Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who knew?!?

Mermaid's Mom

Recommended Posts

Mermaid's Mom Enthusiast
Mermaid's Mom
Posted

I decided to go Gluten Free out of support for my daughter and because I do struggle with digestive issues and my energy level isn't consistent.   I expected that I would feel better but I didn't truthfully expect a BIG difference.  In the month that I have been gluten-free I have twice consumed ONE bite of Gluten foods (a pastry once and then a bite of a mini muffin) because I had a brain fart and wasn't thinking.  Both times within 8-10 hours the stabbing stomach pains returned and irritability etc even though mentally I never gave either bite another thought.  I thought the first time may have just been a coincidence but I realize now the connection.   I have also had painful carpal tunnel for years.  Two days ago someone asked for an update on my daughter and I told her that she is now Gluten Free.  She remarked that she has been gluten-free for a few years and that she used to have painful wrists and now it is just gone.  I must be an inner cynic because I still assumed that her issues were not true carpal tunnel? LOL  The very next day I was grocery shopping with my daughter and when she picked up items she would wince and for the first time ever complained about the shooting pains in her wrists.  

I am researching and reading about this so much now and I read about infertility and all these issues connected to gluten intolerance and I am SHOCKED that potentially I have been struggling with Gluten all this time and just really had no idea!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Celiac is genetic. That is why it is advised that all first degree relatives of folks diagnosed get tested before they go gluten free. If you have other family members who haven't been tested it would be best to have them blood tested before they go gluten free. You may want to consider going back to eating gluten for a bit so you can be tested.

Gemini Experienced
Gemini
Posted
16 hours ago, Mermaid's Mom said:

I decided to go Gluten Free out of support for my daughter and because I do struggle with digestive issues and my energy level isn't consistent.   I expected that I would feel better but I didn't truthfully expect a BIG difference.  In the month that I have been gluten-free I have twice consumed ONE bite of Gluten foods (a pastry once and then a bite of a mini muffin) because I had a brain fart and wasn't thinking.  Both times within 8-10 hours the stabbing stomach pains returned and irritability etc even though mentally I never gave either bite another thought.  I thought the first time may have just been a coincidence but I realize now the connection.   I have also had painful carpal tunnel for years.  Two days ago someone asked for an update on my daughter and I told her that she is now Gluten Free.  She remarked that she has been gluten-free for a few years and that she used to have painful wrists and now it is just gone.  I must be an inner cynic because I still assumed that her issues were not true carpal tunnel? LOL  The very next day I was grocery shopping with my daughter and when she picked up items she would wince and for the first time ever complained about the shooting pains in her wrists.  

I am researching and reading about this so much now and I read about infertility and all these issues connected to gluten intolerance and I am SHOCKED that potentially I have been struggling with Gluten all this time and just really had no idea!

It is such an epiphany moment when you realize how many of your little problems are connected to gluten.  Same thing happened to me after I was diagnosed and went gluten free.  Of course, my family think I am insane and apparently prefer to have all their little problems forever, rather than go gluten free.  My sister has carpal tunnel and wears a brace at night when sleeping. She will not even entertain the notion she may have Celiac also.  When you think about it, it all boils down to widespread inflammation when you eat gluten and shouldn't be.

notme Experienced
notme
Posted
2 hours ago, Gemini said:

It is such an epiphany moment when you realize how many of your little problems are connected to gluten.  Same thing happened to me after I was diagnosed and went gluten free.  Of course, my family think I am insane and apparently prefer to have all their little problems forever, rather than go gluten free.  My sister has carpal tunnel and wears a brace at night when sleeping. She will not even entertain the notion she may have Celiac also.  When you think about it, it all boils down to widespread inflammation when you eat gluten and shouldn't be.

gem:  MY BROTHER FINALLY JUMPED ONBOARD THE gluten-free TRAIN!!!!!!  :D  i think that watching me navigate the gluten-free diet gave him the conviction he needed to try it.  he is amazed at how many things don't bother him when he eats gluten-free - doctors gave him every diagnosis you can think of before he went to a gi doc who connected the dots for him!  i'm pretty darn happy and so tired of watching him chase his tail.  now, if i could ever get through to my (very angry/exhausted/sick all the time) sister............. after all, we (supposedly) have the same mom & dad (maybe she knows something i don't lolz ;) )

 

Jmg Mentor
Jmg
Posted
3 hours ago, Gemini said:

It is such an epiphany moment when you realize how many of your little problems are connected to gluten. 

