Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten question


alunke82

Recommended Posts

alunke82 Newbie

hi all i have alot of  health problems i just have one question

if i have gluten/celiac  can i feel better every  evening/night?and feeling very sick every morning?

if i had gluten/celiac wouldent i be sick every evening/night to?i am still sick but feeling alot better in my head every evening

i have been gluten free allmost 3 months now got alittle gluten but not much but still sick every morning somedays worse then others but get better evening

if i eat gluten now i can get alittle stomach pain is it becouse i dont eat much of it anymore?

my worst symptom are head preasure,neck preasure and burning feets and foggy brain 

can celiac mimic lyme?i got sick some month after bite it all started with stomach pain and diarrah then i got more and more symptoms and have tingling in feets burning feets op and down not so much burning in feets in the mornings  and alittle in hands some times hot flashes and neck cracks alot and jaw cracks and some other symptoms but i allways felt better in evening tinnitus to and sudden hearing loss

 

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I am sorry that you are ill.  Celiac disease has many symptoms (over 300).  It can not be diagnosed based on symptoms as they overlap with many other diseases.  Best to get a celiac test.  Here is more information.  

Open Original Shared Link

But the only catch is that you have to beaming gluten daily for about 8 to 12 weeks prior to the blood test and less for the endoscopy.  It sounds like you are gluten light, but not really gluten free.  A celiac has to be 100% gluten free.  One small exposure can make a celiac sick for days, weeks or months.  

Take care.  

GFinDC Veteran
2 hours ago, cyclinglady said:

But the only catch is that you have to beaming gluten daily for about 8 to 12 weeks prior to the blood test and less for the endoscopy.

Hi Alunke,

Welcome to the forum! :)

The other option if you can''t beam the gluten like on Star Trek, is you can eat the gluten for the same amount of time.

You don't need to eat a lot of gluten though, a slice of bread a day is fine.   We aren't all as advanced as Cycling Lady yet. :)

 

cyclinglady Grand Master
53 minutes ago, GFinDC said:

Hi Alunke,

Welcome to the forum! :)

The other option if you can''t beam the gluten like on Star Trek, is you can eat the gluten for the same amount of time.

You don't need to eat a lot of gluten though, a slice of bread a day is fine.   We aren't all as advanced as Cycling Lady yet. :)

 

Ha!  ? I am pretty sure that I did not type beaming!  Lesson learned: proofread!  

GFinDC Veteran
55 minutes ago, cyclinglady said:

Ha!  ? I am pretty sure that I did not type beaming!  Lesson learned: proofread!  

Spellfixer gets me all the time on celiac com CL.  So I figured you meant "be eating", not "beaming".

Beaming into space is what we should do to the gluten! :)

alunke82 Newbie

hehe lets say i have gluten allergy or celiac and i get gluten food every day will i then feel sick all day and get better every evening?

example: is one pill every day with gluten in it enough to not get better 

i had blood test for celiac it was negative they found faecal calprotectin 176 2 month after 156 max is 50

and they found charcot  leyden crystals  i started to drink vita biosa helped alot on my stomach but not other issues

and now 1 year after faecal calprotectin is only 30

i dont know if i still have charcot leyden crystals but i read those 2 things could be allergyes inflamation bacteria or parasites

so i am confused they diddent found inflamation but they diddent give me endoscopy

and if i have no inflamation then theres only bacteria parasite and allergy left i think

and i know the test in denmark is not good for lyme 

though they found those 2 things and i feel really sick they they say i am healthy and can only help me with psychologist

i dont hope doctors are like that in other countryes

my old doctor diddent know what faecal calprotectin was :)

sry my english

cyclinglady Grand Master

Everyone has different symptoms for celiac disease.  Some have no symptoms at all even if they eat gluten!  

Look at the link I gave you.  Get copies of your celiac test results from your doctor.  Maybe you did not get the complete celiac blood panel:  TTG, EMA,  DGP.  

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,205
    • Most Online (within 30 mins)
      7,748

    Sarahmegan
    Newest Member
    Sarahmegan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.