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No urge to urinate?

sstar

By sstar
in Related Issues & Disorders

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sstar Rookie
sstar
Posted

Hi, I recently was tested (blood) and got a positive for celiac disease. I'm 31 and have had 3 kids, and no longer have the urge to urinate. I birthed all of my children naturally, no c-sections, no surgeries. I thought perhaps there was some trauma during the birth and attributed it to that. But have come across a few things online saying that bladder problems can be related to celiac disease? I have been to a few doctors for this problem, including a very confused urologist (I asked him about my stomach bloating issue with pictures of it- before having any clue it was from celiac!) and he wanted to run some tests but I have not been back. I had multiple (or perhaps just one very bad) urinary infections which would not go away for about 6 months. The last round of harder antibiotics finally killed it off.

Has anyone else had this problem? I have not met with a GI yet to ask, I'm super poor right now! hah.

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Jmg Mentor
Jmg
Posted
7 hours ago, sstar said:

Hi, I recently was tested (blood) and got a positive for celiac disease. I'm 31 and have had 3 kids, and no longer have the urge to urinate. I birthed all of my children naturally, no c-sections, no surgeries. I thought perhaps there was some trauma during the birth and attributed it to that. But have come across a few things online saying that bladder problems can be related to celiac disease? I have been to a few doctors for this problem, including a very confused urologist (I asked him about my stomach bloating issue with pictures of it- before having any clue it was from celiac!) and he wanted to run some tests but I have not been back. I had multiple (or perhaps just one very bad) urinary infections which would not go away for about 6 months. The last round of harder antibiotics finally killed it off.

Has anyone else had this problem? I have not met with a GI yet to ask, I'm super poor right now! hah.

Are you now gluten free? Urinary issues are definitely a celiac / NCGS symptom. I used to drink tons of water / other drinks and had to urinate quite frequently when I was eating gluten. Once I stopped this was no longer the case. I still have the urge to urinate though, but far less frequently!

sstar Rookie
sstar
Posted
  • Author

Yes, I am now gluten free. Every doctor I tell this to is super confused as to why I don't have this sensation anymore! I have read that celiac can cause frequent urge to urinate, not the other way around but was hoping there were others like me hah. At some point I guess I will head back to the urologist.

Jmg Mentor
Jmg
Posted

It looks like you're not alone:

Open Original Shared Link

This one doesn't mention it directly, but it looks like it can be auto immune related: Open Original Shared Link

 

 

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    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

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      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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