Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing after Gluten exposure

celichris

Recommended Posts

celichris Rookie
celichris
Posted

Every time I get exposed to gluten (4 times this year) my Dr wants to test me. I have always been seronegative. I was confirmed celiac through genetics ( I have two genes and considered extremely high risk) plus endoscopy after a three week exposure. 

Do your Dr's have you tested every time you get exposed? I think for me its a waste of time and money since I always come back negative.  I am going in tomorrow because I ate two slices of pizza that was either full gluten or had A LOT of gluten cross contamination one month ago. I am STILL recovering from this. Nobody else was sick during that time I got sick and we have 6 of us in our home. 

I am just curious if that is standard for Drs to test again after exposure? If it takes months to get a positive test while eating a lot of gluten then why would they request this test after someone has be gluten-free for 5-1/2 years and just exposed to it? It just doesn't make sense to me.

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I haven't had a doctor do a panel on me since I was diagnosed. IMHO your doctor would be better off checking your vitamin levels and for anemia, liver function etc. If your still having D then stool testing to make sure you didn't get food poisoning or something along those lines would be in order. There really isn't anything they can do to help us get over a severe glutening so maybe he/she is doing the test because he/she thinks you want it done? Have you asked why they are doing it?

cyclinglady Grand Master
cyclinglady
Posted
2 hours ago, celichris said:

Every time I get exposed to gluten (4 times this year) my Dr wants to test me. I have always been seronegative. I was confirmed celiac through genetics ( I have two genes and considered extremely high risk) plus endoscopy after a three week exposure. 

Do your Dr's have you tested every time you get exposed? I think for me its a waste of time and money since I always come back negative.  I am going in tomorrow because I ate two slices of pizza that was either full gluten or had A LOT of gluten cross contamination one month ago. I am STILL recovering from this. Nobody else was sick during that time I got sick and we have 6 of us in our home. 

I am just curious if that is standard for Drs to test again after exposure? If it takes months to get a positive test while eating a lot of gluten then why would they request this test after someone has be gluten-free for 5-1/2 years and just exposed to it? It just doesn't make sense to me.

 

 

I do not get it either.  While nice to check on follow-up visits,  the jury is still out on the relationship of antibodies and intestinal damage.  

I test positive to only the DGP IgA.  My GI has ordered the the entire panel a few times and now just orders the DGP IgA if I request it.  It saves money for sure.  I confess that I have mostly returned a month or so for testing after what I think was a hidden gluten exposure.  I go, because my post-glutening symptoms change so much.  In five years I have never had a normal DGP IgA.  For piece of mind, I want to be able to figure out what may have glutened me (but I have never definitively been able to identify a source — lots of speculation).  

So, I plan on getting another endoscopy to make sure I have healed over the past five years or at least confirm that my gluten-free diet is working.  

So, what else could elevate my DGP IgA?  Another AI (I already have Hashimoto’s)?  I find very little on the subject.    Celiac disease does not receive much funding and post diagnosis studies are not in abundance.  

Ask your doctor why.  

 

kareng Grand Master
kareng
Posted
57 minutes ago, celichris said:

Every time I get exposed to gluten (4 times this year) my Dr wants to test me. I have always been seronegative. I was confirmed celiac through genetics ( I have two genes and considered extremely high risk) plus endoscopy after a three week exposure. 

Do your Dr's have you tested every time you get exposed? I think for me its a waste of time and money since I always come back negative.  I am going in tomorrow because I ate two slices of pizza that was either full gluten or had A LOT of gluten cross contamination one month ago. I am STILL recovering from this. Nobody else was sick during that time I got sick and we have 6 of us in our home. 

I am just curious if that is standard for Drs to test again after exposure? If it takes months to get a positive test while eating a lot of gluten then why would they request this test after someone has be gluten-free for 5-1/2 years and just exposed to it? It just doesn't make sense to me.

 

 

Unless its prolonged - like 12 weeks, it probably wouldn't show in a Celiac person's blood test.  Maybe your doctor is trying to convince you you don't have Celiac buy showing you negative tests?  

Actually- how does your doctor even know you were "glutened"?  I don't all my doctor up if it happens.  She can't do anything about it

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.