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cherie012

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cherie012 Apprentice
cherie012
Posted

Hi All~ Last week my 2 year old tested + for 2 of the celiac genes. Coupled with his symptoms, I am nearly 100% sure this is his problem, his scope results and blood work will be in this weekend..

Now. Turning the tables to me. I have read there is a genetic factor to celiac. I am wondering if this is my issue as well? I have graves. As does my brother. My dad has lupus. My understanding is both of these conditions are linked to celiac, in particular the genes that my son has tested + for.

I question celiac now for me because I have always had bouts of GI issues, labeled irritable bowel. From very young. And, for the past 8-9 months now I've had hives. No known origin, it seems, at least not environmental or seasonal. I have noticed they get WAY worse after eating..... sandwiches.15 grain whole wheat no less. :unsure: if I consume a large quantity of these items, the following day my lips, eyes, and face swell horribly. I have hives from head to toe. Antihistamines won't work on them. On days I consume lesser of the wheat family, the lesser the hives are..

Now, I know there are atypical presentations, but could this be it? Am I barking up the wrong tree? I mean, my peanut got this from somewhere, and seeing that my DH is japanese ( very low incidence I have heard) and has no issues whatsoever resembling all of this stuff, then I am assuming he has got it from me.

Any insight is greatly appreciated. I have spent the past week researching ALOT. and lightbulbs are finally coming on. Thanks!

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Rachel--24 Collaborator
Rachel--24
Posted

I think you are probably right. He did get those genes from someone. I have Graves too....at first I assumed it was the Graves causing my symptoms but my PTU wasnt eliminating the symptoms and it always had worked very quickly in the past. I got talked into radioactive iodine and even after going hypo and then stabalizing my levels...my symptoms just got worse and worse. Nearly 3 years later I went on a gluten-free diet and most of my symptoms disappeared. I tested positive for gluten intolerance but dont carry either of the main Celiac genes. My face and hands also get very puffy and swollen from gluten. I also have had to eliminate dairy and I'm still figuring out other sensitivities. There is a big link between celiac and thyroid disease so I think you're on the right track. Why not get tested? I'm doing much better now...I was on disability for 2 years after my radioactive iodine and doctors couldnt figure anything out. 1 month after the diet and I was back at work and havent missed a day yet. :D

cherie012 Apprentice
cherie012
Posted
  • Author
I think you are probably right. He did get those genes from someone. I have Graves too....at first I assumed it was the Graves causing my symptoms but my PTU wasnt eliminating the symptoms and it always had worked very quickly in the past. I got talked into radioactive iodine and even after going hypo and then stabalizing my levels...my symptoms just got worse and worse. Nearly 3 years later I went on a gluten-free diet and most of my symptoms disappeared. I tested positive for gluten intolerance but dont carry either of the main Celiac genes. My face and hands also get very puffy and swollen from gluten. I also have had to eliminate dairy and I'm still figuring out other sensitivities. There is a big link between celiac and thyroid disease so I think you're on the right track. Why not get tested? I'm doing much better now...I was on disability for 2 years after my radioactive iodine and doctors couldnt figure anything out. 1 month after the diet and I was back at work and havent missed a day yet. :D

I took PTU forever. somewhere along the line, after many, many years of my thyroid being high and 4 pregnancies, it finally gave out. Now, it is low ( easier to deal with than high, though!) my baby brother just underwent the radioactive iodine 6 months ago, they gave him double the normal dosage, and lo and behold, his thyroid is high again... So... I have fowarded all info on this stuff I have found over the past week or so.

I will get checked. But, I am also going to start the gluten-free diet tomorrow with my baby. If my symptoms subside, then I'll just take that as my cue~ I am tired of feeling miserable <_<

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    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
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