Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dental Problems


selectivefocus

Recommended Posts

selectivefocus Enthusiast

How many people have dental issues associated with celiac? I had nice teeth up until my 2nd child was born. Thats also when most of my other symptoms exploded. My teeth are really bad now and while I think I have stopped some damage from continuing there's nothing they can do for a few of my teeth. It's seriously so depressing. I'm grateful for the celiac diagnosis because it was like ok, it's not just me, there was a reason my teeth went downhill so fast out of nowhere.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

It has to due with some nutrient deficiency, bit like osteoporosis from my understanding. I have a book somewhere i need to dig out and get the list for you but damaged gut leads to malabosrobtion of certain nutrients related to bone and dental health leading to degrading dental health this can be further compacted by a more acidic mouth and or dry mouth that can come as secondary issues.

But yeah I brush a hour after each meal, mouthwash and floss....still have 3 cavities right now, 1 dead tooth, and a abscess around the root of one tooth that I have to keep taking herbal remedies for to keep it from getting infected (gets infected and fills up with pus if I stop, and recently got infected again and has cleared up again to clear fluid) Had the dang thing for over a year now.....just no dental coverage and no money.

selectivefocus Enthusiast
7 minutes ago, Ennis_TX said:

It has to due with some nutrient deficiency, bit like osteoporosis from my understanding. I have a book somewhere i need to dig out and get the list for you but damaged gut leads to malabosrobtion of certain nutrients related to bone and dental health leading to degrading dental health this can be further compacted by a more acidic mouth and or dry mouth that can come as secondary issues.

But yeah I brush a hour after each meal, mouthwash and floss....still have 3 cavities right now, 1 dead tooth, and a abscess around the root of one tooth that I have to keep taking herbal remedies for to keep it from getting infected (gets infected and fills up with pus if I stop, and recently got infected again and has cleared up again to clear fluid) Had the dang thing for over a year now.....just no dental coverage and no money.

I hear you. I had 2 molars pulled a couple years ago pre diagnosis for $100. But I have 3 teeth with major cavities currently and they're so bad I don't think they can save them. Honestly the only thing that has prevented further damage was being diagnosed obviously, but using Xyliwhite toothpaste. I had a back molar that was as you described with pus and infection, and the xylitol is better than conventional toothpaste at keeping bacteria away. They also have mouth wash. I also recommend Nutribiotic GSE in capsules or tablets.

I know the mechanism behind why it happens I just wish it didn't happen and I had nice teeth again :( 

Ennis-TX Grand Master
9 minutes ago, selectivefocus said:

I hear you. I had 2 molars pulled a couple years ago pre diagnosis for $100. But I have 3 teeth with major cavities currently and they're so bad I don't think they can save them. Honestly the only thing that has prevented further damage was being diagnosed obviously, but using Xyliwhite toothpaste. I had a back molar that was as you described with pus and infection, and the xylitol is better than conventional toothpaste at keeping bacteria away. They also have mouth wash. I also recommend Nutribiotic GSE in capsules or tablets.

I know the mechanism behind why it happens I just wish it didn't happen and I had nice teeth again :( 

Xylitol gum also helps, but I am having to use a blend of EOs in a 2 different tooth paste mixed into a custom blend to fight it. Neem oil, tea tree oil, sweet orange oil, lemon oil, myurah oil, and begamoth oil with 2 different paste that also use oils, I just started this last week when it stopped responding to my old organo oil and garlic treatment that worked for the last half year.....it stopped responding to antibiotics last year also after 7 months....aggressive infection but it is gone again it seems. I even started a fund raiser to make money for the down payment for the surgery but only got $20 so far.

Posterboy Mentor

selectivefocus,

I actually mentioned this to my dentists about me having celiac disease and how that was probably contributing to my dental problems but it didn't seem to register.

Here is a good link to the Canandian Dental Associatoin site on a article meant to educate dentist about this fact.

