Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird symptom never resolved

Victoria1234

Recommended Posts

Victoria1234 Experienced
Victoria1234
Posted

Ok so I've had this issue as far back as I can recall. Used to happen quite often, once or twice per week. Now it's once or twice per month. Doctors never ever have a clue, and I've been to a bunch, including physical therapy for many months. So it's pain right on/in my tailbone. The kind of pain that makes me cry it hurts so much. I can sense it coming on, sort of like an aura, for several minutes. Then it's full blast pain. It will quite obviously wake me up. Happens whether or not I have gone to the bathroom successfully and any time of day. I have to either wait about 2 hours for it to go away on its own, Or sit on a heating pad and take 4 ibuprofen and have it go away in about 30 minutes. I had some pain meds left over from something else and they worked in about 15. I can stop myself from crying if I'm in public, like teaching, but it's hard. Anyway, seeing as we are such a diverse bunch here I was wondering if anyone had a clue. Thank you. Victoria 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Victoria1234 Experienced
Victoria1234
Posted
  • Author

Sorry, can't recall if the frequency of it went down with going gluten-free. So many things in my life changed then!

ironictruth Proficient
ironictruth
Posted

Is this actually on your tailbone or radiating to it? I.e., do you feel it any lower? I ask because you make a point of referencing it is unchanged by bathroom habits so the location must have made you wonder. Is it always 2 hours or do you have shorter bouts (20 mins?)

Victoria1234 Experienced
Victoria1234
Posted
  • Author
1 hour ago, ironictruth said:

Is this actually on your tailbone or radiating to it? I.e., do you feel it any lower? I ask because you make a point of referencing it is unchanged by bathroom habits so the location must have made you wonder. Is it always 2 hours or do you have shorter bouts (20 mins?)

It feels like it's directly on the bone. I think I usually control it with meds so I'm not sure if it could last, on its own without meds, for only twenty minutes. So curious as to what you are thinking!

ironictruth Proficient
ironictruth
Posted

I was thinking levator ani syndrome with pain in the coccygeal region. But even if this is the case, the  treatment would pretty much be what you're already doing.  

Victoria1234 Experienced
Victoria1234
Posted
  • Author
48 minutes ago, ironictruth said:

I was thinking levator ani syndrome with pain in the coccygeal region. But even if this is the case, the  treatment would pretty much be what you're already doing.  

Thank you Ironic! This sounds exactly like what I have! Read up on it and says it can last longer in some cases, so it sounds like me. I already have chronic pelvic pain that came from nerve damage during my partial hysterectomy in 2008, so I'm surprised no doc related to that issued dx me. Thanks so very much. Victoria 

ironictruth Proficient
ironictruth
Posted

Yes, ask GI and OB about the possibility and see if they can offer any suggestions. 

Good luck! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Victoria1234 Experienced
Victoria1234
Posted
  • Author
3 hours ago, ironictruth said:

Yes, ask GI and OB about the possibility and see if they can offer any suggestions. 

Good luck! 

I shall, thanks again!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,889
    • Most Online (within 30 mins)
      7,748
    glutenhater11
    Newest Member
    glutenhater11
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ceekay
      Gluten free beer ?

      By Ceekay · Posted

      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Oral thrush question

      By Rejoicephd · Posted

      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      Advice while waiting for testing

      By Scott Adams · Posted

      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      Daura Damm (a sponsor here) uses AN-PEP enzymes and filtering in their brewing process to reduce/remove gluten, and it actually tests below 10ppm (I've see a document where they claim 5ppm). 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      This topic has come up before on this forum and has been researched. No GMO wheat, barley and rye are commercially available in the USA. Any modifications are from hybridization, not laboratory genetic modification. Better toleration of wheat, barley and rye products in other countries is thought to be due to use of heirloom varieties of these cereal grains as opposed to the hybrids used in the USA which contain much larger amounts of gluten.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.