Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

how quickly do nutrients drop


ironictruth

Recommended Posts

ironictruth Proficient

Has anyone had labs done after being glutened? 

I had weak positive bloodwork DGP IGA last year and a negative biopsy after a 6 week gluten challenge. Had been gluten-free for 8 mos. I have been gluten-free again since March with some cc. Had 3 episodes of bad D since July. One tanked my potassium, magnesium and alkaline phosphatase. They all returned to normal. This last one landed me in the hospital with metabolic acidosis last week. My RBC count going in was normal and dropped a tad below normal within 3 days along with hemoglobin. My protein went from 7.4 to 5.6 in 12 hours. Normal is 6.4 and up (and I snuck in a protein bar and gluten-free turkey sandwich too). A day later my Alkaline phosphatase was low. 

My RBC and protein are back to normal, at least in non-fasting state. I literally spent 3 days drinking protein drinks and taking molasses. I also have to eat  every 2-3 hours. I am currently fasted for a CT scan and queasy/weak.

I refused to officially go back on gluten after this because it led to a damaged adrenal gland and inflamed thyroid. I also have mild bilateral plueral effusions. They scoped me again in the hospital and I do not have the paper results yet but the doc said the biopsies he took showed the duodendum is inflamed and has white cells infiltrating but no villi blunting. I looked it up and it said this could be caused by bacterial infection or also by someone with celiac on a gluten-free diet.

Needless to say, prior to my gluten challenge last winter I took a multivitamin. I was fine! So I am going to be crazy neurotic about gluten from now on. I even have new makeup. 

Has anyone had labs done right after being glutened? Did they tank quickly and come back up after the big D stopped and you could eat again? It hurts to eat though. 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
16 minutes ago, ataglance said:

Has anyone had labs done after being glutened? 

I had weak positive bloodwork DGP IGA last year and a negative biopsy after a 6 week gluten challenge. Had been gluten-free for 8 mos. I have been gluten-free again since March with some cc. Had 3 episodes of bad D since July. One tanked my potassium, magnesium and alkaline phosphatase. They all returned to normal. This last one landed me in the hospital with metabolic acidosis last week. My RBC count going in was normal and dropped a tad below normal within 3 days along with hemoglobin. My protein went from 7.4 to 5.6 in 12 hours. Normal is 6.4 and up (and I snuck in a protein bar and gluten-free turkey sandwich too). A day later my Alkaline phosphatase was low. 

My RBC and protein are back to normal, at least in non-fasting state. I literally spent 3 days drinking protein drinks and taking molasses. I also have to eat  every 2-3 hours. I am currently fasted for a CT scan and queasy/weak.

I refused to officially go back on gluten after this because it led to a damaged adrenal gland and inflamed thyroid. I also have mild bilateral plueral effusions. They scoped me again in the hospital and I do not have the paper results yet but the doc said the biopsies he took showed the duodendum is inflamed and has white cells infiltrating but no villi blunting. I looked it up and it said this could be caused by bacterial infection or also by someone with celiac on a gluten-free diet.

Needless to say, prior to my gluten challenge last winter I took a multivitamin. I was fine! So I am going to be crazy neurotic about gluten from now on. I even have new makeup. 

Has anyone had labs done right after being glutened? Did they tank quickly and come back up after the big D stopped and you could eat again? It hurts to eat though. 

 

No matter what the cause, excessive diarrhea can cause dehydration and nutrition issues.

 

cyclinglady Grand Master

If you mean celiac antibody testing after a glutening, yes!  Did the hospital think to retest for celiac antibodies to perhaps exclude a glutening?    My GI tested me after a suspected glutening (not sure what even glutened me ?.)   My symptoms suggested SIBO, since they were so different from when I was diagnosed (no intestinal issues, but anemia).  My antibodies were off the charts four weeks later!  It took me 3 months to feel better.

I consumed a lot of stew (soft and mushy) because anything I ate hurt to digest.  

Oh, my endoscopy looks normal.  Only the biopsies revealed damaged villi.  

Karen is right about her advice too.  It is not always celiac disease!  

ironictruth Proficient

You guys are good. So my DGP IGA was weak positive before all of this. We tested it in July and it was 15. Normal is under 20. My celiac sibling is one of the few who is sero negative but biopsy positive, gene positive, and extremely sensitive. So we never held my breath that any serum levels would be positive.

I did not see anything in my labs from the hospital originally so I just checked now and it was 28. So, weak positive again. Do they continue to rise after or drop again right away? 

The GI doc did say my biopsy results would be consistent for someone with celiac who has been gluten-free for awhile (I have been for 6 months). 

After 8 months of feeling like a nutcase with an attacked thyroid and calcified adrenal gland, I can finally feel like this is enough of an answer for me. 

 

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,027
    • Most Online (within 30 mins)
      7,748

    EmmaGraceeee
    Newest Member
    EmmaGraceeee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.