Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Months Gluten Free


*Allie*

Recommended Posts

*Allie* Rookie

So initially I went gluten-free at the advice of a friend. I was off it for a month and I felt absolutely incredible. I finally got my energy back. Then at the advice of my doctors I re glutened myself to get tested for celiac, obviously coming back positive. As soon as the surgery was over I got off gluten again and I haven't gotten back my energy. The symptoms seemed to be getting better sometimes then they don't, but the fatigue has yet to go away. I work so hard to keep my diet 100% gluten free and it's really getting to me that it's not working this time around. Thoughts? Advice? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master
30 minutes ago, *Allie* said:

So initially I went gluten-free at the advice of a friend. I was off it for a month and I felt absolutely incredible. I finally got my energy back. Then at the advice of my doctors I re glutened myself to get tested for celiac, obviously coming back positive. As soon as the surgery was over I got off gluten again and I haven't gotten back my energy. The symptoms seemed to be getting better sometimes then they don't, but the fatigue has yet to go away. I work so hard to keep my diet 100% gluten free and it's really getting to me that it's not working this time around. Thoughts? Advice? 

1. How long were you gluten-free before doing the challenge? 2. Eating gluten damages the intestines of those with celiac disease as our bodies attack and destroy the villi in the process leading malabsorbtion of nutrients. You  might still be recovering from your challenge damage and this can take months.  Though I find it odd that this much could have been done in such a short time frame. Other thoughts are you might be deficient or having issues with certain nutrients like b-vitmains or magnesium which are the most common. Consider supplementing them. Also what is your current diet like right now, Everyone is different and you have to find the combinations that work with your body and how it is geared.

One other HUGE factor you probably developed a food intolerance from your challenge. One common thing with use is during glutenings our body can become more confused with another food and leads to a new allergy or intolerance developing. Try a food diary and record what you eat and how you feel after, Try rotating foods out of your diet for a few days at a time then rotating them back in. You might find you still feel crummy due to a new intolerance to something perhaps you eating daily.    Do not worry to much about these as they can go away in a year or so of avoiding them.

*Allie* Rookie

I was gluten free for a month before doing the challenge... And you're right... It was odd that I got my energy back so quickly. Now I'm taking vitamins as recommended by my dietician, so I'm not sure about the nutrients. I'm working on my diet, right now I am trying to stick to fruits, veggies, nuts, rice, etc. I'm gonna experiment with cutting dairy out for awhile as it an inflammatory. What intolerances are common for celiacs? And thank you! The food journal is a good idea I'll try it out. 

Lori0467 Newbie

I was gluten free for 2 months and felt great!!Then I cheated and I am fighting to get back where I was. It is a daily battle.

TexasJen Collaborator

Lactose and oats are the most common food intolerances. About 10% of celiacs can't tolerate oats so GI docs recommend avoiding them for the first several months and then reintroducing.  Look carefully at your gluten-free foods because a lot of gluten-free foods are made with oat flour - also a lot of oats are contaminated.  If a product claims to be gluten-free (not certified gluten-free) but uses oats or oat flour, you should call the company and ask them where they source their oats. (check a website called glutenfreewatchdog to find out the good companies)

With regards to lactose, the villi that are destroyed in celiac produce lactase which helps cleave the lactose molecule into galactose and glucose which are digestible. (lactose is not digestible in its pure form.) Often times, once the villi recover (after months on a gluten-free diet), you can start eating dairy again without trouble. 

Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents commented on Scott Adams's article in Additional Concerns
      2

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - Scott Adams commented on Scott Adams's article in Latest Research
      8

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    3. - Scott Adams replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      CT with contrast.

    4. - DebJ14 replied to Larzipan's topic in Related Issues & Disorders
      43

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,434
    • Most Online (within 30 mins)
      7,748

    Malia Ana
    Newest Member
    Malia Ana
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It’s actually very common for doctors to order both an endoscopy with biopsies and additional imaging like a CT scan with contrast, depending on your symptoms. The endoscopy with biopsy is the gold standard for diagnosing celiac disease because it allows doctors to directly examine the small intestine and check for villous atrophy. A CT scan, however, doesn’t diagnose celiac disease but can help rule out other causes of abdominal pain, weight loss, anemia, or inflammation. Your doctor may be looking for complications, structural issues, or conditions that can mimic celiac symptoms. So while the CT isn’t part of routine celiac testing for everyone, it is normal if your doctor wants a more complete picture of what’s going on.
    • DebJ14
      Say what you will about Peter Osborne, but he gave me back my life.  Back in 2007 he was not promoting grain free, but came to that conclusion a few years later.  While I did OK on gluten free, I really saw the greatest recovery when I went grain free.  I notice a huge difference if I eat a gluten free food that contains any sort of grain. I ache all over, have digestive issues and my rash comes roaring back.  I think it is probably, because grains are sprayed with Glyphosate in the drying process before being shipped.  Thanks, but I will stick to my organic, grain free diet and continue to feel well at 73.  Not missing out on nutrients as I follow a strict supplement plan based on testing.
    • Anne G
      Hello, My 17 yr old daughter was diagnosed with celiac disease 2 yrs ago. She does not have gum disease and no history of cavities. Her dentist is recommending braces for her lower teeth but I read it may worsen gum recession or possibly increase cavity risk which I know are already issues for patients with celiac. Has anyone here had braces and did it cause any problems or issues with gum recession?  Her dentist seemed oblivious that celiac patients are at higher risk of gum disease /cavities. Her bottom teeth are crooked but are pretty hidden even when she smiles. Thank you!!
    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.