yet. Just the scopes and stool samples. Thanks again!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,873
    • Most Online (within 30 mins)
      7,748

    oscarbolduc
    Newest Member
    oscarbolduc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.