Absolutely, that's exactly the right term. I'd go so far as to say my life divides between the period before I realised and afterwards, because once I had an explanation, so many things fell into place. 

I had to make myself stop telling every random person I spoke to about the dangers of gluten :D

 

Gemini Experienced
Gemini
Posted
50 minutes ago, notme! said:

gem:  MY BROTHER FINALLY JUMPED ONBOARD THE gluten-free TRAIN!!!!!!  :D  i think that watching me navigate the gluten-free diet gave him the conviction he needed to try it.  he is amazed at how many things don't bother him when he eats gluten-free - doctors gave him every diagnosis you can think of before he went to a gi doc who connected the dots for him!  i'm pretty darn happy and so tired of watching him chase his tail.  now, if i could ever get through to my (very angry/exhausted/sick all the time) sister............. after all, we (supposedly) have the same mom & dad (maybe she knows something i don't lolz ;) )

 

So....a miracle has happened in your family????????  I wish my brother hadn't been so deep in denial because maybe he would still be alive today.  I am so happy for you!  Isn't it amazing to see validation and "that look" on a family members face when they finally get it?   :)

Your sister sounds just like mine.  Angry and tired all the time. Says she couldn't possibly have Celiac because her stomach doesn't hurt. I guess the other 50 symptoms she has don't count.........:blink:

Gemini Experienced
Gemini
Posted
45 minutes ago, Jmg said:

 

I had to make myself stop telling every random person I spoke to about the dangers of gluten :D

 

Ha, Ha!  I did the same thing.  I guess when you come back from the brink just by changing your diet, it seems so miraculous that you have to share the knowledge.  Except that many people don't want to hear it. I know people who are basically unable to work and lead a normal, fun life because of their health issues but they will not get tested or clean up their diet. That is something I will just never understand in a million years.........

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mermaid's Mom Enthusiast
Mermaid's Mom
Posted
  • Author
2 hours ago, Gemini said:

Ha, Ha!  I did the same thing.  I guess when you come back from the brink just by changing your diet, it seems so miraculous that you have to share the knowledge.  Except that many people don't want to hear it. I know people who are basically unable to work and lead a normal, fun life because of their health issues but they will not get tested or clean up their diet. That is something I will just never understand in a million years.........

I am AWFUL for this!  Now that I am "enlightened" I feel it is my duty to tell EVERYONE! LOL!.    We really do live in a society where people would rather take meds than change their diets.   My own personal story is not earth shattering enough to change anyone's mind but I am telling you Gluten was literally killing my daughter.  Week by week we just kept losing more of her.  Knowing that I feel compelled to tell everyone to go gluten-free if they have ANY issue from schizophrenia to dandruff! 

Gemini Experienced
Gemini
Posted
On 3/30/2017 at 8:48 PM, Mermaid's Mom said:

I am AWFUL for this!  Now that I am "enlightened" I feel it is my duty to tell EVERYONE! LOL!.    We really do live in a society where people would rather take meds than change their diets.   My own personal story is not earth shattering enough to change anyone's mind but I am telling you Gluten was literally killing my daughter.  Week by week we just kept losing more of her.  Knowing that I feel compelled to tell everyone to go gluten-free if they have ANY issue from schizophrenia to dandruff! 

We get what you are saying even if the rest of the wheat eating world doesn't!  ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748
    kyle68j
    Newest Member
    kyle68j
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...