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Should I request a panel for my kid?


Hatbox121

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Hatbox121 Apprentice

So I'm waiting biopsy results, no blood panel for me yet(will call my GI tomorrow). I'm wondering if I should go ahead and request a panel for my daughter. Backstory on her is- has multiple health issues including JIA (autoimmune arthritis for kids) now in remission. She has been to the pedi numerous times for stomach pain, nausea, vomiting, etc. They give her GERD meds and have checked h.pylori via blood test(negative). No other testing. We are always told it's just reflux or it's just anxiety or whatever. She has a history of weight gain and is technically overweight, but not much. Her eating habits never changed. She has a hump on her back (was told poor posture and weight gain caused it. No testing except thyroid which was fine). She vomits after meals at times(for example a couple of weeks ago we ate out at a restaurant and she had to stop mid meal to go vomit. Not the first time). Should I wait on my biopsy to come back or request a panel now? I've been pushing for a GI referall but keep getting denied. 


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Victoria1234 Experienced
6 minutes ago, Hatbox121 said:

So I'm waiting biopsy results, no blood panel for me yet(will call my GI tomorrow). I'm wondering if I should go ahead and request a panel for my daughter. Backstory on her is- has multiple health issues including JIA (autoimmune arthritis for kids) now in remission. She has been to the pedi numerous times for stomach pain, nausea, vomiting, etc. They give her GERD meds and have checked h.pylori via blood test(negative). No other testing. We are always told it's just reflux or it's just anxiety or whatever. She has a history of weight gain and is technically overweight, but not much. Her eating habits never changed. She has a hump on her back (was told poor posture and weight gain caused it. No testing except thyroid which was fine). She vomits after meals at times(for example a couple of weeks ago we ate out at a restaurant and she had to stop mid meal to go vomit. Not the first time). Should I wait on my biopsy to come back or request a panel now? I've been pushing for a GI referall but keep getting denied. 

Request the panel now. It'll probably take some time to get it anyways. Sounds like the symptoms match up.

how did your doc skip the less expensive blood panel on you and go straight to the biopsy?

cyclinglady Grand Master

You could wait until your biopsy results come in.  It is only a few more days.  But in any case, Put that request in writing.  List the symptoms.  Letter or patient-portal email,  it works every time for me.  I nicely ask and tell my doctor my concerns.  It is hard for them to disregard a letter.  It subjects them to a potential lawsuit.  

You child's regular doctor can order the celiac blood panel too.  

Hatbox121 Apprentice
6 hours ago, Victoria1234 said:

 

how did your doc skip the less expensive blood panel on you and go straight to the biopsy?

I was already having a colonoscopy for other reasons. Had polyps before so was on a 5 yr repeat. Dr saw something in terminal ileum and took biopsies. 

Hatbox121 Apprentice

Thanks. I'll call on Monday. Dr said 2 weeks before results of mine, so maybe this Friday but might be next Monday before I hear any results. Going to try her pedi first, but if denied will try my GI. 

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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