Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Echinacea


DMatt

Recommended Posts

DMatt Newbie

When ordering vitamins/supplements I always check to make sure they are marked gluten free. When reading the label on the echinacea bottle it is noted that those with auto immune conditions should not take echinacea. I never noticed this precaution before. Does anyone have additional information? Can celiacs ingest echinacea? Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Thats interesting--I've never noticed that warning before. I have taken echinacia before, but it was several years ago--I didn't know I had celiac disease, so I didn't read labels with the same scrutiny that I do now. I never thought that it helped me with colds, etc. so I stopped using it.

jenvan Collaborator

Echinacea activates your immune system, gives it a boost, so if you have an autoimmune disease, that would mean it also activates your disease. ie. if you have Hashi's thyroid (where your body attacks your thyroid) taking Echinacea could theoretically increase damage potential... Celiac is unique in the the sense that if we are gluten-free and our body is no longer attacking our intestines, then our autoimmune disease is dormant, so to speak, so taking Echinacea should be technically be okay. I waited until recently to begin taking Echinacea again, and I only do so for a short period of time when I am getting sick and my body needs some help. Taking Echinacea long term or too frequently is not good for anyone. If you have been gluten-free for a while, and decide to take Echinacea, make sure you verify that the supplement is gluten-free. Hope that helps !

jerseyangel Proficient

Thanks Jen--I get it now! :)

Guest Viola

I was told by my doctor (he has a Celiac son) that Celiac's should not be taking Echinacea. Even if we are feeling healthy and accidently get into gluten contamination, it makes it much worse.

DMatt Newbie

Thank you very much. What seemed complicated is now understandable. I think we will just stay away from the echinacea. Thanks again.

jenvan Collaborator

Shirley...That is a good point. There is an amount of risk in choosing to take it either way. I felt like it was worth taking last week...it is such an amazing supplement! I wonder about other "immune boosters" like goldenseal etc. too...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

My doctor told me to be very careful with all the herbal stuff as one ... they are not tested on people with auto immune diseases and two ... their contents are not government regulated ... by that I mean they can put as much, or as little of the active ingredient as they want and use what ever they want for fillers.

jenvan Collaborator

yeah, that's true. herbs can be "subjective." i stick with two brands mostly...one that my husband's mom has worked with for years. we trust the purity of their products.

nikki-uk Enthusiast
When ordering vitamins/supplements I always check to make sure they are marked gluten free. When reading the label on the echinacea bottle it is noted that those with auto immune conditions should not take echinacea. I never noticed this precaution before. Does anyone have additional information? Can celiacs ingest echinacea? Thanks.

I think the theory behind this is(bare with me) is echinacea boosts your immune system.

If you suffer from an autoimmune disease(such as celiac disease)your immune system is really super sensitive and working too hard already.Your immune system is so good,that it's turned in on itself(think of rheumatiod arthritis where the body attacks the joints)

So,bottom line-your immune system doesn't need boosting-in fact it needs dampening down.

This of course is just my take and understanding of it.

Hope that made sense! :huh:

jenvan Collaborator

Open Original Shared Link

this might give you a wee bit more info--this is when i posted this same question a while back...

CMCM Rising Star
When ordering vitamins/supplements I always check to make sure they are marked gluten free. When reading the label on the echinacea bottle it is noted that those with auto immune conditions should not take echinacea. I never noticed this precaution before. Does anyone have additional information? Can celiacs ingest echinacea? Thanks.

Well, I've felt like I was coming down with a horrible sore throat...felt like strep throat or something. I could hardly swallow, felt like there was a lump in my throat. At first I thought it was perhaps reaction to going totally off gluten because this started about 4 days after that....and oddly, taking 2 Advil helped, but at that point I was taking Echinacea AND Astragalus, which I had recently read was thought by some to be even more effective than echinacea. Plus I took 1g vitamin C a couple of times a day. Anyhow, this sort of came and went for a couple of days but now seems to be gone 4 days after I first felt it, and I never did get sick beyond the sore throat. In any case, was this a cold developing or was it due to gluten withdrawal? Who knows, not I. But the echinacea didn't seem to bother me as far as I can tell. I looked at the bottle and it also had the autoimmine warning. Weird.

jenvan Collaborator

it might have been a cold. can't tell you how many times in the past i was getting sick, took echinacea for a 2 days and was normal again. i have been reading on Astragalus...going to have to do some more research and maybe try sometime. goldenseal is good too...

CMCM Rising Star
it might have been a cold. can't tell you how many times in the past i was getting sick, took echinacea for a 2 days and was normal again. i have been reading on Astragalus...going to have to do some more research and maybe try sometime. goldenseal is good too...

I'm using one of Swanson's Premium Brand Echinacea with Goldenseal Root. The bottle claims the only other ingredient is gelatin. In my family, we all think it can nip things in the bud. The jury is out on the astragalus, but it's interesting. This was my first experience with it recently.

  • 4 years later...
mudgely Newbie

I'm using one of Swanson's Premium Brand Echinacea with Goldenseal Root. The bottle claims the only other ingredient is gelatin. In my family, we all think it can nip things in the bud. The jury is out on the astragalus, but it's interesting. This was my first experience with it recently.

I can confirm that echinacea has a rapid immune effect in the gastroinstestinal tract from an experience that I am having right now. Last night, I got "glutened" at a restaurant. I realized it as soon as it happened, and I took 30 mg dexamethasone to suppress my immune response. Today, I was still reacting, to I took 15 mg twice during the day, and things were OK. I was in the mood for some tea, and without thinking I drank some echinacea tea. My body responded within minutes, with cramping and diarrhea. It occurred to me immediately, that the echinacea must have boosted my immune response, so my body was rejecting the gluten still in me.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.