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Could More Be Going On?

danikali

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danikali Enthusiast
danikali
Posted

Hi everyone,

Well, I've been gluten free for about two weeks now.....

The first week, I noticed a lot of improvement, but the second week (since my final testing-colonoscopy/endoscopy), I am not feeling right.

Okay, so the stomach problems are mostly gone, (except yesterday I had some black coffee even though I knew I shouldn't because it causes me stomach problems somteimes) and I do have more energy, but I have noticed that since the testing, my black and blue marks have come back on my legs. This morning I couted and I had 5, mostly on my right leg close to my knee. Also, my knees (especially the right one) are achy most of the day, especially when I sit down and bend them, or when I'm walking and I put too much pressure on my right leg. Alsooo, this weird headache has not gone away for even a day, as it would usually come and go. When I brush my hair, or touch the top of my scalp in any way, sometimes, even a piece of hair, I get this nausiating, sharp pain on the left side of my head, sometimes going into my teeth.

On a positive note, I'm starting to go the bathroom, with pretty normal stools, every other day. Instead of runny diarreah or constipation. But this might also be due to I'm taking calicium, magnesium pills regularly (gluten free)

I'm eating 100% natural foods, except on Sunday I had one of those big gluten free/dairy free cookies and knew I got "glutened" or something somehow by it because I had to run to the bathroom after it and had the foul gas again. It went away the next day. I also have been eating Amy's soup most days, but I trusted it because it said gluten/dairy free.

Anyway, my question is, how serious is gluten intolerance? I tested negative for celiac disease, though I'm waiting to see the results myself so I know what tests exactly were taken. I mean, maybe it just causes me gas and bloating, but what if it isn't causing the rest of my problems? I mean, is gluten always the underlying problem when you are sensitive to it? Or could I have some other disease that no doctors have found yet? I mean, can't gluten intolerance just give me indisgestion like spicy food does for some people but not be causing everything else? I just kind of feel like this gluten thing might not be my real problem....just because it causes me gas and bloating and some weird poo doesn't necessarily mean that it is causing serious damage to the rest of my body, right? I mean, isn't it possible that it's just causing short-term discomfort but not a real health problem. The only test that even came back positive from enterolab was the IgA stool test and it wasn't high. The other tests came back normal. I'm confused! ;)

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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