Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

question about stools?


hersheygirl9

Recommended Posts

hersheygirl9 Explorer

i know this is kind of a gross topic but any help would be great. 

i have generally smooth stools now that do come with a little difficulty still but once they start it gets easier. my stools are really smooth where one long piece will have no cracks of any sort just completely smooth and very very soft. They aren't always like this though. Sometimes it's round pieces all put together in one lump. There is an oily film in the water when I pass stools. My stools are generally brown and don't float. I'm not really sure what's happening. My blood tests were normal, TtG and IgA tests, (I'm visiting the GI later this week and will request the full panel), and so were my biopsies (two were taken and I will talk to the GI about that too). Calprotectin to look for inflammation and Occult test to see hidden blood were also negative/normal. I am on PPI's and I'm about to start my third month on them. I'm really struggling to understand what's causing all the issues IF it's not celiac. I noticed the film a few weeks ago after doing extensive research so I'm worried that the issue might have been there before and I just never noticed it. I'm also taking a teaspoon of Citrucel every day, twice a day. It's really nerve-wracking so any advice and tips would be appreciated. Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi HersheyGirl,

I hope you feel better soon!  Not getting a positive on the standard celiac disease tests doesn't mean you are not having symptoms from eating gluten.  It could be the antibodies were not detected for some reason, or maybe you have NCGS.  There is no testing for NCGS, so the thing to do is trial the gluten-free diet for 6 months after all your celiac testing is complete.

hersheygirl9 Explorer
48 minutes ago, GFinDC said:

Hi HersheyGirl,

I hope you feel better soon!  Not getting a positive on the standard celiac disease tests doesn't mean you are not having symptoms from eating gluten.  It could be the antibodies were not detected for some reason, or maybe you have NCGS.  There is no testing for NCGS, so the thing to do is trial the gluten-free diet for 6 months after all your celiac testing is complete.

Okay, thank you so much! What is all the testing that is done for celiacs? I've had half the blood panel, and a biopsy. 

GFinDC Veteran
16 minutes ago, hersheygirl9 said:

Okay, thank you so much! What is all the testing that is done for celiacs? I've had half the blood panel, and a biopsy. 

Hi HG,

The celiac disease blood antibodies panel is usually the first test.  Then an endoscopy to check to take villi biopsy samples for review.  Four to 6 biopsy samples from different areas are recommended.  Sometimes a doctor does only the ttg IgA test at first, but here are also several other antibody tests that can be done.

There's more info at this site:

Open Original Shared Link

Ennis-TX Grand Master

Your stools sound about normal and healthy. The film/mucus can either be excess fats, the gel from the citrocel your taking as it does form one, or it could be a mucus from intestinal irritation. Now I really do suggest not taking that citracel all the time on a consistent bases. It is very abrasive to the intestines, good for a few week cycle but not constant use. Look to using a different fiber on rotation and more natural ones like flax seeds, chia seeds, gluten-free Hemp seeds, coconut flour/shreds are all very good sources of add fiber. I love using whole hemp or pumpkin seeds from Gerbs. (10g of fiber a serving) 

I also love cooking with and using Glucomannan flour in stuff, it thickens like crazy when heated and then let to chill a bit, or blended into foods. I use a bit in eggs, stews, sauces, puddings. A little goes a long way and works wonders for making porridge sometimes in combination with other ingredients. Really does get you moving once your system gets used to it.

hersheygirl9 Explorer
On 4/2/2017 at 10:09 AM, Ennis_TX said:

Your stools sound about normal and healthy. The film/mucus can either be excess fats, the gel from the citrocel your taking as it does form one, or it could be a mucus from intestinal irritation. Now I really do suggest not taking that citracel all the time on a consistent bases. It is very abrasive to the intestines, good for a few week cycle but not constant use. Look to using a different fiber on rotation and more natural ones like flax seeds, chia seeds, gluten-free Hemp seeds, coconut flour/shreds are all very good sources of add fiber. I love using whole hemp or pumpkin seeds from Gerbs. (10g of fiber a serving) 

I also love cooking with and using Glucomannan flour in stuff, it thickens like crazy when heated and then let to chill a bit, or blended into foods. I use a bit in eggs, stews, sauces, puddings. A little goes a long way and works wonders for making porridge sometimes in combination with other ingredients. Really does get you moving once your system gets used to it.

Thank you very much for the advice. I'll look into including high fiber foods in my diet without the supplement. The doctor has decided to run blood and stool tests to evaluate pancreatic function with a Pancreatic Elactase Fecal test as well as B-12 and Folate levels. Hopefully this will give me some answers. They have also ordered a 48 hour fecal fat test. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,999
    • Most Online (within 30 mins)
      7,748

    Wendy Jo
    Newest Member
    Wendy Jo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
    • JoJo0611
      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.