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Anxiety, Panic Attacks, dermatitis, Gluten?

3l3mn8r

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3l3mn8r Newbie
3l3mn8r
Posted

Recently, over the past few years I have had to take some steroids to control what has yet to be diagnosed as dermatitis or psoriasis, test results coming soon from biopsy.  Also recently i have been diagnosed with diverticulitis.  I have always had issues with stomach, pain, IBS, diarrhea, and heightened levels of anxiety and panic attacks.  I am wondering if there is a connection with Gluten intolerance.  Has anyone had any experience with anxiety and Celiac.  Profuse sweating on palms, under arms and groin areas.  With these i have also just started getting yeast/fungal infections in groin area, psoriasis/dermatitis on scalp, folds between buttocks and scrotum.  Thinking all these symptoms are pointing to Celiac, any ideas or info is greatly appreciated. 

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5143Betty Rookie
5143Betty
Posted

I have not been diagnosed celiac, but I can tell you that after going gluten free 8 months ago, my panic attacks have diminished about 80%. I have psoriasis and haven't had an outbreak since.  You have to keep eating gluten in order to be tested so keep that in mind. Good luck, you are definitely not alone here.

squirmingitch Veteran
squirmingitch
Posted

Where did the term take the biopsy from? On a lesion or on clear skin adjacent to a lesion?

Anxiety is super common with untreated celiac. All the GI things you named are common with celiac.

BTW, you need to be eating gluten everyday for testing for celiac. That includes the dh biopsy, the blood tests & the endoscopy.

Victoria1234 Experienced
Victoria1234
Posted

If you are currently on steroids, and have been on them for awhile, they may influence your testing towards the negative on your celiac blood testing. Not sure if it would effect you possible dh testing or not.  How did they biopsy your rash? 

squirmingitch Veteran
squirmingitch
Posted
4 hours ago, Victoria1234 said:

If you are currently on steroids, and have been on them for awhile, they may influence your testing towards the negative on your celiac blood testing. Not sure if it would effect you possible dh testing or not.  How did they biopsy your rash? 

Yes, the steroids can return false negatives on the rash biopsy also.

3l3mn8r Newbie
3l3mn8r
Posted
  • Author
17 hours ago, Victoria1234 said:

If you are currently on steroids, and have been on them for awhile, they may influence your testing towards the negative on your celiac blood testing. Not sure if it would effect you possible dh testing or not.  How did they biopsy your rash? 

I have been taking the steroid .25mg (ketosomething) to reduce the rashes but have been off them for a couple weeks now (rashes come back after two weeks of ending treatment). Just taking the Nystatin (no effect, just want to appease doctors orders) at this point.  The biopsy will take place on the 24th of this month and my colonoscopy will take place September 1 Gastroenterologist is very familiar with Celiac.  i have decided to just keep eating the Gluten foods until all tests are done.  I will of course update dermatologist of what i have researched and hope she is familiar with the correct procedures for testing.  Thank you all for the information. 

Victoria1234 Experienced
Victoria1234
Posted
1 hour ago, 3l3mn8r said:

I have been taking the steroid .25mg (ketosomething) to reduce the rashes but have been off them for a couple weeks now (rashes come back after two weeks of ending treatment). Just taking the Nystatin (no effect, just want to appease doctors orders) at this point.  The biopsy will take place on the 24th of this month and my colonoscopy will take place September 1 Gastroenterologist is very familiar with Celiac.  i have decided to just keep eating the Gluten foods until all tests are done.  I will of course update dermatologist of what i have researched and hope she is familiar with the correct procedures for testing.  Thank you all for the information. 

Make sure they biopsy on clear skin next to the rash for the dh possibility. Mine didn't go away with anything at all- my dumb drm didn't know about dapsone- so I suffered at least a year into the gluten-free diet.

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    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possibly way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Coeliac or not coeliac

      By CC90 · Posted

      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Coeliac or not coeliac

      By Wheatwacked · Posted

      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Coeliac or not coeliac

      By trents · Posted

      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
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