Open Original Shared Link

I printed out and took the celiac.com article to my doctor about italian study meant to educate dentists on the increased cavities in celiac's but he still would beat me up about my teeth.

here is the celiac.com article about this topic.

https://www.celiac.com/articles/23367/1/Dental-Enamel-Defects-Indicate-Adult-Celiac-Disease/Page1.html

it is worth noting the research team found 85+ percent of celiac's had some level of dental cavities or dental enamel defects as they termed them.

quoting

"The team classified enamel defects from grade 0 to 4 according to severity. They found dental enamel defects in 46 of the 54 patients (85.2%)."

Like you say it doesn't help us now but it might educate others still suffering who have not  made the association between their dental problems and their celiac diagnosis.

selectivefocus it is also worth noting to be on the look out for increased dental cavities in your kids.

medical news today reported that "stress in pregnancy may raise the risk of dental caries in offspring" (children) and why I think I have had dental issues from when I was a kid. 

here is the link to that research and confirms what you noticed. 

17 hours ago, selectivefocus said:

I had nice teeth up until my 2nd child was born.

Open Original Shared Link

Really all my life that only got worse too  I found out about my celiac diagnosis in adulthood which by then was too late to do anything meaningful to undo the damage that had already been done.

here is a great thread about the pregnancy question where this topic is discussed in more detail.

here also is a great verywell article about the connection/associatoin between pregnancy and subsequent celiac diagnosis.

Open Original Shared Link

where they say/summarize it well as you have noticed yourself.

I will quote from a notable section of the very well article. 

"First Comes Baby, Then Comes Symptoms

Most women are diagnosed with celiac disease after at least one pregnancy — in fact, a comprehensive Italian study published in 2010 on the reproductive effects of celiac found that 85.7% of women received their celiac diagnosis following their first pregnancy.

But that statistic doesn't necessarily mean anything. Many women have their first baby in their 20s or early 30s, and celiac disease diagnosis tends to occur a little later in life — in your late 30s, 40s or even 50s and beyond. Delays in diagnosis (even in Italy, which tends to be more celiac-aware than some other countries) could mean the women in the study actually had celiac long before they learned they did.

There's some evidence for this. Half of the celiac women in the study said they had experienced menstrual cycle disorders potentially linked to celiac disease before they experienced any other symptoms. And, women who eventually were diagnosed with celiac disease were twice as likely as other women to experience pregnancy complications, which also have been linked to celiac disease.

Both of these issues could indicate the women potentially were suffering from early, undiagnosed celiac disease at the time of their first pregnancies, but they and their doctors didn't recognize the symptoms."

now back to the education element of this.  As I like to say "To Educate is to truly Free".

so knowledge is power. . .the earlier we get our diagnois (awareness) there is of this connection the more dentist's will be aware of increased cavities in celiac and/or NCGS patients.  And hopefully our doctor's too because there is not enough awareness of this fact. . . that stress can cause/trigger a celiac diagnosis.

https://www.celiac.com/articles/23506/1/Stress-Common-Before-Celiac-Diagnosis/Page1.html

though my doctor seemed to listen better than my dentist . . . go figure.  my doctor did diagnosis though so not all is lost . . . but I had to prompt him  to look for it/test for it! LOL

 (though I doubt they will listen too you, they didn't  in my case . .  even when I brought materials for them to read about this topic (my dentist that is).

We don't want our patients knowing about their disease as much we do (apparently) some doctor's at least.  but not the good one's.  The good one's are learners.  they never stop learning.

I hope you have better luck!

the term is demineralization and often leads to pointed teeth or least that is when I become aware I was loosing my teeth strength from the inside out and chips in my enamel from an early adult.

I hope this is helpful.

Sorry I rambled soo much . . .

2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included.

posterboy by the grace of God,

posterboy,

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748

    LowellFrancis
    Newest Member
    LowellFrancis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.