Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I got diagnosed celiac disease... 13 years late


jdfran

Recommended Posts

jdfran Newbie

I got diagnosed celiac disease recently, I was having diarrhea every time I ate gluten products. I also had abdominal pain which gets better after going to toilet.

It looks like celiac disease is the reason I stopped growing at age 15. I'm just 5'5, very short stature for a male. When I was 12 I was among the tallest of my classroom and when I was 17 I was the shortest. 

I didn't have any symptom at that time.

My grandmother said that some kids are "early growers" and others are "late growers", and I was an early grower.

So we just decided to believe her and do nothing about it. 

Height is something that affected me a lot in my life, I'm actually considering do leg-lengthening, but I would like to know first if it is possible to grow at age 28 if I take a gluten free diet and let my body heal...

 

I know the answer, but I guess the hope is last thing one loses... 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Yeah 28 is a bit late, I think my last growing spurt was in my early 20s and I grew a bit over a inch. Though 5'5" is not bad, I have a few male friends even shorter then that, depending on your ethnic BG and genes that is even on the tall side for some. I feel you on the bit late, I wish I had a time machine and  could inform myself much earlier, I had minor signs all of my life just tale tale signs, as I got older the signs progressed with a chronic constipation and vomiting after every few meals, no energy, always sleeping, fat, got worse and worse then in my early 20s I did something stupid and gave my immune system a shock and my symptoms changed....I started getting VERY bad neurological side effects, that kept progressing causing mental degradation, nerve damage, etc. got a gluten ataxia issues on top of the gut issues. And I started dropping weight like crazy, thought I was diying running a bucket list etc......yeah long story. 

But yeah feels it was too late, all the other complications that developed with other immune diseases, intolerance to other foods, allergies, brain and nerve damage. Just wish I had found out earlier and put a stop to it before it cascaded out of control and perhaps I would be a bit more normal. But I am on my way to improvement now regardless on a bit longer road to recovery but getting there,

Welcome to the forums, we have many people here you can relate to, talk to, ask about products, recipes, ways of coping etc. Like a little family here to help and support you. I will share with you the newbie 101 section, and some links to find foods. We normally suggest a whole foods only diet first few months, removing dairy and oats which you can reintroduce later (enzymes to break down dairy are produced by the tips of the villi in your intestines which are normally damaged or destroyed, oats have issues with CC constantly and some celiacs have issues with them even gluten-free so we suggest avoiding them for a few months til healing and on track).

https://www.celiac.com/forums/topic/91878-newbie-info-101/

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

 

glutenconfused Newbie

I am posting out of the blue and haven't been active on these forums in years, but I saw this post and I wanted to comment. I was diagnosed 4 years ago at 25. I have grown almost an inch and a half since my diagnosis so it is possible even if unlikely. I wouldn't expect miracles, but men do grow later than girls so you may see some change. I am sorry that your height has caused you so much distress. I hope that when you feel better and more confident in yourself that you can be more comfortable in your skin regardless of the height!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.