Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Exhaustion


johnojohno

Recommended Posts

johnojohno Apprentice

Hey guys. So I have been gluten free since july, I have had no energy for about two years. Still suffer from the anxiety and depression side. Had suppments/tablets etc. Havent had any good response from them. Sleeping bad. Just super tired all the time. Wonder if I dont get enough carbs in my diet but I believe i do. Only things that pull me out of it is caffeince, coffee etc, but that irritates my stomach. 

 

Any ideas, tips? I have probably left some info out here as I am super tired even piecing this information together. Chronic fatique. I have the weakest form of celiacs I believe, marsh...something or other.  But the mildest, minir ware on the villi. So I am just pretty confused with why I am still so exhausted after 5/6 months


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

John,

Didn’t you say in  previous posts that you ate a burger at McDonalds just this past week and that weeks/months earlier you have had some gluten exposures?  The learning curve to the diet is steep.  Each glutening  will set you back.  I think you said your follow-up antibodies check was good but was that taken close to the times you ate gluten?  Even if you do not get gut issues, celiac disease can do collateral damage, like not sleeping well and mental issues (e.g. depression and cognitive issues).  I think you were homeless for a while sleeping on friend’s couches.  That can even exhaust a healthy person.

Did you get a bone scan?  

Hang in there.  Soon you will feel better.  Most here take a year or longer.  Really.  

Victoria1234 Experienced

Not everything is celiac.... Have you had a sleep study to check for sleep apnea? I have severe apnea, and wear a cpap mask every night. I also get 8-9 hours of sleep every night and more on weekends. I'd be dragging if I didn't. I used to nearly fall asleep at red lights. If you can start getting better sleep, it will seriously help the depression. 

Posterboy Mentor
On 12/3/2017 at 5:36 PM, johnojohno said:

Hey guys. So I have been gluten free since july, I have had no energy for about two years. Still suffer from the anxiety and depression side. Had suppments/tablets etc. Havent had any good response from them. Sleeping bad. Just super tired all the time. Wonder if I dont get enough carbs in my diet but I believe i do. Only things that pull me out of it is caffeince, coffee etc, but that irritates my stomach. 

 

Any ideas, tips? I have probably left some info out here as I am super tired even piecing this information together. Chronic fatique. I have the weakest form of celiacs I believe, marsh...something or other.  But the mildest, minir ware on the villi. So I am just pretty confused with why I am still so exhausted after 5/6 months

johnojohno,

I have a couple links that might help you with your depression and one of them also will help you with your energy/sleep problems/chronic fatigue.

Here is the one about B-Vitamins and depression entitled "supplementation after one year improves mood".

Open Original Shared Link

It should be noted that improvement was shown at three months though.

Here is the one on Magnesium and the  one that will help you the quickest and also will help your fatigue and sleep problems entitled "rapid recovery from depression using magnesium".

Open Original Shared Link

Both B-vitamins and Magnesium Glycinate work quicker when taken with each meal for 3 months then you can taper back to twice a day for the next 3 months.

***** this is not medical advice only my personal experience with taking Magnesium.

Magnesium really helped my depression.  It will also cause lucid dreams usually in the first couple of weeks after beginning and you will find your sleep is peaceful and you wake up rested.

If you have charlie horses at night (waking you form sleep) magnesium should help this too. . .. I know it did mine.  It is wonderful to not be fatigued these days.  I know how you feel.  Find it as a Magnesium Citrate or Magnesium Glycinate and your body will thank you for it with increased energy.

As chlorophyll is to the plant so is Magnesium to the animal.

For anxiety try some Zinc lozenges (the kind you  buy for a cold) sublingually (under the tongue) your body

self regulates the amount of Zinc you need by producing a sour/metallic tastes in our mouths.

If the 2nd or 3rd lozenge becomes sour then spit it out you have enough zinc in your body.  This should help a lot of the anxiety you are having.

You might also have **** (stars) white specs in your nail bed if are low in Zinc as if you injured your fingernail . . .  a classic sign of a zinc deficiency.

I used to have them on my nails.  Since taking Zinc (as a lozenge) they are now gone and so is my anxiety.

***again this is not medical advice only things that helped my depression and chronic fatigue over the years.

I hope this is helpful.

2 Timothy 2: 7  “Consider what I say; and the Lord give thee understanding in all things” this included

posterboy by the grace of God,

johnojohno Apprentice
On 06/12/2017 at 1:15 AM, Posterboy said:

johnojohno,

I have a couple links that might help you with your depression and one of them also will help you with your energy/sleep problems/chronic fatigue.

Here is the one about B-Vitamins and depression entitled "supplementation after one year improves mood".

Open Original Shared Link

It should be noted that improvement was shown at three months though.

Here is the one on Magnesium and the  one that will help you the quickest and also will help your fatigue and sleep problems entitled "rapid recovery from depression using magnesium".

Open Original Shared Link

Both B-vitamins and Magnesium Glycinate work quicker when taken with each meal for 3 months then you can taper back to twice a day for the next 3 months.

***** this is not medical advice only my personal experience with taking Magnesium.

Magnesium really helped my depression.  It will also cause lucid dreams usually in the first couple of weeks after beginning and you will find your sleep is peaceful and you wake up rested.

If you have charlie horses at night (waking you form sleep) magnesium should help this too. . .. I know it did mine.  It is wonderful to not be fatigued these days.  I know how you feel.  Find it as a Magnesium Citrate or Magnesium Glycinate and your body will thank you for it with increased energy.

As chlorophyll is to the plant so is Magnesium to the animal.

For anxiety try some Zinc lozenges (the kind you  buy for a cold) sublingually (under the tongue) your body

self regulates the amount of Zinc you need by producing a sour/metallic tastes in our mouths.

If the 2nd or 3rd lozenge becomes sour then spit it out you have enough zinc in your body.  This should help a lot of the anxiety you are having.

You might also have **** (stars) white specs in your nail bed if are low in Zinc as if you injured your fingernail . . .  a classic sign of a zinc deficiency.

I used to have them on my nails.  Since taking Zinc (as a lozenge) they are now gone and so is my anxiety.

***again this is not medical advice only things that helped my depression and chronic fatigue over the years.

I hope this is helpful.

2 Timothy 2: 7  “Consider what I say; and the Lord give thee understanding in all things” this included

posterboy by the grace of God,

Thanks guys. Really appreciate it. 

 

I have had the magnesium Glycinate. Any recommendations on this? I have got some but i only used them for a few weeks and the dreams got a little bit extreme. Thanks again guys. i need to look a little more into it i guess. It is a frustrating disease as im sure you guys know.

Ennis-TX Grand Master
4 minutes ago, johnojohno said:

Thanks guys. Really appreciate it. 

 

I have had the magnesium Glycinate. Any recommendations on this? I have got some but i only used them for a few weeks and the dreams got a little bit extreme. Thanks again guys. i need to look a little more into it i guess. It is a frustrating disease as im sure you guys know.

The Dreams is a sign your dosing it right actually, a bit of meditation/thinking about something you want to dream about helps you control them a bit more and can make them fun, I love lucid ones.

Other thoughts I use Liquid Health Stress & Energy and Liquid Health Neurological Support 1 tbsp each 3 time a day before a meal also in a drink. I found eating tons of healthy fats like pumpkin seeds protein, nut butters etc. Helps with my mood.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fermented foods, Kefir, Kombucha?

    2. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,876
    • Most Online (within 30 mins)
      7,748

    pilber309
    Newest Member
    pilber309
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested was high in lactose so I would probably try a non dairy one. Thanks
    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.