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I am confusion

Squanching

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Squanching Rookie
Squanching
Posted

Hello friends, I was diagnosed with celiacs November of 2016, had a few problems here and there but besides that everything has been smooth sailing up to this point...

This past week whenever I would attempt to eat solid food I would get this unbearable cramping in the upper (mostly left) part of my stomach. The cramping got so bad yesterday when I tried to have a bagel I just hunched over in pain and was unable to sit up right. I live in a pretty small town and there's one gastro doctor in my area; my next appointment with him is on the 23rd. I have tried nutritional drinks and they're also causing pain, thin liquids are my life saver at this point. I've also noticed swollen and painful lymph nodes on my neck :blink: ...

I'm completely baffled and unsure what to do. Any and all advice is SUPER welcomed and appreciated ♥

 

Food is literally making me sick and at this point i'm starting to not care to eat anymore

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Ennis-TX Grand Master
Ennis-TX
Posted

My first sign to a gluten exposure used to be my lymph nodes swelling, has not happened in over a year with recent exposures but this disease always changes symptoms it seems.  Have you been sticking very strictly to the gluten free diet avoiding eating out, processed foods or stuff that might be contaminated? You might want to get your antibodies checked again to see if they are going down.

I can relate on the solid food issue, after a gluten exposure I have to spend weeks eating soft mushy foods, like microwaved eggs with extra almond milk mixed in, nut and seed butters blended into smoothies and nut meal porridge, steaming my veggies to mush and blending them into soups or eggs.....gets a bit annoying but I mix it up with extracts and herbs as I find spices irrtate my gut also after a exposure.

flowerqueen Community Regular
flowerqueen
Posted

Was it a gluten free bagel? If so, you may have become intolerant to foods in your diet. Have you looked at the low FODMAP diet? I have recently gone on this and it does seem to be helping.

Squanching Rookie
Squanching
Posted
  • Author
13 hours ago, flowerqueen said:

Was it a gluten free bagel? If so, you may have become intolerant to foods in your diet. Have you looked at the low FODMAP diet? I have recently gone on this and it does seem to be helping.

Yes, it was the canyon gluten free bagel (which are super yummy btw!) and i've never heard of that diet i gotta check it out :) try to figure out what's going on.

Squanching Rookie
Squanching
Posted
  • Author
14 hours ago, Ennis_TX said:

My first sign to a gluten exposure used to be my lymph nodes swelling, has not happened in over a year with recent exposures but this disease always changes symptoms it seems.  Have you been sticking very strictly to the gluten free diet avoiding eating out, processed foods or stuff that might be contaminated? You might want to get your antibodies checked again to see if they are going down.

I can relate on the solid food issue, after a gluten exposure I have to spend weeks eating soft mushy foods, like microwaved eggs with extra almond milk mixed in, nut and seed butters blended into smoothies and nut meal porridge, steaming my veggies to mush and blending them into soups or eggs.....gets a bit annoying but I mix it up with extracts and herbs as I find spices irrtate my gut also after a exposure.

I'm SUPER strict with it haha but maybe somewhere something i ate got contaminated, i made an appointment to get my antibodies checked out :) thank you 

flowerqueen Community Regular
flowerqueen
Posted
On 07/03/2018 at 12:41 AM, Squanching said:

Yes, it was the canyon gluten free bagel (which are super yummy btw!) and i've never heard of that diet i gotta check it out :) try to figure out what's going on.

Yes, definitely give low FODMAP diet a go, it can make a real difference. After 2 months you start to re-introduce foods which are not allowed, one at a time, to see if you can tolerate them - it helps weed out the real offenders.

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    • Rogol72
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Rogol72 · Posted

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

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    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

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