Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

After Appointment


dalek100

Recommended Posts

dalek100 Apprentice

Hi,

I am sorry for again posting back here and for being a massive pain and nuisance to everyone. I have had a follow-up appointment and they have put me on steroids and something called Creon. I have been advised to go back on the gluten free diet as well. My small intenstines are very inflammed. 

I was wondering that after being on the digestive enzyme Creon, I have noticed that the foods feel less difficult for me to eat. I have been on them for a few days with the gluten free diet. I was wondering as I only away the upper end of six stone in weight, whether my GP will continue to allow me to have this medication as my consultant said if they work, I need to stay on them for life? I am just worried as my GP has been very difficult in the past and I don't want to go like this ever again. 

Thank you for all your help and support. I finally feel like I have got somewhere. 

I value everything that people on this forum have done for me. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It is likely that once you are healed on the gluten-free diet you won't need them any longer. If you do still need digestive enzyme there are some that are over the counter. Right now you have no way of knowing whether it is the steroids, the enzymes or the diet that is the most responsible for your improvement. The steroids will be a short time course I would imagine since they can have some nasty side effects.  In addition never feel you have to apologize or that you are being a pest for posting. The purpose of the board is to help folks and you can't get that help without posting. I hope you heal quickly but be patient with your body. It can take a bit of time.

Ennis-TX Grand Master
2 hours ago, dalek100 said:

Hi,

I am sorry for again posting back here and for being a massive pain and nuisance to everyone. I have had a follow-up appointment and they have put me on steroids and something called Creon. I have been advised to go back on the gluten free diet as well. My small intenstines are very inflammed. 

I was wondering that after being on the digestive enzyme Creon, I have noticed that the foods feel less difficult for me to eat. I have been on them for a few days with the gluten free diet. I was wondering as I only away the upper end of six stone in weight, whether my GP will continue to allow me to have this medication as my consultant said if they work, I need to stay on them for life? I am just worried as my GP has been very difficult in the past and I don't want to go like this ever again. 

Thank you for all your help and support. I finally feel like I have got somewhere. 

I value everything that people on this forum have done for me. 

I buy OTC digestive enzymes and take 2-3times the recommended dose so I can eat. Food is much easier to digest, less indigestion, less chance of puking. and weight gain. I use both Jarrow Enzymes Plus (I was on the vegan version but found the normal one works better) and Jarrow Bromelaine. I was taking a supper papaya enzyme but recent reformulation led to me having a intolerance to it.

Few things to consider EPI? Open Original Shared Link
 

And I did a post with some enzyme info if from a bit of cross references information sites.
https://www.celiac.com/forums/topic/119919-digestive-enzymes/?tab=comments#comment-984650

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,895
    • Most Online (within 30 mins)
      7,748

    MLB1970
    Newest Member
    MLB1970
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.