Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hereditary Hemochromatosis


cap6

Recommended Posts

cap6 Enthusiast

Hi ~ Haven't been on site for quite awhile now but back and searching for answers!  

I am almost 8 years celiac, totally gluten free, paleo diet for past 4 years,  and yippee, now I find that I have  Hereditary Hemochromatosis with genes provided by both parents. (thanks mom & dad!).  My ferritin levels are at 1200, should be 50, and am currently doing the weekly blood letting.  Sigh.  Just feel like I am getting weaker and weaker.  Muscle and joint pains, my vanity is shot as hair and eye lashes are falling out.  Feeling quite like an ugly sloth.  How was that for a Pity Party??! 

Basically just looking for anyone else out there going through this and any words of advice.  Help????  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Wow!  I am sorry that you are sick!  My friend’s Dad had this disorder.  He became much better after treatment.  Like celiac disease, it takes....T I M E!  Ugh!   So, there is hope!  ?

  • 2 weeks later...
cap6 Enthusiast
On ‎10‎/‎25‎/‎2017 at 12:12 PM, cyclinglady said:

Sigh!  Patience is not one of my virtues. lol  Now my hemoglobin is so low they cant take any more blood.  Feeling like I am caught in the middle. 

 

 

cyclinglady Grand Master

Hang in there!  

Hugs!!!!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,639
    • Most Online (within 30 mins)
      7,748

    AnnMM
    Newest Member
    AnnMM
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @yellowstone! The most common ones seem to be dairy (casein), oats, eggs, soy and corn. "Formed" meat products (because of the "meat glue" used to hold their shape) is a problem for some. But it can be almost anything on an individual basis as your sensitivity to rice proves, since rice is uncommonly a "cross reactor" for celiacs. Some celiacs seem to not do well with any cereal grains.
    • yellowstone
      What foods can trigger a response in people with gluten sensitivity? I've read that there are foods that, although they don't contain gluten, can cause problems for people with gluten sensitivity because they contain proteins similar to gluten that trigger a response in the body. I've seen that other cereals are included: corn, rice... also chicken, casein. I would like to know what other foods can cause this reaction, and if you have more information on the subject, I would like to know about it. Right now, I react very badly to rice and corn. Thank you.
    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.