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How to cope

Aisling Eldridge

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Aisling Eldridge Rookie
Aisling Eldridge
Posted

Hi I’m 13 and I am finding this so difficult, I was diagnosed when I was 8 so near on six years ago now and I still find it incredibly hard to cope especially round friends ext. but one of my really close friends has it too but what can I do cause I can’t simply forget about it.

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ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. Celiac can be tough to deal with especially socially. Can you tell us more about what you are having difficulty with so we can try and help?  Feel free to ask any questions needed and do feel free to vent a bit. It is good that you have a freind with celiac but it is good to get input from others who have struggled and perhaps come out the other side.

Ennis-TX Grand Master
Ennis-TX
Posted

I have a large food list I composed of various options including the standard, instant noodle options, pizza roll, hot pockets, breaded nuggets, instant burritoes, pizza, etc. Could just keep them in stock in your house, invite friends over and provide the snacks instead of eating out or at their house. Bars, and instant microwave meals make great options with visiting friends.

What are your exact concerns and we can see how to address them.....there are some benefits with friends...like amusement parks having to allow you to bring in your own food for medical reasons so you can save them money on outings. -_- I find myself having to host for others so I can have trusted food options....

  • 2 weeks later...
Isabel Z Rookie
Isabel Z
Posted

Hey I’m around the same age! I get it and feel the same way. I was diagnosed only over a year ago and my celiacs very hard to deal with at social events. But what ever you do, don’t cheat the diet! The consequences will come back. I’m here to chat if anyone needs support

Gail W Newbie
Gail W
Posted

I get how you feel, I was diagnosed almost 5 years ago and still find challenges to overcome especially when traveling with my friends.  I get the feeling that sometimes it can seem to overshadow your life, but for me it has really shown me who some of my closest friends are as well.   My friends always find it funny and joke that I eat my way thru school classes, because I ALWAYS have ‘me proof’ snacks on me to eat so I’m never hungry when I’m away from home for longer than I thought, or can’t get food while we’re on the go!!

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
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