Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I request a panel for my kid?

Hatbox121

Recommended Posts

Hatbox121 Apprentice
Hatbox121
Posted

So I'm waiting biopsy results, no blood panel for me yet(will call my GI tomorrow). I'm wondering if I should go ahead and request a panel for my daughter. Backstory on her is- has multiple health issues including JIA (autoimmune arthritis for kids) now in remission. She has been to the pedi numerous times for stomach pain, nausea, vomiting, etc. They give her GERD meds and have checked h.pylori via blood test(negative). No other testing. We are always told it's just reflux or it's just anxiety or whatever. She has a history of weight gain and is technically overweight, but not much. Her eating habits never changed. She has a hump on her back (was told poor posture and weight gain caused it. No testing except thyroid which was fine). She vomits after meals at times(for example a couple of weeks ago we ate out at a restaurant and she had to stop mid meal to go vomit. Not the first time). Should I wait on my biopsy to come back or request a panel now? I've been pushing for a GI referall but keep getting denied. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Victoria1234 Experienced
Victoria1234
Posted
6 minutes ago, Hatbox121 said:

So I'm waiting biopsy results, no blood panel for me yet(will call my GI tomorrow). I'm wondering if I should go ahead and request a panel for my daughter. Backstory on her is- has multiple health issues including JIA (autoimmune arthritis for kids) now in remission. She has been to the pedi numerous times for stomach pain, nausea, vomiting, etc. They give her GERD meds and have checked h.pylori via blood test(negative). No other testing. We are always told it's just reflux or it's just anxiety or whatever. She has a history of weight gain and is technically overweight, but not much. Her eating habits never changed. She has a hump on her back (was told poor posture and weight gain caused it. No testing except thyroid which was fine). She vomits after meals at times(for example a couple of weeks ago we ate out at a restaurant and she had to stop mid meal to go vomit. Not the first time). Should I wait on my biopsy to come back or request a panel now? I've been pushing for a GI referall but keep getting denied. 

Request the panel now. It'll probably take some time to get it anyways. Sounds like the symptoms match up.

how did your doc skip the less expensive blood panel on you and go straight to the biopsy?

cyclinglady Grand Master
cyclinglady
Posted

You could wait until your biopsy results come in.  It is only a few more days.  But in any case, Put that request in writing.  List the symptoms.  Letter or patient-portal email,  it works every time for me.  I nicely ask and tell my doctor my concerns.  It is hard for them to disregard a letter.  It subjects them to a potential lawsuit.  

You child's regular doctor can order the celiac blood panel too.  

Hatbox121 Apprentice
Hatbox121
Posted
  • Author
6 hours ago, Victoria1234 said:

 

how did your doc skip the less expensive blood panel on you and go straight to the biopsy?

I was already having a colonoscopy for other reasons. Had polyps before so was on a 5 yr repeat. Dr saw something in terminal ileum and took biopsies. 

Hatbox121 Apprentice
Hatbox121
Posted
  • Author

Thanks. I'll call on Monday. Dr said 2 weeks before results of mine, so maybe this Friday but might be next Monday before I hear any results. Going to try her pedi first, but if denied will try my GI. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Ginger38's topic in Related Issues & Disorders
      16

      Shingles - Could It Be Related to Gluten/ Celiac

      When I had my Shingles attack in 2019 my vitamin D was at 49 ng/ml. Doctor gave me an antiviral shot and 2 tubes of lidocaine. Sufficient intake of vitamin D and the antiviral essential mineral Zinc can help reduce risk of viral infections. I've been taking Zinc Glyconate lozenges since 2004 for airborne viruses. I have not had a cold since,...
    2. cristiana
      - cristiana replied to Ginger38's topic in Related Issues & Disorders
      16

      Shingles - Could It Be Related to Gluten/ Celiac

      Thank you for your thoughtful contribution, @Tazfromoz. I live in the UK and the National Health Service funds free vaccines for people deemed to be at heightened risk. I was pleasantly surprised to discover that as a coeliac in my 50s I was eligible for this vaccine, and didn't think twice when it was offered to me. Soon after diagnosis I suffered...
    3. Tazfromoz
      - Tazfromoz replied to Ginger38's topic in Related Issues & Disorders
      16

      Shingles - Could It Be Related to Gluten/ Celiac

      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until...
    4. hjayne19
      - hjayne19 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Celiac Screening

      Hi all, Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was...
    5. yellowstone
      - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,076
    • Most Online (within 30 mins)
      7,748
    Monica L
    Newest Member
    Monica L
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Shingles - Could It Be Related to Gluten/ Celiac

      By Wheatwacked · Posted

      When I had my Shingles attack in 2019 my vitamin D was at 49 ng/ml.  Doctor gave me an antiviral shot and 2 tubes of lidocaine. Sufficient intake of vitamin D and the antiviral essential mineral Zinc can help reduce risk of viral infections.   I've been taking Zinc Glyconate lozenges since 2004 for airborne viruses. I have not had a cold since, even while friends and family were dropping like flies. Evidence supporting the use of: Zinc For the health condition: Shingles  
    • cristiana
      Shingles - Could It Be Related to Gluten/ Celiac

      By cristiana · Posted

      Thank you for your thoughtful contribution, @Tazfromoz. I live in the UK and the National Health Service funds free vaccines for people deemed to be at heightened risk.  I was pleasantly surprised to discover that as a coeliac in my 50s I was eligible for this vaccine, and didn't think twice when it was offered to me.  Soon after diagnosis I suffered mystery symptoms of burning nerve pain, following two separate dermatomes, and one GP said he felt that I had contracted shingles without the rash aka zoster sine herpete.  Of course, without the rash, it's a difficult diagnosis to prove, but looking back I think he was completely spot on.  It was miserable and lasted about a year, which I gather is quite typical. For UK coeliacs reading this, it is worth having a conversation with your GP if you haven't been vaccinated against shingles yet, if you are immunosuppressed or over 50. I have just googled this quickly - it is a helpful summary which I unashamedly took from AI, short for time as I am this morning!   My apologies. In the UK, coeliac patients aren't automatically eligible for the shingles jab unless they're severely immunosuppressed or over the general age for vaccination (currently 50+) but Coeliac UK recommends discussing the vaccine with a GP due to potential splenic dysfunction, which can increase risk, even if not routine for all coeliacs. Eligibility hinges on specific criteria like weakened immunity (chemo, certain meds) or age, with the non-live Shingrix vaccine offered in two doses to those deemed high-risk, often starting from age 18 for the immunocompromised.
    • Tazfromoz
      Shingles - Could It Be Related to Gluten/ Celiac

      By Tazfromoz · Posted

      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until she was 65. Me at 45. I've had the new long lasting vaccine. It knocked me around badly, but worth it to avoid shingles.
    • hjayne19
      Celiac Screening

      By hjayne19 · Posted

      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning?

      By yellowstone · Posted

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.