Need your knowledge, please

[Katzpajamas]

  Last December, I was horribly sick. Suddenly, questioning gluten; I didn't eat any. The change was beyond enormous, and I could not ever bring myself to voluntarily eat it, again. It was as if I was finally, not being electrocuted!  A nasty, blistering rash went away, at the same time. Now, I am saving for a gene test, because my doctor didn't know that gluten must be present to obtain a proper view of transglutiminase  antibodies. Wow.

  Since I am 54, and see visible differences in my facial structure, etc., I can see in pictures, that I was sick, as a small child.

  Question: does anybody know, and would you please, tell me about the possible lesions, formed on the inside of a Celiac sick person's small intestines? I know that I've read, several times, that someone who has been sick should avoid all forms of wheat, for about as long as they've been sick, (on this forum, sometimes), but I can't find the info.. I would be very grateful, for knowledge!

  Wheat includes ingredients like, xanthan gum, natural flavors and maltodextrin.  I know, I've been reacting to something (a gamut of symptoms, including blistering rash, tinnitus, digestive horrors, neurological symptoms, neck and back pain, etc.!)  I eat no gluten, at any time, ever. Very sure.

  Thanks, for your help! ?

Kathee

[Victoria1234]

6 hours ago, Katzpajamas said:

I know that I've read, several times, that someone who has been sick should avoid all forms of wheat, for about as long as they've been sick

Welcome!

this statement is odd and sadly, untrue. You must avoid gluten for the rest of your life if you are celiac or non celiac gluten sensitive.

the damage will repair itself over the course of months to years without gluten exposure.

[Ennis-TX]

7 hours ago, Katzpajamas said:

  Last December, I was horribly sick. Suddenly, questioning gluten; I didn't eat any. The change was beyond enormous, and I could not ever bring myself to voluntarily eat it, again. It was as if I was finally, not being electrocuted!  A nasty, blistering rash went away, at the same time. Now, I am saving for a gene test, because my doctor didn't know that gluten must be present to obtain a proper view of transglutiminase  antibodies. Wow.

  Since I am 54, and see visible differences in my facial structure, etc., I can see in pictures, that I was sick, as a small child.

  Question: does anybody know, and would you please, tell me about the possible lesions, formed on the inside of a Celiac sick person's small intestines? I know that I've read, several times, that someone who has been sick should avoid all forms of wheat, for about as long as they've been sick, (on this forum, sometimes), but I can't find the info.. I would be very grateful, for knowledge!

  Wheat includes ingredients like, xanthan gum, natural flavors and maltodextrin.  I know, I've been reacting to something (a gamut of symptoms, including blistering rash, tinnitus, digestive horrors, neurological symptoms, neck and back pain, etc.!)  I eat no gluten, at any time, ever. Very sure.

  Thanks, for your help! ?

Kathee

Xantham gum is not a gluten ingredient but many celiacs develop a intolerance to it. Gluten is found in the grains Wheat, Barley, Rye, and their relatives and cross breeds. It is also contained in ingredients like malt, in some forms of natural flavors, etc. There is a full listing of ingredients to avoid on the site, I might also suggest reading the newbie 101 section. Many also initially have reactions a few other foods, not gluten but just intolerant to them like dairy is a common one as the enzymes to break down dairy are produced by the tips of the villi which are blunted/damaged/destroyed first by the disease.   Oats are common issue due to cross contamination, even gluten free ones sometimes causing issues with some celiacs and we suggest avoiding them for awhile til you heal. You can try reintroducing them later after healing.

The damaged intestines will heal over time, it took over 3 years before mine healed mostly. I have some others issues in the nerve and neurological department that have not healed completely and will take decades from my understanding. You will probably find you have other food intolerance issues crop up, keep a food diary writing down EVERYTHING you eat and how you fix it with exact seasonings etc. Then write how you feel hours later.  Look for patterns with seasonings, foods, ingredients and you might track down some other foods you need to remove as they might not agree with you til you heal some more.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

[Katzpajamas]

  Thank you, so much, for your help and your time.  'Blunted/damaged villi'. Of course. 

  I did find a list of ingredients, other than gluten (on this site), to avoid.

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

  I truly, appreciate your kindnesses, especially Victoria and Ennis. ?