Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headaches When First Going Gluten Free?


weekendwarrior

Recommended Posts

weekendwarrior Apprentice

Hi everyone!

I've been eating a fully gluten free diet for the past week - and yesterday (the 7 day mark), I ended up getting a headache from mid afternoon until evening.

I thought nothing of it until I got the exact same headache today. I read some sites that this could be a "wheat withdrawal?"

I was curious if anyone else dealt with this when starting out, or if this is (bad pun alert) all in my head?

Thanks guys!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



emma6 Enthusiast

yes i had a constant headache for the first two weeks along with dizzyness, fatigue, nausea it was really intense, i constantly felt like the room was spinnig even when i was lying down but it slowly got better :)

i went back to the doctor i was seeing because it was so bad she wouldn't believe me and said it was impossible to have withdrawls from gluten and i just wasn't eating enough. even though i was eating every hour and more than ever. it was definetely withdrawls i had the exact same reaction six months earlier when i had tried to go gluten free for a few days.

squirmingitch Veteran

Yep, lots of us have gone through gluten withdrawal. Headaches are one symptom reported, also stark raving, 24/7 starvation like you could eat a mountain of food & do & 20 min. later you're starving again, irritability to downright meanness, aches & pains..... & many others so if you get off with just headaches then you're not doing so bad. Please understand, I am not making light of your headaches AT ALL and I really hope they don't last too long for you.

I can hear you asking how long? Everyone is an individual so we have differing symptoms & time frames for getting through it. Most people, I would say, get off at about 2 weeks although some take longer. I was about 2 months.

weekendwarrior Apprentice

Well that explains a LOT!!

I've been hungry around the clock for the past few days! These headaches are the tension ones that run from the back of your neck, around the top of your head and into your eyes - it's not fun at all, but at least I know it's a temporary thing. 

I've increased my water and am trying to eat "filling" things (protein, etc) - I'm hoping things start to align and I feel back to normal.

 

 

squirmingitch Veteran

It will/can help if you sort of turn your meals upside down. In this, I mean, eat for breakfast something like you would eat for dinner. In the morning, eat protein & fat & plenty of it. Have fatty steak for breakfast along with fruit & whatever else. For snacks during the day, things like apple slices or bananas with peanut butter. For now, don't worry about how much you eat. Your body is trying to heal & absorb nutrients so don't hold back. Don't worry about weight or anything. EAT, just EAT. I was so bad, I would finish breakfast & I swear, within 10 minutes I was starving again. I would literally vacuum with one hand while eating an apple slathered with peanut butter with the other hand.

Whenever you eat protein make sure to have some fat with it. It will help but you still will be hungry a LOT until it finally all levels off. Nuts are a great snack, having protein & fat all in one shot. 

  • 1 month later...
hewitt Rookie

My daughter has been gluten free now for 18 months. She gets a migraine at least once a month. Her dr. gave her Imitrex however it doesnt seem to help her. Her headaches last for 4 to 5 days every time. When she visited her gastro specialist she mentioned her headaches and the specialist  said  headaches werent Celiac related. I find this hard to believe as everything Ive read says otherwise! 

kareng Grand Master
7 minutes ago, hewitt said:

My daughter has been gluten free now for 18 months. She gets a migraine at least once a month. Her dr. gave her Imitrex however it doesnt seem to help her. Her headaches last for 4 to 5 days every time. When she visited her gastro specialist she mentioned her headaches and the specialist  said  headaches werent Celiac related. I find this hard to believe as everything Ive read says otherwise! 

Some headaches are Celiac related.  But, if they are, they should go away on a gluten-free diet.  They might return if you eat gluten.

It is very possible to have migraines that have nothing to do with Celiac.  I don't know her age, but, for me, I got some that were  hormone related.  They can be related to certain foods.  You might want to read some reputable info about migraines (not people with names like "migraine Mommy" or people who call them selves doctors but are not MDs.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
2 hours ago, hewitt said:

My daughter has been gluten free now for 18 months. She gets a migraine at least once a month. Her dr. gave her Imitrex however it doesnt seem to help her. Her headaches last for 4 to 5 days every time. When she visited her gastro specialist she mentioned her headaches and the specialist  said  headaches werent Celiac related. I find this hard to believe as everything Ive read says otherwise! 

