Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Suggestions appreciated

Dj1

By Dj1
in Coping with Celiac Disease

Recommended Posts

Dj1 Newbie
Dj1
Posted

Hi

I am new to this forum and indeed celiac, diagnosed 3 months ago, I have been on a gluten free diet since and a lot of my previous symptoms have disappeared which is like a new lease of life but I am really suffering with bone/muscle pain and aches. I've been researching on the internet and now thinking is it Nightshade food causing the problem ( I was previously able to eat these foods with no problem)or perhaps leaky gut, just don't know. Back to GP tomorrow but don't hold out much hope as GPs wont sent me for any allergy testing and I cant bear the thought of bring prescribed pain killers instead of getting to the root of the problem. Cold be vitamin D deficiency but I take over the recommended dose daily so not sure if that's connected. Any help would be much appreciated. Thank you for reading this

 

Lizzy

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ennis-TX Grand Master
Ennis-TX
Posted
4 hours ago, Dj1 said:

Hi

I am new to this forum and indeed celiac, diagnosed 3 months ago, I have been on a gluten free diet since and a lot of my previous symptoms have disappeared which is like a new lease of life but I am really suffering with bone/muscle pain and aches. I've been researching on the internet and now thinking is it Nightshade food causing the problem ( I was previously able to eat these foods with no problem)or perhaps leaky gut, just don't know. Back to GP tomorrow but don't hold out much hope as GPs wont sent me for any allergy testing and I cant bear the thought of bring prescribed pain killers instead of getting to the root of the problem. Cold be vitamin D deficiency but I take over the recommended dose daily so not sure if that's connected. Any help would be much appreciated. Thank you for reading this

 

Lizzy

 

B-vitamins, and Magnesium are common issues for this in deficiencies, look them up and see if they seem to ride in with any other symptoms you have. I have suggestions on brands and dosing that I swear by if interested.

It could also be a inflammatory reaction to a food like you were thinking. Keep a food dairy writing down everything that you consume and how you feel hours later.

ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. Bone and muscle pain are not uncommon with celiac. Neither are other intolerances. The food diary Ennis suggested can help you figure out a pattern. In some cases intolerances can be delayed so it might not be a food you ate right before the pain that got you. The diary can help you pinpoint a pattern. Without one I would have never realized that my intolerance to soy protein was contributing to my discomfort. I found a simple OTC anti-inflammatory to help a great deal along with gentle stretching after a good hot shower or bath. if the pain is related to celiac it can take some time to improve. It was about 6 months before I got a good deal of relief. If you haven't already do check the Newbie 101 thread at the top of the Coping section. It has a lot of good info on what all we need to do to be safe.

Dj1 Newbie
Dj1
Posted
  • Author

Thank you very much for your advice, much appreciated, interesting that soy was a contributing factor to your discomfort, I started eating soy base products about 3 months ago, not that this is a factor for me but certainly cant rule that out either, but thanks again, hopefully things will get better

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,558
    • Most Online (within 30 mins)
      7,748
    Wamedh Taj-Aldeen
    Newest Member
    Wamedh Taj-Aldeen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Is "Shield" skincare products gluten-free?

      By trents · Posted

      @LynnM, when you say, "today, his numbers were high", what numbers do you refer to? Are you speaking of celiac antibody scores? Can you be more specific and can you post the test names, the numbers and the reference ranges for the tests? So, I am understanding you to say that topical exposure to gluten doesn't cause him GI reactions but ingestion of gluten does but at the same time you are attributing the "high numbers" to the topical exposure?
    • Ginger38
      Abnormal Labs, Should I Be Concerned?

      By Ginger38 · Posted

      So I recently had blood work and my hemoglobin, hematocrit, protein and alkaline phosphatase were all low. They have never been low in the past but since august of last year I have been on the in and off gluten rollercoaster as I mentioned in previous posts. Should I be concerned with these new findings? I am worried I have made myself really sick and done damage or something this past year 
    • LynnM
      Is "Shield" skincare products gluten-free?

      By LynnM · Posted

      Thank you Scott. My son doesn't have a reaction topically, only when ingested. Interestingly though, the doc told us the face cream getting gluten into his bloodstream doesn't do the damage akin to when gluten is ingested. He had no reaction when using the face cream, it only presented in blood-work. I'm hopeful from all the comments today and will wait for the GI doc to reply. If he is cleared to use it, I will encourage SHIELD to get a gluten-free certification 
    • Scott Adams
      Is "Shield" skincare products gluten-free?

      By Scott Adams · Posted

      It’s great that you’re taking the time to research products carefully for your son with celiac disease—especially since accidental gluten exposure through skincare can be a real concern for sensitive individuals. Based on the ingredient lists you’ve shared, none of the products appear to contain obvious sources of gluten like wheat, barley, or rye derivatives. Ingredients like glycerin and tocopherols (not listed here but often a concern) can sometimes be derived from wheat, but many manufacturers use plant-based or synthetic sources. SHIELD’s transparency and willingness to share their full ingredient list is a good sign, and their note about not intentionally adding gluten is reassuring. Still, because ingredient sourcing can vary and sensitivities differ from person to person, it’s wise that you’ve reached out to your GI specialist to be sure these products are safe for your son’s specific needs. In the meantime, if you do try any of the products, consider patch-testing them first and watching closely for any signs of skin irritation or reactions. PS - Most people with celiac disease won't react to skin products that may contain gluten, but I still recommend finding gluten-free products.
    • LynnM
      Is "Shield" skincare products gluten-free?

      By LynnM · Posted

      Greetings Trents and Scott. This is the first time I'm posting here so I apologize in advance if I'm not replying properly. My 13 YO was diagnosed at age 5 and once gluten was removed from his diet, he grew 3" in a year, skin became much better and dark circles around his eyes disappeared. Today his numbers were very high and our new dietician discovered his face cream (Clinique dramatically different lotion) contained gluten. My fault for not checking.    His acne really has only just started and he's using OCT gluten-free products but the SHIELD is nothing short of miraculous for my 16 YO son and the 13 YO is eager to start. I will await his dietician's reply or google each ingredient.    I don't want to put him on that Rx as it's not that bad and isn't painful either. Just a boy starting 8th grade and doesn't want bad acne.    When I hear back I will circle back. 
×
×
  • Create New...