Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prescription meds, what to look for gluten ingredients.


sddave

Recommended Posts

sddave Enthusiast

What prescription drugs hidden ingredients do you look for that contain gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I let the pharmacy know I am celiac and need gluten free meds. The pharmacist checks.  Until I found a pharmacy that I trusted I would call the maker. Most drug companies numbers can be found on line. Some companies will say no gluten ingredients but no quarentee. That is a CYA statement. When I called companies I said I had a wheat allergy as rye and barley aren't used in meds. I felt the reps would take me more seriously that way. Meds are not returnable so if you want to check get the name of the maker, med and dosage and check before you pick them up.  Very few meds have gluten.

sddave Enthusiast
2 hours ago, ravenwoodglass said:

Very few meds have gluten.

Is that true?   I'm 7 months diagnosed and used to take very few prescriptions.

I think I got cross contamination a few months ago and my gut hasn't been well since.   It has caused me lack of sleep, anxiety, and increasingly more severe stomach pain.   Now I'm on three prescriptions from cramping, sleep, and anxiety.   Bentyl (cramping), trazodone (sleep), Sertraline HCL (generic Zoloft).

Some of my pharmacists seem clueless when I ask about gluten in the prescription.   They show me a drug list but I don't know if these ingredients contain gluten.

Maybe my SIBO has returned and is getting worse and I'm thinking I'm being glutened.  I'm seeing my GI doc. Friday.

artistsl Enthusiast
7 hours ago, sddave said:

Is that true?   I'm 7 months diagnosed and used to take very few prescriptions.

I think I got cross contamination a few months ago and my gut hasn't been well since.   It has caused me lack of sleep, anxiety, and increasingly more severe stomach pain.   Now I'm on three prescriptions from cramping, sleep, and anxiety.   Bentyl (cramping), trazodone (sleep), Sertraline HCL (generic Zoloft).

Some of my pharmacists seem clueless when I ask about gluten in the prescription.   They show me a drug list but I don't know if these ingredients contain gluten.

Maybe my SIBO has returned and is getting worse and I'm thinking I'm being glutened.  I'm seeing my GI doc. Friday.

I'm not sure about gluten, but many do contain lactose according to my pharmacist. So if you are sensitive to dairy then that could be an issue. I would look into vitamin deficiencies in regard to your sudden onset of symptoms. I've been told magnesium can help with sleep. Regarding anxiety, I started drinking dairy free kefir and that healed my DH and anxiety all within a matter of a week or so. I'd struggled with those symptoms for 12 years. I also take Garden of Life kids multi strain probiotic daily, but it wasn't until I added the kefir when I started to feel better. Also encourage just simple whole foods to treat SIBO.  such as grass and vegetarian fed meats. Basically a paleo or AIP diet. 

sddave Enthusiast
14 hours ago, artistsl said:

I'm not sure about gluten, but many do contain lactose according to my pharmacist. So if you are sensitive to dairy then that could be an issue. I would look into vitamin deficiencies in regard to your sudden onset of symptoms. I've been told magnesium can help with sleep. Regarding anxiety, I started drinking dairy free kefir and that healed my DH and anxiety all within a matter of a week or so. I'd struggled with those symptoms for 12 years. I also take Garden of Life kids multi strain probiotic daily, but it wasn't until I added the kefir when I started to feel better. Also encourage just simple whole foods to treat SIBO.  such as grass and vegetarian fed meats. Basically a paleo or AIP diet. 

Thanks so much.   I had blood work done a couple of days ago and everything is normal.   I'm occasionally take a mag. powered another member suggested.   Maybe I should it every day.  I was only taking it when I woke up at night.  I'm taking a 5 strain CVS brand probiotic.   I will see about adding dairy free kefir and try to eat more whole foods.

sddave Enthusiast
15 hours ago, artistsl said:

I started drinking dairy free kefir and that healed my DH and anxiety all within a matter of a week or so.

