Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I request a panel for my kid?


Hatbox121

Recommended Posts

Hatbox121 Apprentice

So I'm waiting biopsy results, no blood panel for me yet(will call my GI tomorrow). I'm wondering if I should go ahead and request a panel for my daughter. Backstory on her is- has multiple health issues including JIA (autoimmune arthritis for kids) now in remission. She has been to the pedi numerous times for stomach pain, nausea, vomiting, etc. They give her GERD meds and have checked h.pylori via blood test(negative). No other testing. We are always told it's just reflux or it's just anxiety or whatever. She has a history of weight gain and is technically overweight, but not much. Her eating habits never changed. She has a hump on her back (was told poor posture and weight gain caused it. No testing except thyroid which was fine). She vomits after meals at times(for example a couple of weeks ago we ate out at a restaurant and she had to stop mid meal to go vomit. Not the first time). Should I wait on my biopsy to come back or request a panel now? I've been pushing for a GI referall but keep getting denied. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria1234 Experienced
6 minutes ago, Hatbox121 said:

So I'm waiting biopsy results, no blood panel for me yet(will call my GI tomorrow). I'm wondering if I should go ahead and request a panel for my daughter. Backstory on her is- has multiple health issues including JIA (autoimmune arthritis for kids) now in remission. She has been to the pedi numerous times for stomach pain, nausea, vomiting, etc. They give her GERD meds and have checked h.pylori via blood test(negative). No other testing. We are always told it's just reflux or it's just anxiety or whatever. She has a history of weight gain and is technically overweight, but not much. Her eating habits never changed. She has a hump on her back (was told poor posture and weight gain caused it. No testing except thyroid which was fine). She vomits after meals at times(for example a couple of weeks ago we ate out at a restaurant and she had to stop mid meal to go vomit. Not the first time). Should I wait on my biopsy to come back or request a panel now? I've been pushing for a GI referall but keep getting denied. 

Request the panel now. It'll probably take some time to get it anyways. Sounds like the symptoms match up.

how did your doc skip the less expensive blood panel on you and go straight to the biopsy?

cyclinglady Grand Master

You could wait until your biopsy results come in.  It is only a few more days.  But in any case, Put that request in writing.  List the symptoms.  Letter or patient-portal email,  it works every time for me.  I nicely ask and tell my doctor my concerns.  It is hard for them to disregard a letter.  It subjects them to a potential lawsuit.  

You child's regular doctor can order the celiac blood panel too.  

Hatbox121 Apprentice
6 hours ago, Victoria1234 said:

 

how did your doc skip the less expensive blood panel on you and go straight to the biopsy?

I was already having a colonoscopy for other reasons. Had polyps before so was on a 5 yr repeat. Dr saw something in terminal ileum and took biopsies. 

Hatbox121 Apprentice

Thanks. I'll call on Monday. Dr said 2 weeks before results of mine, so maybe this Friday but might be next Monday before I hear any results. Going to try her pedi first, but if denied will try my GI. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    2. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    3. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,808
    • Most Online (within 30 mins)
      7,748

    Mr House
    Newest Member
    Mr House
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.