Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suggestions?


Victoria1234

Recommended Posts

Victoria1234 Experienced
13 hours ago, Ennis_TX said:

Actually on a ketogenic diet, nothing but fats and protein no carbs, no fruits, no grains, no sugars. I consume massive amounts of protein and moderate fats. I am actually slowly putting on weight....but I am 127-129lbs and 5'11" I have less then 18% body fat. Once you hit ketosis you body burns fat for energy not carbs. So if you are late on a meal, forget a snack, or do not eat enough it eats fat stores first then your own body -_-. Bit brutal actually having to eat every 3-5 hours lol.    NOTE I am on this diet for medical reasons. I have recently learned I got UC so sugars/carbs cause flare ups. Celiac so no gluten, lactose intolerant...,,yeah .....On the bright side I recently found some great breads that are paleo with no carbs or grains then started making my own out of the same ingredients. No bloat starch free gluten-free bread, make my own cheesy garlic, and cheesy cheddar biscuits no grains....diets actually pretty damn good. I love I do not bloat, have so much energy. Just hate the expenses of eating all the nuts, egg whites, seeds, and fresh veggies.

I see! Wow, that sounds really restrictive. But you sound incredibly healthy. Thank you for the info. I will look to see if you've posted any of these great sounding recipes!

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria5289 Apprentice
On 5/3/2017 at 1:53 PM, Victoria1234 said:

So in 2007 I started having constant abdominal pain. I had DH for years on my elbows, no reason given by doc other than "allergies". I had many tests done but no celiac panel. I was always anemic and constipated my whole life. I even had my uterus removed in January of 2008, seeking pain relief. The uterus was tested and was actually just fine,

Shortly afterwards we found out about celiac online and I went gluten-free....

i think it was February 2008. My pain immediately went away as well as the dh.

my question to you today is, should I even worry about a doc's diagnosis after this long a time being gluten-free? I'm wondering if there is a purpose for it at this juncture? I am pretty symptom free except for C when I've been glutened, plus some seboritis dermatitis (sp?) flares up as well. No pain, except for the chronic pain for when they botched the hysterectomy and damaged some nerves which is handled by a script.

thanks for any help. I just don't know what to think anymore after reading this board!

 

Gee it could be a pinch nerve alot

Victoria1234 Experienced
3 minutes ago, Victoria5289 said:

Gee it could be a pinch nerve alot

Sadly they don't have any way to treat the nerve cluster except for meds. Tried physical therapy but it just drained my bank account.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - JoJo0611 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Just diagnosed today

    4. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - Samanthaeileen1 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,800
    • Most Online (within 30 mins)
      7,748

    CPeck
    Newest Member
    CPeck
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
    • RMJ
      The normal ranges can vary for the tissue transglutaminase and gliadin antibody celiac tests because the units aren’t absolute.  Could you please tell us what the normal ranges are for the laboratory used? If her tissue transglutaminase results are 10-fold above the normal range some would diagnose her on that alone.  Endomysial antibody ranges are more standardized, and a titer of 1:5 would usually be normal.  Might that be the normal range and not her result?  Her total immunoglobulin A is normal for her age. (This is tested because if low, then the other IgA tests might not be valid).
    • Samanthaeileen1
      Hello there! New to celiac community, although I have lots of family in it.  My two year old was just diagnosed with celiac disease based on symptoms and bloodwork.  symptoms (swollen belly, stomach hurting, gagging all the time, regular small vomit, fatigue, irritability, bum hurting, etc) she got tests at 18 months and her bloodwork was normal. She just got tested again at 2 1/2  because her symptoms were getting worse and these were her results :   Tissue Transglutaminase Ab, IgA 58.8 Unit/mL (High) Endomysial Antibody IgA Titer 1:5 titer (Abnormal)   Gliadin Antibody IgA < 1.0 Unit/mL Gliadin Antibody IgG 8.5 Unit/mL Immunoglobulin A 66 mg/dL Her regular pediatrician diagnosed her with celiac and told us to put her on the strict gluten free diet and that we wouldn’t do an endoscopy since it was so positive and she is so little (26lbs and two years old). I’m honestly happy with this decision, but my family is saying I should push and get an endoscopy for her. It just seems unnecessary and an endoscopy has its own risks that make me nervous. I’m certain she has celiac especially with it running in mine and my husbands family. We are now thinking of testing ourselves and our 5 year old as well.  anyways what would y’all recommend though? Should we ask for an endoscopy and a GI referral? (We are moving soon in 5 months so I think that’s part of why she didn’t refer us to GI)    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.