Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused about celiac test results

Ays16

Recommended Posts

Ays16 Newbie
Ays16
Posted

Hi i recently got tested for celiac after continuous digestive issues since I was 15. My crp has been elevated but lupus and other autoimmune problems have been ruled out. Negative Ana. My rheumatologist recently did a celiac panel but I am confused by the results? Does this indicate celiac? 

The results are 

Glidian igg 5 (<20) 

glidian iga 38H (>20) 

Ttg iga 20 H (>20)

Ttg igg 8 (<20) 

thanks so much in advance! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

You have 2 positives. Yes, it indicates celiac. The next step is an endoscopic biopsy. Be sure to keep eating gluten each & every day until the biopsy is over with. 

Ays16 Newbie
Ays16
Posted
  • Author

Thanks so much! I wasn’t sure if they all had to be postive or if there was a difference as to why I am High IGA but not IGG. 

squirmingitch Veteran
squirmingitch
Posted

You're welcome. Actually there are 6 tests in the full panel but that is neither here nor there now that you've turned up positive on 2 of the 4 you were given. It only takes 1 positive to trigger moving to the endoscopic biopsy. I don't think I've ever seen anyone be positive on all the tests across the board. I'm not even sure that's possible but logic tells me it has to be possible. They are just different tests --- some people test positive on the IGG and some test positive on the IGA. 

I am going to repeat this again b/c so many people get told by their docs that they can quit eating gluten now. Do not believe them!!!! You must keep eating gluten each day okay? Otherwise you are almost sure to have false negative biopsies. You don't have to eat a lot. Just a slice of bread or a couple crackers will do it. 

Ays16 Newbie
Ays16
Posted
  • Author

Thank you!!! 

squirmingitch Veteran
squirmingitch
Posted

You're most welcome. Let us know how things go along okay? 

Also, you might want to start getting prepped for going gluten free. Start learning now so it isn't so overwhelming later. Here's a link to the Newbie 101:

 

tessa25 Rising Star
tessa25
Posted
On 1/15/2018 at 8:11 PM, squirmingitch said:

I don't think I've ever seen anyone be positive on all the tests across the board. I'm not even sure that's possible but logic tells me it has to be possible.

Raises hand. :o

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted
11 hours ago, tessa25 said:

Raises hand. :o

Ok tessa! Point taken and I will remember that too. ;)

Gemini Experienced
Gemini
Posted
On 1/15/2018 at 10:11 PM, squirmingitch said:

You're welcome. Actually there are 6 tests in the full panel but that is neither here nor there now that you've turned up positive on 2 of the 4 you were given. It only takes 1 positive to trigger moving to the endoscopic biopsy. I don't think I've ever seen anyone be positive on all the tests across the board. I'm not even sure that's possible but logic tells me it has to be possible. They are just different tests --- some people test positive on the IGG and some test positive on the IGA. 

I am going to repeat this again b/c so many people get told by their docs that they can quit eating gluten now. Do not believe them!!!! You must keep eating gluten each day okay? Otherwise you are almost sure to have false negative biopsies. You don't have to eat a lot. Just a slice of bread or a couple crackers will do it. 

I am one of those people who tested high positive on every test on the panel and I had a complete panel done.  But I had a lifetime of symptoms and wasn't diagnosed until I was 46 so that's a lot of damage.  This is why I did not need the biopsy for a diagnosis.  It really doesn't matter because, like you stated, with 2 positives on the IgA, there is a high probability of Celiac.  A biopsy would be indicated with those results.  It would have been nice if they had run the EMA, though.

Ays16 Newbie
Ays16
Posted
  • Author

Thanks guys! I have an endoscopy/colonoscopy  feb 5th, so we will see. I have had digestive issues for the past like 10 years. GERD, migraines, lactose intolerant, dizziness on and off starting last year. My test just always show chronic inflammation, I thought they tested for celiac last time but it was only H. pylori samples. As much as I don’t want to have celiac I’m hoping this could be the root of my problem! My doctor said I should probably go gluten free after the test regardless of the results. You guys have been so helpful!! 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Sheila G.
      - Sheila G. replied to Sheila G.'s topic in Related Issues & Disorders
      7

      No red meat

      I did talk to the nurse and she asked who told me no red meat. I explained the person who called with the results of my blood work. That was last week. She told me the doctor was on vacation and would be back this week and she would talk to him and have someone call me this week. I have not received a call yet. I will call them back Monday as a reminder...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality...
    3. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    4. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues. The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves...
    5. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem. Just a few other thoughts. I had debilitating anxiety prior to my diagnosis. I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice: for depression, The Depression...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,904
    • Most Online (within 30 mins)
      7,748
    KellyMarie
    Newest Member
    KellyMarie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lmemsm
      gluten free cookie recipes

      By lmemsm · Posted

      I know it's after the holidays, but it would still be fun to do a cookie recipe exchange on this forum.
    • Sheila G.
      No red meat

      By Sheila G. · Posted

      I did talk to the nurse and she asked who told me no red meat.  I explained the person who called with the results of my blood work.  That was last week.  She told me the doctor was on vacation and would be back this week and she would talk to him and have someone call me this week.  I have not received a call yet.  I will call them back Monday as a reminder.
    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.