I am assuming her GI orders follow-up celiac antibodies testing since her initial diagnosis?  

tessa25 Rising Star
3 hours ago, hewitt said:

My daughter has been gluten free now for 18 months. She gets a migraine at least once a month. Her dr. gave her Imitrex however it doesnt seem to help her. Her headaches last for 4 to 5 days every time. When she visited her gastro specialist she mentioned her headaches and the specialist  said  headaches werent Celiac related. I find this hard to believe as everything Ive read says otherwise! 

Migraines can possibly be a sign of magnesium deficiency amongst other things. Once I started taking magnesium my migraines immediately stopped happening. I never got tested for it, just gave it a try. This was before celiac. Maybe her new diet has less magnesium or some other nutrient she needs.

 

  • 2 months later...
hewitt Rookie

Thanks for the advice. Yes my daughter had a follow up appointment with her gastro specialist . She goes every 6 months at first and then once a year after that. She is currently taking a magnesium suppliment so hopefully that will help with her migraines. Its definately a learning experience and a long road!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      Pear Bread

    2. - Aretaeus Cappadocia commented on Amiah's blog entry in Amiah
      2

      Help!!

    3. - knitty kitty replied to Jmartes71's topic in Doctors
      12

      Second chance

    4. - Mari replied to Jmartes71's topic in Doctors
      12

      Second chance

    5. - trents replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,682
    • Most Online (within 30 mins)
      7,748

    BillN
    Newest Member
    BillN
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I adapted this to be a gluten-free recipe from www.tasteofhome.com/recipes/autumn-pear-bread. Wonderful flavor profile, great texture, fairly easy to make. The almond flavor from the almond flour complements the pear flavor. Ingredients 1 cup almond flour 1 cup sweet rice flour 1 cup millet flour 2 Tablespoons tapioca flour 1 cup sugar 1 ½ teaspoon baking powder 1 teaspoon baking soda 3/4 teaspoon salt 1/4 teaspoon ground nutmeg 6 tablespoons cold butter 3 large eggs, room temperature 3/8 cup buttermilk (1 tsp white vinegar + 3/8 cup milk) 2 teaspoon vanilla extract 1 ½ cup finely chopped ripe pears (1-2 med/large pears. You could peel them but I don't) Directions (optional) cut butter into pats, place on saucer in the refrigerator while prepping other ingredients In large bowl, combine flour, sugar, baking powder, baking soda, salt and nutmeg. (I use a whisk to mix) Cut in butter until mixture resembles coarse crumbs. (I use pastry blender) Combine eggs, buttermilk and vanilla (I use same whisk); stir into flour mixture just until moistened. (I use a mixing spoon) Fold in pears. (mixing spoon) Spoon into 2 greased 5 x 8 inch loaf pans Bake at 350° for 35-40 minutes or until toothpick inserted in center comes out clean. Cool for 10 minutes before removing from pans on to wire rack. Allow to cool completely. Not sure how long you can keep this at room temperature because it gets eaten quickly
    • knitty kitty
      @Jmartes71, I understand how frustrated you feel.  I have been disappointed with the medical system myself.  Have you read my story in my blog?   What can we do to help you get better?   Nutritional deficiencies are common in Celiac disease.  Have you been checked for vitamin and mineral deficiencies?   Which supplements are you taking?
    • Mari
      hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form  you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married.      How to Request Copies of Medical Record from Kaiser Permanente Form - Fill Out and Sign Printable PDF Template | airSlate SignNow
    • trents
      It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated. 
    • knitty kitty
      Welcome, @anya22, Can you tell us more about your diet?   How much gluten containing foods did you eat?  What kinds of gluten containing foods did you eat?  What has your high calorie diet consisted of?   Some gluten containing foods contain less gluten than others.  Cakes and cookies may have less gluten than something like deep dish pizza.   Glad you're here!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.