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Sudden Coeliac disease?

pavlosmelas

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pavlosmelas Newbie
pavlosmelas
Posted

Hi there! I am new to this forum. In 2014 I got diagnosed with "IBS" because of symptoms like belly pain, bloating, constipation/diarree and smelly stool. Since November 2016 I got in a pretty stressful environment  which caused a lot of problems with my intestine (pain, extreme bloating etc). I went to the GP for the 10th time since 2014 and again she said, it are just IBS symptoms, we can do nothing about it and I got medicines named Mebeverine, but it did not work for me. During and after I returned from Christmas holiday I got sudden nose bleeds, Herpes simplex (the virus I already had in me but i didn't had it for a couple of years), very rapid weight gain (around 5 pounds in 2 days), short breath, rash on my neck and elbows and after all I was very very tired. I am a full time student who works part-time and exercise 3 times a week and I was after a full day of being busy a bit tired, now I am already tired when I am in the bus for a hour and still tired after sleeping from 11 pm till 11 am. Of course I went to the GP again and she found a pretty low hemoglobine level in my blood, so I was directed to the internist and hematologist in the hospital. Since I am Greek he suspected I had a blood disease common in the mediterranean area, so he did a huge blood test (including for coeliac disease) and stool test for calprotectin, he found out that I had no diseases and even the IgA level for coeliac disease was negative (1,76), but he did found out I had iron malabsorption which caused the low hemoglobine level. The internist said that the hemoglobine level only could not cause such big tiredness out of a sudden, so he wanted to did a gastroscopy and take samples in the duodenum to test for coeliac disease, for this I get the results upcoming Friday.

This is pretty much my story, but I am a bit sceptical about having the coeliac disease because everything happened out of a sudden, is this possible, what are your opinions? Thank you

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GFinDC Veteran
GFinDC
Posted

Hi,

Yes, celiac disease can develop at any time of life.  Celiac is an autoimmune condition and once the immune system learns that gluten is an enemy it will attack.

There is also a gene test they can do to see  if you have the genes for celiac disease.

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    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
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      Fiber Supplement

      By trents · Posted

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