Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused by blood results & Hello!

bees

Recommended Posts

bees Newbie
bees
Posted

Hello, I'm new here. :)

Add me to the "I'm confused about my results" club.

Positive for Tissue Transglutaminase IgG Ab (result was 10 - strong positive). But negative for the other IgG antibody (Gliadin) and IgA tests (I believe I am IgA deficient so this is suspected).  My diet at the time of test was while I was eating gluten.  No biopsy and I don't plan to get one - I'm going gluten free no matter what.  I started gluten-free a week ago and I'm already starting to feel positive effects with a little bit more energy.  Though today I am definitely detoxing and feel like I have the flu minus a fever/chills.

Background: Have PCOS & Hashimoto's thyroiditis (autoimmune disease that attacks thyroid - I've heard it is common to get other autoimmune diseases once you have one).  Symptoms are fatigue, irritability, hard time concentrating/thinking clearly, joint pain/inflammation, hives (started past summer and has increasingly spread - they are constant), itching, indigestion/burping/nausea/gassy.  Been feeling all of the above for about 4 years now, but always suspected at least a gluten sensitivity as I have chicken skin and about half those symptoms for many years.  

My question is: going by just the blood results would you diagnose Celiac or just gluten sensitivity?  I do carry the gene mutations for Celiac as well.  

Thank you in advance for any help and for having me here! :) 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome to the forum.   We are not doctors, just folks who have issues with gluten.   We can not diagnose you.  If you feel better by going gluten free, then by all means go for it!  

The gene test does not diagnose celiac disease since about 30% of the population has those genes.  It can exclude celiac disease.  You did not post the ranges or the actual results of all your celiac testing either.  But again, we can not diagnose you.  We can help you live the gluten free lifestyle.  Check out our Newbie 101 thread located at the top of the "Coping" section.

 

 

ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. If you can't or don't want to get the endo then just stay gluten free and see how your symptoms improve and then get the blood tests redone and see if the antibodies have gone down. Be aware that if you are celiac as you heal it may impact your absorption of any meds you take. keep on the lookout for any symptoms that might be related to that.

bees Newbie
bees
Posted
  • Author

Thank you.  Of course I realize you aren't doctors - I understand that.  I guess I was looking for a more concrete answer based upon blood results.  I don't know how to read them, and my doctor is just about useless (he basically just said I need to go gluten free).

The lab ranges for my positive result are 0-5 Negative, 6-9 Weak Positive, and >9 Strong Positive.  I came back as a 10.  

Im confused how I could get one strong IgG positive (tissu) and the Glidian of the IgG would be negative.

I appreciate your response.

 

bees Newbie
bees
Posted
  • Author
23 minutes ago, ravenwoodglass said:

Welcome to the board. If you can't or don't want to get the endo then just stay gluten free and see how your symptoms improve and then get the blood tests redone and see if the antibodies have gone down. Be aware that if you are celiac as you heal it may impact your absorption of any meds you take. keep on the lookout for any symptoms that might be related to that.

Thank you.  I will keep your advice in mind.  

cyclinglady Grand Master
cyclinglady
Posted

Are you sure you are IgA deficient?   You just need one positive on the complete celiac panel to move forward with the endoscopy, but you have opted out of that step.  So, the best thing is to trial a gluten-free diet.  I would still recommend following up with a GI for a second opinion.  Plus, your endo is not celiac-savvy from what you stated.  

bees Newbie
bees
Posted
  • Author
1 hour ago, cyclinglady said:

Are you sure you are IgA deficient?   You just need one positive on the complete celiac panel to move forward with the endoscopy, but you have opted out of that step.  So, the best thing is to trial a gluten-free diet.  I would still recommend following up with a GI for a second opinion.  Plus, your endo is not celiac-savvy from what you stated.  

It is suspected, but not definite.  They came back negative, fwiw.  

It isn't that I don't necessarily want get the endo.  But more I already have an upcoming surgery scheduled.  My plate is full.  I want to get started being gluten-free, and I've heard you need to be on a gluten diet for a while to get accurate results?  If I would opt to get one done in the fall I'm sure a lot of the damage will be gone with a gluten-free diet, correct? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

HA!  I got my endos mixed up!  Anyway, yes, you need to be on a gluten diet for all celiac testing to be accurate.  You can consider a gluten challenge later, but it can be brutal.  Everyone heals at a different rate and the gluten free diet has a steep learning curve.    It can take months or years to heal.  

Learn more about a challenge:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,534
    • Most Online (within 30 mins)
      7,748
    RUKen
    Newest Member
    RUKen
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      Shingles - Could It Be Related to Gluten/ Celiac

      By Russ H · Posted

      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.