Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Schar gluten free cookies?


Annieoh

Recommended Posts

Annieoh Apprentice

 Has anyone had a reaction after eating  any of the Shär  gluten-free cookies?  I want to make my grandmas old banana Pudding recipe which calls for Nilla wafers. I got the Shär gluten-free chocolate thins as a substitute. They are delicious but an hour  after sampling one I started having major symptoms!  The only thing I ate just before this was a pair and a fig from my neighbors tree.  I should add that I am supersensitive but everything I've read about the company shows they have a pretty spotless record in terms of cross-contamination and dedicated facilities. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

That company is good as far as being gluten free goes however they use a lot of soy protein or flour in their items. When first diagnosed I thought I was being glutened by many gluten free foods that were made in dedicated facilities. It took my doing a food and symptom log to realize the common ingredient that was in all those products was soy protein or flour. Could you have an issue with soy?  It isn't uncommon for us to have other intolerances or sensitivities.

Ennis-TX Grand Master

Shar is one of the leading gluten free manufactures, the company is from Europe and if I recall has even stricter gluten testing guidelines then the US. The company primarily uses corn, soy and starches in the  goods so I personally can not try them or vouch for them (allergic). I know many others who do swear by them, My thoughts, I made a pudding using agar agar and one with konjac before and cashew milk with extracts and swerve sugar free confectioners sugar. I served it up with Enjoy life crunchy vanilla gram cookies. over the top for a luncheon and it was well received.

artistsl Enthusiast
4 hours ago, ravenwoodglass said:

That company is good as far as being gluten free goes however they use a lot of soy protein or flour in their items. When first diagnosed I thought I was being glutened by many gluten free foods that were made in dedicated facilities. It took my doing a food and symptom log to realize the common ingredient that was in all those products was soy protein or flour. Could you have an issue with soy?  It isn't uncommon for us to have other intolerances or sensitivities.

I get blisters from soy just as I would from gluten. It took an extremely strict elimination diet for me to figure it out.  

cyclinglady Grand Master

I can not tolerate Xanthan Gum which is in almost all gluten-free baked products.  Weird, but true.  It still bothers me, but not my hubby.  So, I can buy commercially prepared bakery items for him but I bake my own for me (and share).  I normally just skip bread, but I bake cakes and cookies using guar gum instead.  

In the beginning I keep thinking I was getting glutened.  My hubby was and still is my canary.  He was just fine, but he had been gluten-free for 12 years and long healed.  By keeping a food diary, I realized it was that particular Gum.  I also realized that a non-processed Foods diet was a better choice for me, especially after a gluten hit.  

So, it might be this Gum or any other additives (e.g. corn, soy) or preservatives.  You did not say how long you have been gluten free.  Maybe more healing is needed.  

We live off Shar products when we are traveling.  Not the “healthiest” choice for a diabetic like me who also has a few food intolerances, but safe from a celiac standpoint.  

Callista Newbie
9 hours ago, Annieoh said:

 Has anyone had a reaction after eating  any of the Shär  gluten-free cookies?  I want to make my grandmas old banana Pudding recipe which calls for Nilla wafers. I got the Shär gluten-free chocolate thins as a substitute. They are delicious but an hour  after sampling one I started having major symptoms!  The only thing I ate just before this was a pair and a fig from my neighbors tree.  I should add that I am supersensitive but everything I've read about the company shows they have a pretty spotless record in terms of cross-contamination and dedicated facilities. 

Funny that I should run across this post today. I was diagnosed with celiac disease almost 9 years ago, at the age of 45. Cross contamination has not been an issue for me. However, last night I ate 2  of exact cookies you mentioned. I’d never had them before. A few hours later I felt bloated, and this morning I am sick with symptoms that are consistent for me when I eat gluten. I literally left work and came home. Since my diagnosis this has only happened to me 2 other times. I haven’t done any research or cataloging yet, but I won’t be eating those just in case they are the culprit.

kareng Grand Master

Schar is a large international gluten free company.  It is one of the first big all gluten-free companies.  It is always possible to have a gluten mistake, but rather unlikely.  

 

They say that they test every batch for gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Annieoh Apprentice
8 hours ago, Callista said:

Callista, that's really strange! I re-read the ingredients and didn't find anything that I don't consume normally. No problem with soy or corn. Completely dumfounded. However, just because they have a good reputation for being gluten free, I've been knocked down before by such companies. Nothing is perfect I guess.

 

 

Annieoh Apprentice

Thanks for the feedback everyone. I've been gluten free for just over a year and have been pretty good about staying away from processed foods and bread substitutes. I was just really jonesing for my grandma's banana pudding. Zanthan gum, soy and corn don't bother. So Googling the other two things I ate around the same time I only came up with one tiny web hit pointing to the fig of all things but I'm doubtful. It was an article about foods high in FODMAPs (whatever those are) which included figs and prunes. It suggests they trigger gastrointestinal symptoms. Well yeah! But I eat prunes all the time so I feel like I'm just reaching. Adding this to my food log but I may take a chance and try another piece of cookie one more time in another day or so and cross my fingers before ruling them out completely. I don't believe any company is perfectly infallible even if they do have a great reputation. I'm still super sensitive and have been occasionally triggered by other products that others seem to have no problem with. 

ravenwoodglass Mentor

It might be a good idea to contact a company directly if someone feels they were glutened by an item from a company that only makes gluten free items. Save the package so you can tell them the lot number and if the company feels it to be helpful they may want you to send the remaining product to them so they can test it.

Annieoh Apprentice

Ok just to set the record straight, I tried one more cookie and then another and now half the package is gone so clearly these cookies are not to blame for the reaction I had that day. Still don't know what got me but it wasn't these!

squirmingitch Veteran

I see banana pudding in your future! ENJOY!

I'm glad you came back to report what happened with the cookies.

ravenwoodglass Mentor
8 hours ago, Annieoh said:

Ok just to set the record straight, I tried one more cookie and then another and now half the package is gone so clearly these cookies are not to blame for the reaction I had that day. Still don't know what got me but it wasn't these!

You may want to keep a food and symptom journal. Our reactions can be delayed and that can make it hard to pinpoint what 'got' us. A journal can help you see a pattern and help us figure it out. Enjoy that pudding.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,872
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.