Which dairy free kefir product do you take?  Something like KeVita?  If so, which one.

artistsl Enthusiast
5 hours ago, sddave said:

Which dairy free kefir product do you take?  Something like KeVita?  If so, which one.

I highly recommend the brand Forager Project. It's made from cashew milk. It contains 10 different live active cultures. That stuff is like liquid gold. It's currently sold out at our local store right now. Kite Hill almond milk kefir only contains 4 cultures and Harmless Harvest coconut kefir contains 8 cultures. I found all of these at Whole Foods. Our regular grocery store doesn't carry a non dairy kefir unfortunately.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sddave Enthusiast
22 hours ago, artistsl said:

I highly recommend the brand Forager Project. It's made from cashew milk. It contains 10 different live active cultures. That stuff is like liquid gold. It's currently sold out at our local store right now. Kite Hill almond milk kefir only contains 4 cultures and Harmless Harvest coconut kefir contains 8 cultures. I found all of these at Whole Foods. Our regular grocery store doesn't carry a non dairy kefir unfortunately.

thx.

  • 4 months later...
Toni B Newbie

 Dr. Put me on Trazodone for sleep and wellbuterin for depression and confusion for a few months but though my Drs argued it wasn't the medication,  I went off the wellbuterin when I became chronically constipated.  It helped.  Next was the Trazodone and they also insisted it wasn't causing the terrible stomach cramps and constipation, but, turns out it was.   Tada, my stomach is finally BEGINNING to return to normal.  But now I don't sleep.  After a week and a half of being off the Trazodone I took it last night.  My anxiety levels have been rising and I wanted to sleep.  Terrible stomach cramps and constipation  returned the next day.  So now I know for sure.  My Drs kept prescribing laxatives (which only gave me gawdawful gas) and seemed to be getting annoyed with my phone calls so I had to figure it out on my own.  What terrible frustration.  I also found out I was lactose intolerant but I hope it will pass as my stomach heals, but I figured that out on my own too.  It sucks feeling like your doctor's  have given up on you.  Is there gluten in Trazodone or is it just terrible for a fragile colon?  Do other Celiacs have a problem with it?  Feeling on my own here lately.  

RMJ Mentor

Here are the ingredients, fom the FDA website, although it looks like it is generic so it could vary from maker to maker.  It does have lactose.

Each tablet, for oral administration, contains 50 mg, 100 mg, 150 mg or 300 mg of trazodone hydrochloride, USP. In addition, each tablet contains the following inactive ingredients:
50 mg and 100 mg: Corn starch, dibasic calcium phosphate, hypromellose, lactose monohydrate, magnesium stearate, microcrystalline cellulose, polyethylene glycol, povidone, sodium starch glycolate, and triacetin
150 mg: magnesium stearate, microcrystalline cellulose, pregelatinized starch, and stearic acid
300 mg: magnesium stearate, microcrystalline cellulose, pregelatinized starch, sodium starch glycolate, and stearic acid

Toni B Newbie
On 4/9/2018 at 6:29 PM, RMJ said:

Here are the ingredients, fom the FDA website, although it looks like it is generic so it could vary from maker to maker.  It does have lactose.

Each tablet, for oral administration, contains 50 mg, 100 mg, 150 mg or 300 mg of trazodone hydrochloride, USP. In addition, each tablet contains the following inactive ingredients:
50 mg and 100 mg: Corn starch, dibasic calcium phosphate, hypromellose, lactose monohydrate, magnesium stearate, microcrystalline cellulose, polyethylene glycol, povidone, sodium starch glycolate, and triacetin
150 mg: magnesium stearate, microcrystalline cellulose, pregelatinized starch, and stearic acid
300 mg: magnesium stearate, microcrystalline cellulose, pregelatinized starch, sodium starch glycolate, and stearic acid

Thank you for the info.  I wonder if the lactose in it made me so sick?  Or is it something else.  Maybe Trazodone is just off the table for me.  It seems there always has to be a trade-off.  Sleep or stomach wellness.  ?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.