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Want to Help Catalog, Track Autoimmune Diseases?

Scott Adams

By Scott Adams
in Publications & Publicity

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Scott Adams Grand Master
Scott Adams
Posted
cash_register--cc--franck_blais.webp

Do you have an autoimmune disease? Does someone you know? Did you know that the numbers regarding autoimmune rates are all over the place, and that incomplete or wrong information can result in delayed or missed diagnoses? Want to help researchers create a database that will help them understand exactly how many people are living with autoimmune conditions?

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  • Posts

    • RMJ
      Sugar intolerance 10 years into gluten-free diet

      By RMJ · Posted

      Here is some information on disaccharide (i.e., sucrose, maltose) intolerance. Disaccharide intolerance
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Thanks for replying. She has anxiety so always thinks the worst!!!GP is going to refer her for a scan and hopefully getting bloods done this week. Have mentioned food diary to her before so will mention it again
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      She is waiting to get bloods done to check for various things including bone profile. As far as I know she does a lot of cooking from scratch, lots of veg, chicken. She’s never been a fan of processed foods like cold ham but does like bacon and will also buy gluten free sausages. Shares a flat with her friend who is aware of her coeliac. As far as I’m aware they’re very careful about cross contamination but I know it’s possible it happens from time to time
    • knitty kitty
      Blood results

      By knitty kitty · Posted

      @Heatherisle, Has your daughter been checked for vitamin and mineral deficiencies?   A combination of Thiamine Hydrochloride (or Benfotiamine) and B12 and Pyridoxine B6 relieves pain as well as over-the-counter pain relievers.  What sort of food does she eat on the GFD?  Many gluten free processed foods?
    • knitty kitty
      Confused about HLA-DQ Celiac gene test result

      By knitty kitty · Posted

      Your doctor is incorrect! Your positive DQB1*02 is all you need to develop Celiac disease.  Just having one copy is sufficient to develop Celiac.   Reference: Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line screening "...importantly, a comparable risk of celiac disease development was present in individuals carrying a double dose of HLA-DQB1*02 alleles, no matter the paired HLA-DQA1 alleles." And... "If we could consider a mass screening looking for the carrier status of HLA-DQB1*02 only, we may identify 95% of celiac disease predisposed patients and, concomitantly, rule out (with no more than a 5% error) the lifetime risk of disease in 60%-70% of the general population: These non-predisposed individuals should never receive the serological screening, unless any consistent clinical symptoms appear at some point of the existence without any other explanation." https://pmc.ncbi.nlm.nih.gov/articles/PMC7109277/ Classical celiac disease is more frequent with a double dose of HLA-DQB1*02: A systematic review with meta-analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC6375622/ Also, the Malabsorption of Celiac can cause low B vitamins (and minerals) that are related to poor oral health. The Role of Vitamin B Complex in Periodontal Disease: A Systematic Review Examining Supplementation Outcomes, Age Differences in Children and Adults, and Aesthetic Changes https://pubmed.ncbi.nlm.nih.gov/40218924/ Best wishes for your Celiac journey!
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